Mag, yes. >From: Magenta Raine <[log in to unmask]> >Reply-To: [log in to unmask] >To: [log in to unmask] >Subject: Re: FW: [Fwd: Re: I'm Back] >Date: Wed, 3 Aug 2005 16:24:49 -0700 > >kj, is there any reason you need somebody there at night? > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >[log in to unmask] >How can we expect new results if we do what we've always done? >War is outdated for the 21st century! > > > > [Original Message] > > From: Kathy Jo Pink <[log in to unmask]> > > To: <[log in to unmask]> > > Date: 8/3/2005 3:24:48 PM > > Subject: Re: FW: [Fwd: Re: I'm Back] > > > > Kendall, > > > > > > > > Under Community Based Programs, (MAPC & CIP) I can only get coverage > > from 7AM-10PM. > > > > > > > > Kathy Jo > > > > > > > > > > > > > > > > > > > > Kendall David Corbett wrote: > > > > >Kathy Jo, > > > > > >Mag's right. Back when I was working 1:1 with folks with disabilities > > >was shortly after the de-institutionalization movement got a good head > > >of steam, and Colorado was working on moving people into community > > >programs. After 1999, and the Olmstead Supreme Court decision, it has > > >been easier to get people into least restrictive environments. > > > > > >It is expensive, but in most cases, it's less expensive than 24/7 care > > >in a nursing home or similar setting. This is possible because the > > >staff in nursing home4s get paid more than the staff for most > > >disability providers. In '88 and '89, when I was doing direct staffing > > >for folks with disabilities, the minimum wage was increased from $3.85 > > >an hour to $4.25 an hour, so everybody that started when I did got a > > >raise. A lot of states are now working to bring up the wages of their > > >direct support staff to a livable wage. > > > > > >A lot of the people receiving community based services are covered >under > > >Medicaid Home and Community Based Waiver Services, because in addition > > >to being a better way for people to live (healthier, more independent), > > >it's less expensive. In Wyoming, the cost to house people in our one > > >remaining institution for people with disabilities is about 3X as much > > >as serving people in the community. > > > > > >My grandmother's health in the last two years of her life was so bad > > >that we had to put her in a nursing home, and it cost $4500.00 per > > >month. The average cost to serve someone in community programs in > > >Wyoming is around $2100.00 per month > > > > > >Kendall=20 > > > > > >An unreasonable man (but my wife says that's redundant!) > > > > > >The reasonable man adapts himself to the world; the unreasonable one > > >persists in trying to adapt the world to himself. Therefore, all > > >progress depends on the unreasonable man. > > > > > >-George Bernard Shaw 1856-1950 > > > > > >-----Original Message----- > > >From: Magenta Raine [mailto:[log in to unmask]]=20 > > >Sent: Tuesday, August 02, 2005 12:24 PM > > >To: [log in to unmask] > > >Subject: Re: FW: [Fwd: Re: I'm Back] > > > > > >It is in their plans. It is their right and everybody's rights to live > > >in > > >the least restrictive environment. > > > > > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > >[log in to unmask] > > >How can we expect new results if we do what we've always done? > > >War is outdated for the 21st century! > > > > > > > > > > > > > > >>[Original Message] > > >>From: Kathy Jo Pink <[log in to unmask]> > > >>To: <[log in to unmask]> > > >>Date: 8/2/2005 6:47:36 AM > > >>Subject: Re: FW: [Fwd: Re: I'm Back] > > >> > > >>Kendall Corbet, > > >> > > >> > > >> > > >>How could these people afford 24/7 Care? Kathy Jo Pink > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >>Kendall David Corbett wrote: > > >> > > >> > > >> > > >>>Kathy Jo,=3D20 > > >>> > > >>>Depending on the person you're working with to draw up a plan, they > > >>> > > >>> > > >may > > > > > > > > >>>use either term. In my work environment, a PCP deals more with how > > >>>things are now, and a PFP deals with how you'd like them to be. > > >>> > > >>>In the agency I worked for when I first got out of college, there > > >>> > > >>> > > >were a > > > > > > > > >>>couple of people who had 24/7 care. In general they were the people > > >>>with the most severe physical and/or cognitive disabilities; usually > > >>>they had a lot of seizures and so needed someone there in case they > > >>> > > >>> > > >had > > > > > > > > >>>a seizure. > > >>> > > >>>Kendall Corbett > > >>> > > >>>An unreasonable man (but my wife says that's redundant!) > > >>> > > >>>The reasonable