<<Disclaimer: Verify this information before applying it to your situation.>> Hi everyone, A while back I wrote a post asking if anyone had experience with refractory sprue. At the time it was just a slight possibility. It has unfortunately become an disheartening and very frightening reality. At the time, someone wrote me an e-mail and said that she might be able to help me. If you are reading this, could you please write to me? I'd really like some input. I am having one more biopsy on the 3rd before any treatments are started. I haven't discussed it with my doctor, but do you think that it would be worthwhile or feasible to try a feeding tube or something of that nature? The thought of steroids and immune suppresants is not very appealing to me and I worry about the long term affects of these drugs. I welcome input. (It is usually all positive, but sometimes it's not, so please.... I can't handle anymore negativity) Thanks Jill *Support summarization of posts, reply to the SENDER not the Celiac List*