<<Disclaimer: Verify this information before applying it to your situation.>> >I think there is on other aspect of Ayn's post that we have been >neglecting. She had the biopsy for celiac disease, and it came back >negative. I am also in this situation. It really does make it harder on >our friends and family, because there is no 'proof' that this is what we >need. Hear hear! I, too, am on the fence ... my villi were bent at 90-degree angles, but not *flattened* ... my bloodwork came back 'borderline' but I'd been unintentionally GF for 10 days ... but if I eat gluten, I get all the gastric issues, followed by seizures. Soooooo .. my parents have been wonderfully supportive. My sister, who runs a support group for celiac children, is quite certain that I am just finding another reason to get attention [her claim about my seizures.] You'd think she'd be thrilled that the seizures/attention are gone ... but instead I get eyeball-rolling, snorting, and general disbelief. [that and breadcrumb-stuffed mushroom caps at thanksgiving ... <snort>] After that .... I'll confess ... I simply didn't tell anyone else the nitty gritty of my testing/biopsy crud ... I simply said what is true: my doctor diagnosed me with celiac. Since so many people put faith in doctors [maybe not this bunch, but general non-doctor going civilians], the nanosecond you admit that the doctor is undecided, forget it, *you* are labeled.... And even if your current doctor doesn't diagnose you ... who is to know? It is simply working with the available truth ... :) Tracey in CT GF lodging: http://www.1-888-inn-seek.com/GFinns.htm