<<Disclaimer: Verify this information before applying it to your situation.>> Hi This is my first posting to the list so I hope I am doing it correctly. I was biospied diagnoised in Jan '97 and re-biospied in May '97. The May biopsy show "60 % regrowth of villi". I continued to gain weight and feel better until Sept '97. at which time I had recurrence of symptoms. My problems included both sharp, stabbing pain and burning, muscle wasting, joint pain, confusion, personality changes, I have lost the ability to tolerate milk, eggs and I "react" with gas, bloating and pain to most other foods, sometimes, and other times tolerate them just fine. I am very carefull not to ingest gluten (seperate butter, call manerfactors, buy products the the list has recomended, ect.) I have seen four Doctors since Nov. but none of them had a clue. I finally went to Mayo clinic in Rochester Minnesota on 6/11 (Thursday). I had an endoscopy, actually I had two because I agreed to be in a study, so the first endoscopy was done with a new smaller scope with out anestic, the second one was the old way and they did another biospy. During the first endoscopy while I was awake, the Doctor said that I had much scalloping and a cobblestone pattern with no villi present. He said this was typical of untreated sprue. I have been so very very careful with the diet. I know that refracatory celiac presents itself with inital improvement on the diet with recurrence of symptoms, but that is all the info I have been able to find. I have not been able to get into the archieves for some reason. If any one has any info on refacatory sprue,or any advice please write me soon. I go back down on 6/16. Please excuse the spelling errors, that area of my brain seems affected. I also have trouble coming up with the right word at times. This list has been a God send for me in the amount of usefull info I get and I appreciate all of you. Jill in Minnesota