Hello, I too look forward to the day that I can post the results here for 3 very important reasons: 1) Perhaps we will serve children with cerebral palsy better. 2) Hopefully we will know more about children with cerebral palsy and and how they feel about themselves. 3) I will have received my PhD. Thus, one journey is complete and the next will soon start. So I can serve children with disabilities even better as a clinician, professor, and advocate. Thank you again, Greta >From: Susan Moskowitz <[log in to unmask]> >Reply-To: "St. John's University Cerebral Palsy List" ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: dissertation research >Date: Mon, 31 Jan 2005 08:49:53 -0500 > >Greta, > You're welcome. As an adult with CP who is also an MSW and who worked >with both able bodied and disabled children in the past, I am intrigued by >your research and look forward to the day when you can summarize and post >your results. >Susan >----- Original Message ----- >From: "greta von der luft" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Sunday, January 30, 2005 9:10 PM >Subject: Re: dissertation research > > > > Hello, > > Thank you very much for your suggestion. I have contacted the moderator >of > > the listserv asking for his permission to post a message there as well. >If > > you have any other ideas, please let me know. > > Thank you again, > > Greta > > > > >From: Susan Moskowitz <[log in to unmask]> > > >Reply-To: "St. John's University Cerebral Palsy List" > > ><[log in to unmask]> > > >To: [log in to unmask] > > >Subject: Re: dissertation research > > >Date: Sat, 29 Jan 2005 12:19:24 -0500 > > > > > >Greta, > > > Although the C-Palsy list does have some subscribers who are >parents > > >of > > >children with cerebral palsy, most of the subscribers are adults who >have > > >CP. There is another list called CP Parent which is focused on giving > > >parents of children with CP a forum to support each other in their >efforts > > >to raise their children. Since you are seeking child subjects, with >very > > >specific characteristics, I think you might have more success >recruiting > > >from the CP Parent list. That list can be found at www.cpparrent.org . > > >Good luck with your research! > > >Susan > > >----- Original Message ----- > > >From: "greta von der luft" <[log in to unmask]> > > >To: <[log in to unmask]> > > >Sent: Friday, January 28, 2005 3:03 PM > > >Subject: dissertation research > > > > > > > > > > Hello, > > > > My name is Greta von der Luft. I hold master's degrees in physical >= > > > > therapy and special education. I have practiced ten years as a >pediatric > > >= > > > > physical therapist. I am now a PhD Candidate at Temple University, = > > > > Philadelphia, Pennsylvania. I am studying self concept in children >with > > >= > > > > cerebral palsy for my dissertation research to partially fulfill the >= > > > > requirements for a PhD. Temple University's Institutional Review >Board >= > > > > (IRB) has approved of my dissertation research. I would like to use >this > > >= > > > > listserv to introduce my research. Additionally, I would like to = > > > > encourage parents of fifth and sixth grade children with spastic = > > > > diplegic cerebral palsy and average intelligence who reside in the >mid >= > > > > Atlantic region to contact me to help me with this important >research >= > > > > endeavor. But first, please let me briefly introduce the topic, its >= > > > > significance, my research, what I would like parents to do, and how >I >= > > > > will share the results.=20 > > > > > > > > Introduction: As you know, self concept is how a child views himself >and > > >= > > > > herself and how s/he evaluates his/her capabilities academically = > > > > (reading, math, general school) and non academically (physical = > > > > appearance, physical capabilities, social relations with >parents/peers). > > >= > > > > There is much inconclusive research involving children with >disabilities > > >= > > > > due to poor methodology. > > > > > > > > Significance: A positive self concept is needed to succeed and have >= > > > > positive relationships in the education, health, business, and >social >= > > > > arenas. We do not know if children with cerebral palsy have positive >or > > >= > > > > negative self concepts. Additionally, we do not know if we (health, >= > > > > educational, and vocational areas) are serving children with >cerebral >= > > > > palsy in the best method possible which would promote their self = > > > > concepts or not. > > > > > > > > My research: I am trying to fill this need by conducting my >dissertation > > >= > > > > research under the supervision of Temple University's IRB. This will >be > > >= > > > > done by first cross validating the Self Description Questionnaire-I >= > > > > (SDQ-I) which is the most valid and reliable tool for use with = > > > > preadolescent children without disabilities. The cross validation >will >= > > > > involve performing data analysis to find the reliability and >validity >of > > >= > > > > the tool when it is used with children with CP. If the tool is found >= > > > > valid and reliable for use with children with CP, then I will look >for >= > > > > associations between self concept, gender, physical impairment, and >= > > > > educational placement. > > > > > > > > Parents: I would like parents of fifth and sixth grade children with >= > > > > spastic diplegic cerebral palsy and average intelligence to contact >me >= > > > > for more information on the research and to schedule a research >session > > >= > > > > if they are interested. Because of geographic limitations, the >parents >= > > > > need to reside in the Mid Atlantic region as I will need to meet >with >= > > > > them and their child at a place that is convenient for all. The >research > > >= > > > > session would take 30-60 minutes to complete and would involve: > > > > 1.. introducing the research topic in greater detail=20 > > > > 2.. signing informed consent and informed assent forms=20 > > > > 3.. completing a demographic form that has no identifying >information > > >= > > > > (e.g. gender, race, educational placement)=20 > > > > 4.. interviewing the child using the SDQ-I asking him/her how s/he >= > > > > feels about himself/herself academically and nonacademically.=20 > > > > 5.. observing the child move for five minutes to complete a = > > > > standardized functional assessment tool=20 > > > > 6.. giving the child a nominal gift thanking him/her for his/her = > > > > participation > > > > Results: When the study is complete, I will share a group summary of >the > > >= > > > > results > > > > 1.. With the listserv=20 > > > > 2.. With the parents and children who participated. > > > > If you would like more information or are interested in this study, >= > > > > please contact me. > > > > > > > > Contact Information: > > > > Greta von der Luft > > > > email [log in to unmask]<mailto:[log in to unmask]> or = > > > > [log in to unmask]<mailto:[log in to unmask]>. > > > > phone 610 240 9520=20 > > > > > > > > > > > > Thank you so very much for your time and consideration, > > > > > > > > Greta von der Luft BS, MSPT, MEd, PhD Candidate > > > >