<<Disclaimer: Verify this information before applying it to your situation.>>
Wow! A lot of great resources!
The main organization is www.apfed.org (like our GIG and CSA)
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http://allergies.about.com/od/foodallergies/a/ee.htm go on google and search it so many topics come up for information.
Blogs:
http://search.aol.com/aol/searchquery=esosinophilic+esophagitis+blog&s_it=client95_searchbox
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Dr. Scott Lewey wrote 3 good articles on EE that can be found here
http://ezinearticles.com/?expert=Dr._Scot_Lewey
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There is a large EE yahoo group that could offer her a lot of info
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There are lots of websites to find out information about eosinophilic esophagitis. Especially in a child, it is almost always related to celiac damage, or actual structural anatomical anomalies. Use google, it is the best search engine.
Try: Ee (spelled out), webMD (symptoms of EE spelled out). Be prepared to do lots of reading
Shari Johns, co-chairperson
CSA Chapter #14
714-865-9484
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC