Oh gads yes, Bobby! I think there is definitely sufficient anectdotal evidence. Where to start? -----Original Message----- From: Bobby Greer [mailto:[log in to unmask]] Sent: Thursday, November 04, 1999 12:01 PM To: [log in to unmask] Subject: Post Cerebral Palsy Syndrome Steve and all, My server is finally working now, so I can respond. These "use of lose it posts got me to thinking. The people with polio coined the phrase, "Post-Polio Syndrome" to denote the destruction of healthy muscle fibers remaining in atrophied muscles. Polio, per se, did not "cause" this destruction, rather it was brought on by active over-use of already weakened muscles. Maybe we should begin to speak of a Post Cerebral Palsy Syndrome in a like manner? What do you guys think?? Bobby >Deri, > >Seems to me one of the problems is we don't know about CP and Aging and we >need to find out. We find our CP bodies go through severe and unexpected >"traumas." Between 15 to 46 a number of us have symptoms, events, and >changes to our bodies that medical and therapeutic procedures may ease and >usually don't sufficiently remedy. > >When we go to doctors there's often a gap between what they know and what we >present them. > >Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages escape me >at this hour, experience "accelerated aging?". Kyle and I had our "onsets" >at 46. He was athletic, I wasn't--though very active. > >I sense we need to restate CP to include the likelihood of further injury >and difficulties if only to be more watchful and aware of possibilities. We >much need more and better "medicine," better informed doctors. > >I assess you're questioning whether the phenomena of CP and Aging exists or >exists distinct from Aging. To me CP speeds up and aggravates wear and >tear, then impedes full repair and worsens matters over time. Remedies >elude. Whatever we call it, something's happening, and it isn't all in our >minds. > >Steve M. > > >From: Deri James >Subject: Re: Use it or loose it?? >Date: Thu, 4 Nov 1999 04:31:02 +0100 > > >I'm not entirely convinced by the arguments for 'Ageing with CP' being an >entirely separate issue than just 'Ageing'. Of course physical abuse, be it >inflicted from over doing sports when >young, incorrect dietary habits, substance abuse, or an abusive spouse, will >come back to haunt us as we age, just as they would anyone. > >It is hard to gauge which problems are purely CP related. ><snip> > >Cheers > >-- >Deri James