man adapts himself to the world; the unreasonable one > > >>>persists in trying to adapt the world to himself. Therefore, all > > >>>progress depends on the unreasonable man. > > >>> > > >>>-George Bernard Shaw 1856-1950 > > >>> > > >>> > > >>>-----Original Message----- > > >>>From: Kathy Pink [mailto:[log in to unmask]]=3D20 > > >>>Sent: Monday, August 01, 2005 5:02 AM > > >>>To: [log in to unmask] > > >>>Subject: FW: [Fwd: Re: I'm Back] > > >>> > > >>>Is a PFP the same as Person-Centered Planning?Is there such a thing > > >>> > > >>> > > >as > > > > > > > > >>>one > > >>>to one twenty-four hour round-the-clock care? I know it would be > > >>>expensive > > >>>. > > >>> > > >>> > > >>> > > >>>Kathy Pink > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>>>From: Kathy Jo Pink <[log in to unmask]> > > >>>>To: [log in to unmask] > > >>>>Subject: [Fwd: Re: I'm Back] > > >>>>Date: Sun, 31 Jul 2005 08:15:16 -0500 > > >>>> > > >>>> > > >>>> > > >>>>-------- Original Message -------- > > >>>>Subject: Re: I'm Back > > >>>>Date: Tue, 19 Jul 2005 14:30:33 -0600 > > >>>>From: Kendall David Corbett <[log in to unmask]> > > >>>>Reply-To: St. John's University Cerebral Palsy List > > >>>><[log in to unmask]> > > >>>>To: [log in to unmask] > > >>>> > > >>>> > > >>>> > > >>>>Kathy Jo said: > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>>>I don't have a plan to make it happen? Any ideas, anyone? > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>Get in touch with Linda Rowley at the Waisman Center, and ask her > > >>>> > > >>>> > > >for > > > > > > > > >>>>info on personal futures planning, and someone close to Lancaster > > >>>> > > >>>> > > >that > > > > > > > > >>>>can help you put a PFP (personal future plan) together. I could > > >>>> > > >>>> > > >refer > > > > > > > > >>>>you to several people in Wyoming, but since you're in Wisconsin, > > >>>> > > >>>> > > >that > > > > > > > > >>>>won't work. Also, ask Linda about a program called "Partners in > > >>>>Policymaking." I think something like that would be immensely > > >>>> > > >>>> > > >helpful > > > > > > > > >>>>to you! > > >>>> > > >>>>Here are links to: > > >>>> > > >>>>1. The Waisman Center, and to Linda Rowley > > >>>> > > >>>>Waisman Center on Human Development=3D3D20 > > >>>>University of Wisconsin-Madison=3D3D20 > > >>>>1500 Highland Ave=3D3D20 > > >>>>Madison, WI 53705-2280=3D3D20 > > >>>>Main Phone: 608-263-1656=3D3D20 > > >>>>Main Fax: 608-263-0529=3D3D20 > > >>>>Website: http://www.waisman.wisc.edu/ > > >>>> > > >>>> > > >>>>Family Village Internet Project > > >>>>Linda Rowley, LPN, BS > > >>>>608-263-5973 > > >>>>[log in to unmask] > > >>>>http://www.familyvillage.wisc.edu/index.htmlx > > >>>> > > >>>> > > >>>>Jean Boehnen probably would have answers to your general questions > > >>>> > > >>>> > > >on > > > > > > > > >>>>CP: > > >>>> > > >>>>Cerebral Palsy Clinic > > >>>>Jean Boehnen, RN=3D3D09 > > >>>>608-263-7335=3D3D09 > > >>>>[log in to unmask] > > >>>> > > >>>> > > >>>>2. Personal Futures Planning,=3D3D20 > > >>>> > > >>>>http://www.iidc.indiana.edu/cedir/pfplanbib.html > > >>>> > > >>>>The above link is a bibliography on person centered planning, which > > >>>> > > >>>> > > >is > > > > > > > > >>>>another name for personal futures planning.=3D3D20 > > >>>> > > >>>>3. Partners in Policymaking, which got started in Minnesota. > > >>>> > > >>>>http://www.partnersinpolicymaking.com/ > > >>>> > > >>>>Kendall Corbett > > >>>> > > >>>>An unreasonable man (but my wife says that's redundant!) > > >>>> > > >>>>The reasonable man adapts himself to the world; the unreasonable one > > >>>>persists in trying to adapt the world to himself. Therefore, all > > >>>>progress depends on the unreasonable man. > > >>>> > > >>>>-George Bernard Shaw 1856-1950 > > >>>> > > >>>> > > >>>>-----Original Message----- > > >>>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D3D20 > > >>>>Sent: Tuesday, July 19, 2005 11:20 AM > > >>>>To: [log in to unmask] > > >>>>Subject: Re: I'm Back > > >>>> > > >>>> > > >>>>I like living with my parents. I don't know what I want. I guess > > >>>>ideally , I want to live in my own place (apartment?). If that does > > >>>> > > >>>> > > >>>> > > >>>> > > >>>not > > >>> > > >>> > > >>> > > >>> > > >>>>work I will go to an adult family home, a group home, or a nuring > > >>>> > > >>>> > > >home > > > > > > > > >>>>(a nursing home would probably be my last choice.) I don't have a > > >>>> > > >>>> > > >plan > > > > > > > > >>>>to make it happen? 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