<<Disclaimer: Verify this information before applying it to your situation.>>
Dear Everyone, Thanks so very much for your time and wonderful information.
It is very nice to know that there are such nice folks who are willing to
help at a drop of a hat. Thanks again, Kathleen
If you have blisters, there is a fat chance you have Dermatitis
Herpetiformis (DH). And if you developed it, it is usually because you have
hidden gluten.
And you cant have iodene, in salt or else.
There is excellent site:
http://forums.delphi.com/celiac/messages/
with very caring and knowledgeable people to answer questions.
And Abigail's GF food list.
I have voluntarily posted thousands of GF recipes there.
I dont own the site and have no pecuniary advantage from it, just want help
others as others helped me when I was beginning with this diet.
There is a support group in your area. It is the
Southeast Florida Celiac-Sprue Support Group.
share with it's recipe or package. . It is only $10 to join
Mireille.
========
Go to www.celiac.com; there is a section to find MD's. There is only one
listed in FL, in Clearwater. We ended up going to Atlanta to see Dr. Cynthia
Rudert, had to pay for it ourselves, but the info she gave us was priceless
and we brought it back to our MD's here.
Another suggestion would be to find your local support group and ask their
opinion. You can find a support group by also going to www.celiac.com.
Good luck.
==========
http://www.GlutenFreeMall.com/
http://www.Celiac.com/
http://www.livingwithout.com/articles.htm
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http://www.Celiac.com/doctors.html
==========
So sorry you are having difficulty. Does your insurance allow you to go
anywhere you want? I think the closest for sure CD Dr. I know to you is in
Atlanta. Dr. Cynthia Rudert (sp) I think. If you don't get help closer and
want her contact I can get it for you. She recently spoke to our support
group in Louisville, Ky.
Karen
========
Here's the list of doctors recommended by you!! The first four were
recommended by more than one person. The "NOTE" are comments by others on
this list (ie not me!).
1) Dr. Kenneth Fine (GI researcher), Dallas TX
www.finerhealth.com
www.enterolab.com
1-800-468-6444
NOTE: Dr. Fine was by far the most recommended doctor on this
listserver. All his reviews were extremely positive.
2) Dr. Joseph Murray, Rochester, MN
Mayo Clinic
NOTE: He spent 2 hours with someone on their first visit.
3) Dr. Allessio Fasano, M.D., Maryland
Professor of Pediatrics, Medicine and Physiology
University of Maryland School of Medicine
22 S. Greene St. P.O. Box 140
Baltimore, MD USA
Tel: 410-328-0812
Fax: 410-328-1072
Email address: [log in to unmask]
4) Dr. Peter Green, New York Columbia Presbyterian Hospital, New York
212-305-3738 NOTE: "one of the top celiac specialists in the U.S. and a
very kind caring person"
Here are the rest in no particular order:
5) Dr. Samuel Meyers (GI), Manhattan
212-534-7002
6) Dr. Ronald Hoffman, Manhattan
East 30th Street
7) Dr. Cynthia Rudert; Atlanta Georgia
8) Dr. Jonathan Eisner; Hampton, Virginia
757-826-3434
9) Dr. Mamel; Tampa, Florida
Univ. of South Florida
10) Researchers at University of Maryland
410-706-3734
11) Dr. John Stroehlein; Houston, Texas
University of Texas Medical Center
NOTE: "country doctor"
12) Dr. Mark DeMeo; Chicago
GI professor at Northwestern
For his email address, go to the Greater Chicago CSA website
13) Dr. William Santangelo; Dallas, Texas
GI researcher
Works with Dr. Fine (?)
14) Dr. Robert B. Francis; Ridgecrest, California (150 miles NE of Los
Angeles) GI, Hematologist, Oncologist Drummond Medical Center 760-446-4571
15) Dr. Gary Gray at Stanford
16) Dr. Martin Kagnoff; San Diego, California
17) Dr. Ami Laws (researcher); Stanford
18) Children's Hospital; Los Angeles, California
19) Dr. Matthew A. Casimo; Vancouver, Washington
700 NE 87 Ave.
Vancouver, WA 98664
360-253-1453
20) Elaine Monarch of CDF in Studio City, California recommended the
following two doctors. However, I should mention that I've heard that
Dr. Weinstein is difficult to make an appt. with and "grumpy" but a
good doctor. Dr. Wilfred Weinstein, UCLA 310-825-7921
Dr. Terrrie Getzug, UCLA
310-825-1597
21) Dr. Andrew Weil; Arizona NOTE: "rather alternative and controversial
but he sounds like he is willing to look at options to make people well"
22) Better Health, USA (Lisa Durrow)
1-800-684-2231
Food Allergy Testing
23) The Spring 2001 issue of Living Without has a list of doctors in the U.S.
also. You might pay for a backissue. www.livingwithout.com
Sincerely,
Dawn
Los Angeles
* Visit the Celiac Web Page at www.enabling.org/ia/celiac/index.html *
=================
I was able to find a wonderful GI by contacting U of Md & asking for Dr
Fassano's Pediatric GI Dept. Someone there was able to give me the name
of a celiac expert in NYC ( about 125 miles form my home, but WELL worth
the trip!) This made such a difference for me that I would recommend it
for EVERYONE with CD! Unfortunately, I no longer have the U's telephone
#, but I was able to obtain it last year simply by calling our telephone
information operator! Best wishes, Kathy C
=================
I don't know for sure if they are still in practice,
but my husband was raised down there and was followed
by doctors Robert & George Perraud. If you can find
them, they could point you in the right direction! Let
me know if this is of any help. Susan
==============
I live in North Broward county. My GI doc is located in Tamarac. He is
in a group with 4 others. His name is Dr Nicholas Katz, I have been
seeing him for 5 years and he has a few CD patients, since I started
going to him. I may have been his first. He is very kind and patient,
I am not sure where you live in Broward but if you live close enough I
can suggest seeing him or one of his associates. Let me know and I will
forward their number and address for you.
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