yes, i had the same thoughts kat! maybe she slept in a separate bed in his room? but, golly! Tamar Raine [log in to unmask] Now serving tee shirts! and soon to come, Maui posters and other items; www.cafepress.com/tamarmag > [Original Message] > From: Kathleen Salkin <[log in to unmask]> > To: <[log in to unmask]> > Date: 10/17/2006 3:24:07 PM > Subject: Re: Extreme Home Makeover > > But that's the point - it would have been great if the viewing public > had been allowed to see Aaron with his communication device to see > that he can communicate effectively with others. If I hadn't known > any better, I would have said he would have never been able to > communicate his needs to anyone else other than his family. > > And on a related topic, did anyone see an "uh oh" Freudian moment > when his mother said she'd spent every night with him for 15 years? > I remember thinking it's a miracle that boy won't need counselling > and David said as much to me after we quit watching the show. > > > Kat > > On 17 Oct 2006, at 17:45, Anthony Arnold wrote: > > Sure I'm involved at both the Prentke Romich Company and the AAC > Institute, > and I like seeing my work out in public and on tv, not for my personal > satisfaction, but we develop and support these devices to help > individuals > contain a better life than what they would otherwise have. I know that > Aaron is more involved than I am, but he still had his wheelchair, > and my > communication device is equally as important as my communication device. > > Nobody really forced me to work at the Prentke Romich Company, I > chose this > profession after of witnessing how AAC technology has benefited me > throughout the years. I have always carried my communication device > around > like nothing to it. It even went on a cruise with me in February. It's > going to go to Closing The Gap tomorrow, sure I am going to see Barry > Romich, but even if I wasn't, my Pathfinder would still be going with. > > Thanks, > Anthony > www.anthonyarnold.net > (I blog) > -----Original Message----- > From: Cerebral Palsy List [mailto:[log in to unmask]] On > Behalf Of > Kendall David Corbett > Sent: Tuesday, October 17, 2006 3:21 PM > To: [log in to unmask] > Subject: Re: Extreme Home Makeover > > There has been a lively discussion of this episode on the ACOLUG > listserv as well. Apparently Aaron (the teenager on the show with CP) > already has an AAC device, but chose not to use it during the taping of > the episode. That's his choice, but I would have liked to see him use > it to say "Hi, Ty" or something similar early in the episode to show at > least a little of an AAC device's capabilities. > > Kendall=20 > > An unreasonable man (but my wife says that's redundant!) > > The reasonable man adapts himself to the world; the unreasonable one > persists in trying to adapt the world to himself. Therefore, all > progress depends on the unreasonable man. > > -George Bernard Shaw 1856-1950 > > -----Original Message----- > From: Tamar Raine [mailto:[log in to unmask]]=20 > Sent: Monday, October 16, 2006 6:06 PM > To: [log in to unmask] > Subject: Re: [C-PALSY] Extreme Home Makeover > > You can't just hand a device to somebody. they have to test a variety to > see which one will work best for the person. by the way, there are a > group > of folks all with speech impairments, that have formed a business called > communication at ease, they design communication booklets, overlays, > etc, > for pwd. this group is part of the micro-enterprise group at the cp > center > that I'm involved in.=20 > > they were at supported life last month, and got a number of requests > from > calif state dept of develp. dis. they are also going to hospitals and > nursing homes........ There was even a lot of interest from an aug. > device > maker who said he'd love to give his customers something they can use > for > the 4 months it takes to get a device into their hands. and while they > are > using the booklet they can be familarizing themselves woith the symbols. > great idea!=20 > > Tamar Raine > [log in to unmask] > Now serving tee shirts! and soon to come, Maui posters and other items; > www.cafepress.com/tamarmag > > > > [Original Message] > > From: Kathleen Salkin <[log in to unmask]> > > To: <[log in to unmask]> > > Date: 10/16/2006 4:25:44 AM > > Subject: Re: Extreme Home Makeover > > > > I watched part of this - but didn't see that he got an augmentive =20 > > communications device - did ABC give him one? I know the main > > focus =20 > > was on his mother and the Little League baseball team, but I did =20 > > think they should have thought of enabling him to communicate his =20 > > needs - after all, his mother isn't going to be around forever, as =20 > > cruel as that sounds. > > > > Kat > > > > On 15 Oct 2006, at 10:49, Anthony Arnold wrote: > > > > Friends, > > > > > > > > If you're anything like me, you're a fan of ABC's Extreme Makeover, > > =20 > > even if > > you're teary when the show is done. I want to point out in August =20 > > the show > > was in Minot North Dakota (about 4 hours from me) building a house for > a > > family who has a son with Cerebral Palsy, and the parents are =20 > > outstanding > > people, the mother has even taken the time to organize a baseball =20 > > team for > > kids with special needs. The episode will air tonight at 8est, I =20 > > don't know > > about the west coast, you might check your listings. > > > > > > > > Thanks, > > > > Anthony > > > > <http://www.anthonyarnold.net> www.anthonyarnold.net > > > > (I blog) > > > > > > > > > > ----------------------- > > > > To change your mail settings or leave the C-PALSY list, go here: > > > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy > > > > ----------------------- > > > > To change your mail settings or leave the C-PALSY list, go here: > > > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy > > ----------------------- > > To change your mail settings or leave the C-PALSY list, go here: > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy > > ----------------------- > > To change your mail settings or leave the C-PALSY list, go here: > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy > > ----------------------- > > To change your mail settings or leave the C-PALSY list, go here: > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy > > ----------------------- > > To change your mail settings or leave the C-PALSY list, go here: > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy ----------------------- To change your mail settings or leave the C-PALSY list, go here: http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy