<<Disclaimer: Verify this information before applying it to your situation.>> Kelly -- I am responding to your request for advice regarding your non-diagnosis. I was finally diagnosed as having celiac disease by a doctor (gastroenterologist) who trained in Grenada and has a subspecialty in tropical medicine. My diagnosis was based on blood testing which indicated a high level of antibodies and dramatic success on the GF diet. I did not have a biopsy due to my own dread of further testing at that point in time. That was in the spring of 1989. I am posting this to the list at large because I had recieved many helpful suggestions and opinions when I recently questioned the wisdom of my never having been biopsied. I have spoken with my doctor about this list (he was REALLY interested!!!) and the further information I have since gleaned about CD. His opinion is that the blood testing and success on the diet are enough of a confirmed diagnosis for him and that a biopsy (which he feels would really be more like 3 biopsies at this point -- 1 now, 1 after a gluten challenge and another after returning to a GF diet) may or may not result in a definite diagnosis. Apparently, you can have CD without definitive biopsy results. Anyway, we discussed my situation and I am satisfied with my diagnosis without any further testing. The point is that I am able to lead a healthy life on the GF diet and I wasn't on a regular one. I had enough tests done prior to that point to rule out various other GI problems so I am not concerned about any other conditions that could become serious health hazards if not treated, therefore, if the GF diet works for me (and it does) why on earth should I go off of it? I think that you need to satisfy yourself regarding the status of your own health and keep looking for a doctor who is knowledgeable about CD, wheat allergies, etc. By the way, if you are allergic to wheat, a GF diet will work but it is much more restrictive than just avoiding wheat and its by-products. I think you ought to satisfy yourself on whether or not you have a wheat and/or other food allergies before committing to a GF diet -- ditto for your son. You realize, of course, that this is just a layperson's personal opinion and not medical advice. Good luck and happy holidays! Jane (in VA) [log in to unmask]