<<Disclaimer: Verify this information before applying it to your situation.>> I gotta tell ya, Im really enjoying this discussion, although I doubt I can handle the volume of mail Im getting now with the other lists I subscribe to. I personally have been diagnosed a yak (as we affectionately call ourselves in our family) for 7 years now, and since that diagnosis it has had a domino effect. 3 out of 4 of us siblings, and several nephews my own kids too. I for one never needed (or wanted to put my self through) a biopsy. I had some sort of absorption test done when I was 96 lbs, at 5' 6" in the hosp hooked up to Ivs for severe dehydration and literally on deaths door. I was more then happy to discover that a change in menus would bring me immediate relief after 30 years of being a hypochondriac...I believe cheating a few times on pizza... or biscuits and gravy at breaky when we ate out recently just confirms my diagnosis, when I can hardly eat because of sores in my mouth as a result, then 4 days later the cramps and days in the potty... Nope I dont believe any further "Dx" is necessary Now the reason for my finding you guys is for my son. He has been a severe epileptic for almost 6 years. He has intractable seizures which mean that every drug we have tried (all of them for his seizure type) have not worked. I discovered that when I gave Bryan wheat he seized. He has had the blood tests which were negative, he has never had diarrhea with cramps like I had, or any of the other "typical" yak symptoms. Just the seizures. What we are presently doing is the Ketogenic Diet. He has been on the diet for 2.4 years... with some success. I say some because we have been able to wean him off of massive doses of 3 different drugs. But still see seizures. Most recently I had to search your archives..Bryan had been throwing up and I once again had to search out the reason for his puking and seizing. Well I didnt realize that Soy was a problem for some of us, and in trying to make his ketogenic diet more healthy I had added tofu. Well Im glad to report that Friday I removed his Tofu, and as of today we have had two days of no vomiting... Thank God for your archives.. So now his keto diet is gluten, dairy, and soy free.. So Hey Tracy... we gotta chat...I read about 50 posts in the archives on seizures and celiacs... Im curious if you have the epilepsy Dx first or the Yak??? Are there other PWE in your family?? Anyhoo, Thanks everyone for letting me listen in for a while and man oh man can I relate to this current thread. (both sides I might add) cya Barb Ps... we make stuffed mushroom caps for both Yaks and regular folk just use Betty hagmans bread... I also can make a mean chocolate chip cookie too with Bettys flour mix. sketti noodles, pizza crust, and even birthday cake. Oh life aint so bad to be gluten free....and Im not even that good of a cook