Anthony, Do you mean I should do as much of my cares myself (even though, they are assignments by my state and county by a RN)? Kathy >From: Anthony Arnold <[log in to unmask]> >Reply-To: Cerebral Palsy List <[log in to unmask]> >To: [log in to unmask] >Subject: Re: Babysitter Issue >Date: Sun, 2 Apr 2006 18:19:28 -0500 > >Seeing this discussion come up reminds me of my first personal care >attendant I had right after I decided to move out of my parent's house. At >that time we didn't really know how much assistance I would need, so we >decided to hire a live-in attendant, and the guy we hired worked >wonderfully >to the most part. Before we hired him, he spent several years working for >nursing homes where everything is structured, and when he came to live with >me, I had a structured schedule to follow, and whenever we decided to go >outside to sit he would call my parents to tell them until my parents >finally told him they appreciate it but they don't need or want to know >everything and that I could basically do anything. And now 8 years later, >I'm basically independent with a attendant coming in a few hours a day. I >can come and go any time I please besides the hours I work which is >understandable. > >Kathy, I know this is something you don't want to hear, but I think you >have >to prove yourself before they grant you the level of independence you want. >It's a lot like if I had a 16yr old daughter, she would need to prove >herself before I would give her the car keys. I think it's this common >principal we have to follow in independent living too. I have even had to >prove myself at work, and recently I got my 4th raise in 5 years. Sure >everybody likes chocolate cake but it doesn't come without paying a price. > >Thanks, >Anthony >Visit my website at www.anthonyarnold.net >-----Original Message----- >From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of >[log in to unmask] >Sent: Sunday, April 02, 2006 5:31 PM >To: [log in to unmask] >Subject: Re: Babysitter Issue > >I know of one woman her parents are partly paying for her care. Her >attendants won't let her have any true freedom. Some care providers have >it in >their procedures to be so by the book it's like you're a child under their >care >instead of being a disabled adult needing basic care. > >Walk away before I finish what you started. Face to face I will put you in >your place. End this game before I finish what you started. Face to face >everything will change. > >"Stand Up" by Trapt > >----------------------- > >To change your mail settings or leave the C-PALSY list, go here: > >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy > >----------------------- > >To change your mail settings or leave the C-PALSY list, go here: > >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ ----------------------- To change your mail settings or leave the C-PALSY list, go here: http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy