Kyle, I think your website is a great idea. Don't let the "little" folks get you down. One thing to think about is not everyone with CP knows they have CP - I ran into a man in the McDonalds by my house - he was standing just like Amber and stubled and I grabbed him before he hit the floor - and he said I am disabled - and I said yes I know - you have CP - he said no I have brain damage since I was a baby. and so on ( he is Hemi- like Amber). And Jonathan who goes to school with Amber (also a Hemi like Amber) - and he has a bad knee - But Amber, and I and her special ed teacher know its CP. It think denial and perhaps like with Amber - rthey never said the word - I read it in a book - leads people to not know they have CP - just that they are disabled. I was a premie, had braces and special shoes when I was little - and to date still have this walk funny - right foot points out to the right at 45 degree angle, the attached knee angles off to the left, and the hip joint pops so bad sometimes - it hurts and feels like its coming apart. Who knows what you call that - I call it darned awkward. Go for your website - when you change your name from Kyle Cleveland to Cerebral Palsy Man - then maybe your are taking things to seriously - in the mean time you are doing a great thing to help others. Brightest Blessings - Trisha > Sign me up for the survey, Bobby. > > I met with an old friend for breakfast yesterday (old in the sense that > we've known each other for a long time, but we still talk at least a > couple > times a week). I was telling him about the web page idea. Could not > believe his response. Something along the lines of, "Well, you know, you > have to be careful not to invest too much time into something like this. > It > could take away from your family time. Also, I would hate to see you > start > taking your 'identity' from your disability." > > It's amazing how people are so quick to pour cold water on other's > excitement and so slow to encourage. > > -Kyle > > -----Original Message----- > From: BG Greer, PhD > To: [log in to unmask] > Sent: 7/5/02 12:20 AM > Subject: Re: A new aging survey for the list > > In a message dated 7/4/02 7:20:44 PM, [log in to unmask] writes: > > >I would, of course. And you might add "paraplegia" to the location > list. > > > >Kat > > I will be cantankerous and stick with diplegia. LOL Actually, I plan to > reformat Carla's original 10 questions. I hope we get a better response. > How > far along are you on the new web page? > > Bobby