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Date: | Tue, 18 Jan 2005 23:01:08 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Hello Everyone,
There were many replies to my query. Thank you to all who
responded. The responses were as follows:
1st Gene Testing: My husband and I should have the recently developed HLA
gene testing done first and foremost and then depending on the results
approach our families with our results and recommend that they should be
tested too.
2nd Give Relatives the Facts of Celiac Disease & Inform them of the blood
tests necessary. That's all we can do. It's up to them to be tested or
not. We have the power to inform, but not to change them.
3rd Inform relatives of any screenings being done in your area: We live
just over an hour from Baltimore (not too far to have family members
screened at Dr. Fasano and the Celiac Research Center - my husbands family
is here in Maryland, mine is in NY State)
4th People were impressed that our Endocrinologist automatically tested our
diabetic daughter for Celiac. (This doctor is with National Children's
Medical Center in DC.)
5th I also got a request to join a research study, which we are considering
participating in.
Thanks again to all who responded. I hope my summary is not too confusing.
~Sue in Md.
*Please provide references to back up claims of a product being GF or not GF*
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