try contacting TASH http://www.tash.org/  they do alot to keep people out of
insatutions.

dan


on 1/24/03 6:42 PM, Elizabeth H. Thiers at [log in to unmask] wrote:

> David,
> Could you let this person know that there are many types of Medwaiver
> programs out there that vary from state to state.  There is often a
> community waiver for medical issues and another program that helps keep
> people with disabilities out of long term care instituions.  It may take
> several calls to find out who to talk to for either program.  Here in
> Florida there are also Developmental Disabilities funding if you can get for
> people.
> Sometimes the problem is that the Medwaiver program is only set up for
> people with specific diagnosis such as Mental retardation, cerebral palsy,
> Spina Bifida, Prader-Willi, and Autism here in Florida.
>
>
> Beth T. the OT
> Subject: Re: Automatic Medicaid for EVERY disabled person?
>
>
>> David,
>> Does this mean that once the child turns 18 or 21 that we are back to
>> square one?
>> Or is the waiver system still illegal? My son was injured at 17 years
>> old but is now 22. He is being rejected for community services because the
>> waiver program doesn't work with his managed care Medicaid program. (in
>> our county SSI Medicaid recipients are required to participate in a trial
>> program that breaks them into 3 groups, 2 HMO or 1 managed care plan). The
>> managed care plan best meets his medical needs but offers no community
>> services. I am being forced into choosing between his medical needs and
>> the community supports that could offer him so much.