I am not really sure of the differences. I know I have a diagnosis of cp with associated dystonia. -----Original Message----- From: J. McCarthy [mailto:[log in to unmask]] Sent: Friday, September 27, 2002 11:39 AM To: [log in to unmask] Subject: Re: Fibromyalgia How is dystonia different from spasms of spastic CP? Jen --- "Barber, Kenneth L." <[log in to unmask]> wrote: > Dystonia is the uncontrollable movements in certain > parts of the body. Ie: > muscles in say your arm contract and jerk pretty > much on their own. > > Guys am I explaining this right? > > I have it in the cervical part of my spine (as well > as limbs) and have > herniated disk at c3 and c7 with bone spurs. In > those vertabre associated > with those disk. > > -----Original Message----- > From: J. McCarthy [mailto:[log in to unmask]] > Sent: Friday, September 27, 2002 11:09 AM > To: [log in to unmask] > Subject: Re: Fibromyalgia > > What is dystonia? > > I don't know if it's aging with CP or what...I just > know that there are mornings where I too feel like a > truck hit me. And with my left knee, there are > times > where it is so stiff and stuck in its current > position > that my husband has to bend (or straighten) it for > me. > If I have been sitting for awhile, it's very hard > to > get up because my knees are so stiff. Everything > just > seem to worsen within the last 6 months. > > Last week, I had a panic attack / depression down > swing because I was sure that my good left side > wasn't > going to support me any more and that I may have > something more debilitating than my CP. In that > frame > of mind, I was imagining all kinds of losses of > independance and stuff. > > BTW, I do office work at a large University. > > Jen > > > --- "Barber, Kenneth L." <[log in to unmask]> wrote: > > SOUND LIKE AGING WITH CP TO ME. I'd bet they will > > not find any of what they > > are looking for. > > > > > > What kind of work do you do? Do you have dystonia > > with your cp? If so, > > where? > > > > -----Original Message----- > > From: J. McCarthy [mailto:[log in to unmask]] > > Sent: Friday, September 27, 2002 10:32 AM > > To: [log in to unmask] > > Subject: Fibromyalgia > > > > Sorry I've been out of touch for awhile. Been > > > > My doc and I are trying to figure out why my > joints > > ache and stuff (feel like I'm 100 years old). We > > have > > discovered two things so far: > > > > 1) I have 2 herniated discs in my neck which is > > causing my left arm and hand (the good side!) to > be > > in > > pain and/or numb at times. > > > > 2) My left knee (good side) which has been > > increasing > > hurting me and is stiff and weak, came up negative > > on > > the MRI. I thought that they would see lots of > > arthritis...which could then explain the achyness > > that > > I have in other major joints. > > > > So, we now are going to look at lupus, MS and > > FMS.... > > > > TTYL, > > Jen > > > > --- Magenta Raine <[log in to unmask]> wrote: > > > Ken, was it you or Kyle who thought he might > have > > > fibromyalgia, I forget. Any > > > way, feeling like you got mugged or ran over by > a > > > truck is what fibromyalgia > > > (FMS) feels like. > > > > > > mag > > > > > > www.itilink.com/traine.iti > > > > > > ===== > > TTYL, > > Jennifer > > > > __________________________________________________ > > Do you Yahoo!? > > New DSL Internet Access from SBC & Yahoo! > > http://sbc.yahoo.com > > > ===== > TTYL, > Jennifer > > __________________________________________________ > Do you Yahoo!? > New DSL Internet Access from SBC & Yahoo! > http://sbc.yahoo.com ===== TTYL, Jennifer __________________________________________________ Do you Yahoo!? New DSL Internet Access from SBC & Yahoo! http://sbc.yahoo.com