<<Disclaimer: Verify this information before applying it to your situation.>> The recently convened Cancer Policy Board is hosting a public forum at the National Academy of Sciences Building in Washington D.C. on March 31st. To listen to views of individuals and organizations who has concerns about the nations efforts to combat cancer. To generate ideas for topics the Board might address. To assess priorities etc. Some areas of possible interest include practice guidelines , diagnostic screening, mechanisms for consumers to influence policy, clinical trials etc. The are interested in topics which might involve multiple agencies and public and private concerns. As lack of timely diagnosis of celiac disease increses the risk of lymphoma and as a nuber of researchers including Dr. Murray and Dr. Fasano have indicated that there is considerable under diagnosis of celiac disease in America it would seem responsible to communicate concerns about the need ( my ideas only, use yours or both) To disseminate information to the American medical community to aid in early diagnosis. To increase funding for research on the actual incidence in the American population and the incidence of complications and lymphoma. To change regulations of the FDA to make it easier for diagnosed celiacs to maintain a gluten free diet. To fund research for treatment of those who have complications of celilac disease leading to lymphoma If you are interested in providing input in person or want to attend ( If you live near) Try to let them know as soon as possible Contact 202-334-1382 Fax 202-334-1317 EMAIL- [log in to unmask] You can send written testimony or letters to National Cancer Policy Board(FO3013) 2101 Constitution Avenue Washinton, DC 20418 EMAIL [log in to unmask] Via Norld Wide Web http://www2.nas.edu/cancerbd/ They will be having a listserv [log in to unmask] subscribe CANCER-POLICY I know that hopefully this may seem somewhat remote to many of you but we do want to limit the illness and risk of the people who are not getting diagnosed. Irma in MA