<<Disclaimer: Verify this information before applying it to your situation.>>

Dear Listserve members:

My 9 year old daughter weighed 36 pounds at 9 years old and the doctor 
was still saying she was healthy and normal when I demanded a full work 
up of tests.  She was diagnosed with celiac disease last July. 

But this is a question about genetic testing and celiac.  My 3 year old 
son is now exhibiting the same symptoms as my daughter - He is not 
eating, short stature (probably genetic) but very low weight (in 1 
percentile weight category), stomach aches, can't go the bathroom, 
constantly saying he is full, distended belly, etc.  However, he (like 
his sister twice before) has a negative TTG and has tested negative for 
the genes through Prometheus Labs.  The Pedi Gi thinks it is just 
chronic constipation but I am skeptical if the genetic tests and the TTG 
are reliable given that he has the exact same symptoms as his sister 
did.  Couldn't someone still have celiac or gluten intolerance and still 
test negative on these tests?

Any thoughts?

Joyce

*Support summarization of posts, reply to the SENDER not the CELIAC List*
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC