please remove me from the listserve > -----Original Message----- > From: Carla MacInnis [SMTP:[log in to unmask]] > Sent: Thursday, November 04, 1999 2:09 PM > To: [log in to unmask] > Subject: Re: Post Cerebral Palsy Syndrome > > Hi Bobby, > My physiatrist and even my gp coin the term post cerebral palsy syndrome > - > outlining medical issues related exclusively to the secondary effects of > cerebral > palsy - particularly those with regard to aging with the condition. Guess > us > folks in the boonies are right on top of things :) > > Cheers! > > Carla > > Bobby Greer wrote: > > > Steve and all, > > > > My server is finally working now, so I can respond. > > > > These "use of lose it posts got me to thinking. The people with > polio > > coined the phrase, "Post-Polio Syndrome" to denote the destruction of > > healthy muscle fibers remaining in atrophied muscles. Polio, per se, did > > not "cause" this destruction, rather it was brought on by active > over-use > > of already weakened muscles. > > > > Maybe we should begin to speak of a Post Cerebral Palsy Syndrome > in > > a like manner? > > > > What do you guys think?? > > > > Bobby > > > > >Deri, > > > > > >Seems to me one of the problems is we don't know about CP and Aging and > we > > >need to find out. We find our CP bodies go through severe and > unexpected > > >"traumas." Between 15 to 46 a number of us have symptoms, events, and > > >changes to our bodies that medical and therapeutic procedures may ease > and > > >usually don't sufficiently remedy. > > > > > >When we go to doctors there's often a gap between what they know and > what we > > >present them. > > > > > >Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages > escape me > > >at this hour, experience "accelerated aging?". Kyle and I had our > "onsets" > > >at 46. He was athletic, I wasn't--though very active. > > > > > >I sense we need to restate CP to include the likelihood of further > injury > > >and difficulties if only to be more watchful and aware of > possibilities. We > > >much need more and better "medicine," better informed doctors. > > > > > >I assess you're questioning whether the phenomena of CP and Aging > exists or > > >exists distinct from Aging. To me CP speeds up and aggravates wear and > > >tear, then impedes full repair and worsens matters over time. Remedies > > >elude. Whatever we call it, something's happening, and it isn't all > in our > > >minds. > > > > > >Steve M. > > > > > > > > >From: Deri James > > >Subject: Re: Use it or loose it?? > > >Date: Thu, 4 Nov 1999 04:31:02 +0100 > > > > > > > > >I'm not entirely convinced by the arguments for 'Ageing with CP' being > an > > >entirely separate issue than just 'Ageing'. Of course physical abuse, > be it > > >inflicted from over doing sports when > > >young, incorrect dietary habits, substance abuse, or an abusive spouse, > will > > >come back to haunt us as we age, just as they would anyone. > > > > > >It is hard to gauge which problems are purely CP related. > > ><snip> > > > > > >Cheers > > > > > >-- > > >Deri James