<<Disclaimer: Verify this information before applying it to your situation.>>

My original post concerned our ongoing search to find out the cause of 
our daughter's continuing health problems; questions about lectins as a 
possible source of her problems, a request for substitutes for potato 
and corn starches in bread, and bread mixes or recipes that don't 
contain potato or corn starches.  This is the first of two  summaries 
that address lectins, other potential causes for our daughter's health 
problems, and possible cures.  I have sent summaries concerning potato 
and corn starch alternatives separately.

A brief explanation of our situation and what we have decided -- our 
teen-age daughter, dx with celiac disease in 2003, is religiously 
gluten free and also feels ill when she eats dairy, eggs, canola oil, 
beans, acidic fruits and vegetables like tomatoes and citrus, sugar, 
and most recently, potatoes.  She has tested as IgG allergic to dairy 
and eggs in the past; currently takes enzyme supplement and probiotic.  
We are currently seeking to remove potatoes from her diet.  Hoping that 
she isn't developing more food allergies, I tried to identify an 
underlying problem that would explain her ongoing symptoms (ranging 
from headaches to stomach aches, joint pain, sinus infections, among 
many others).  A doctor suggested she might have a problem with 
lectins.    This seemed to fit, as the foods she reacts to contain 
problematic lectins, and the list of symptoms associated with lectin 
reactions seemed close to hers.  While doing a google search, I came 
across a blog of a father of a child with behavior problems.  He tried 
many different diets before deciding his son either had candida or an 
intestinal bacteria.  I then looked into candida and discovered that it 
also has a long list of symptoms that parallel those of our daughter, 
and many of the foods that we know cause her problems are starches and 
sugars (which feed candida).  After reading all your replies (thanks 
everyone!!) and discussing it with her, we have decided for now to 
eliminate potatoes and see how that goes.  If she still feels poorly, 
we will seek to identify and eliminate more foods she is having 
problems with until we see a clear trend among culprit foods (starches? 
  lectins? food groups?).  I also made another appointment with our 
nutritionist to get his take on this situation.

Thanks everyone!

Jackie in AZ

SUMMARY

LECTINS
No one indicated that they had experience with addressing lectins as a 
health problem.  One person suggested a website that addresses lectins: 
  www.dadamo.com  -- this is the website of the author of "Eat Right for 
your Blood Type."

Several people indicated that they have problems when they eat 
nightshade vegetables (eggplant, tomato, peppers, potatoes).  
Nightshade vegetables also have been linked to exacerbating symptoms of 
rheumatoid arthritis.

OTHER POSSIBLE CAUSES OF OUR DAUGHTER'S HEALTH PROBLEMS

(1) Small intestine bacterial overgrowth (discovered via scope when the 
doctor was checking on the patient's villi).  Treated with Xifaxan and 
then a powerful probiotic, VSL#3.  The patient  was on the antibiotic 
for a month and then on 3 sachets a day of the probiotic for a month; 
now takes one sachet a day.  By the end of two months, able to tolerate 
many more (but not all) foods.

(2)  If you have one allergen really sensitizing your body, then 
sometimes you react to all kinds of things that you would not be 
allergic to in the
absence of the really bad thing.

(3) Eosiniphillic Esophagitis -- It was thought to be extremely rare 
(similar to CD), and the docs are now realizing that it is not as rare 
as once thought.
  Pediatric GI said she is now diagnosing at least one case a week! 
Basically, what you and I are experiencing with our kids is what it is: 
the
continual development of additional allergies. This diagnosis has been 
on the table in our family for almost three years, but never confirmed. 
Until
recently we have stumped the best docs in the country (Hugh Sampson, 
pediallergist in NYC - top rated - included).

(4)  Salicylates:  Do a Google for more info.

(5)  Dysbiosis.  This is highlighted in “Diagnosis Unknown” by Randy 
Smith.  Another book that I recently stumbled on was “the Food Allergy 
Survival Guide” by Melina, Stepaniak, Aronson.

(6)  Toothpaste containing potassium nitrate or acid surpressor.

(7)  GMO modified soy: The majority of the conventional soy (oil plus 
tofu, proteins, etc.) is GMO Monsanto.  The genetic modification added 
genes from the petunia family to the soybean.  Since petunia is a 
nightshade, the soy thereby has nightshade contamination.  Organic & 
non-GMO soy is OK.

(8)  Lymphatic exhaustion (see # 9 under possible approaches to take in 
Summary 2 for Lectins).

(9)  Oxalates.  Foods high in oxalate give me tremendous bone/muscle 
pain as well as joint pain. Do a google for Rowan's Resources to read 
up a little and find a list of the oxalate level in foods. 

(10)   Cyclic Vomiting Syndrome

(11)   Lymes Disease.

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