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Hi everyone,
Most of my life I have had chronic tummy trouble, bone pain, now bone loss at age 45, anemia, cold sores, fatigue, constant sinus problems, now a horrible rash on my back, and on an on. I have had check ups and tried to find out what is wrong. I seem to be a mystery to every doc I have ever seen--or a bother--maybe. Over my lifetime I have been told that I have "schoolitis" (as a child), hypochondria, that I complain too much, stress, etc.
Well, I got the courage to go to Dr. today, after 8 years of boycotting. The nurse practitioner told me today that they will not test me for CD because most likely my insurance won't pay for it. BTW, I have three cousins, one aunt, grandmother, mother with CD. Mother is not a diagnosed CD, probably won't go in for testing either.
The Nurse Practitioner's reasoning against the biopsy or blood test is, that if I feel better when eliminating gluten from my diet, then that is my treatment. Why bother for testing? She asked me if I could understand the reasoning, and I did not. She will be calling me back this afternoon with the final word on testing, and I need a good argument for it. I would like to know what kind of damage has been done, if any, if I do in fact have CD. Is this too much to ask? I would also want to know if I should be supplementing with vitamins. I take nothing now.
Once again, I am very discouraged with doctors and what to do about my symptoms. Any comments that would help would be appreciated. If I get many responses, I will summarize. Thank you so much.
Loretta Moak
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