<<Disclaimer: Verify this information before applying it to your situation.>> I think Kemp and Rosalie are right. Besides the political, another area to cover is to establish a co-operative relationship with support groups of other auto-immunities so that if a person has gluten intolerance & another auto-immune condition, he/she has support from both groups. For example, I took information from this list to a local diabetes support office. The woman had never heard of celiac disease. But a significant percentage of diabetics have CD, and vice versa. We need to educate, dialogue and serve the needs of these people. (If I am wrong, and there are people on this list with two auto-immunities, and you feel you are getting adequate support from both sides, please let me know.) Becky Markle Erie, PA P. S. Another experience. I have a friend who is a sysop in the Compuserve autism/Add/Pdd forum. Now, one of their FAQs states that gluten sensitivity is an unproven treatment for autism. I forwarded postings from the "I've been flamed" sequence of a couple weeks ago. It showed our side of the issue...it's not a cure, it's a management strategy, may not work all the time, but when appropriate, it's golden. She was very happen to get this info & hear our side. I think we need to do more of this friendly information sharing. On Thu, 13 Apr 1995, J. Kemp Randolph wrote: > On April 8, Rosalie Jalbert said, > > >>Since the new FDA ruling, we have noticed difficulty in getting > information from manufacturers..... serves to prove that we need one large > CELIAC GROUP.<< > > There's clearly a need for such a group, but now we have several > complementary groups, each with distinctive strengths. How do we get there? > > Perhaps an umbrella organization specifically dedicated to political > matters, such as Rosilie mentions, would be a way to go. Hopefully there'd > be more grounds for agreement in this way?