That's right, Kat! Forgot about the yahoo/cpadults. Wouldn't folks need a Yahoo logon to browse? My ISP (through Time/Warner) will give me 15 Mb. I'm thinking, though, maybe we could get a .org or .net URL and get someone to put it on their server gratis. Laura suggested UCP---blew coffee out my nose! Strictly personal opine here, but I've never had one good experience with UCP: either as a kid or adult. I may be wrong, but I think most adult CPers have the same view of UCP as many MD folks have of Jerry Lewis: The French can have them both. The doctor finally called at 7:30 PM and pre-released a standing script I have for breakthru pain meds on the 1st of each month. Why couldn't he have done that at 9:00 this morning? Anyway, I was envisioning something along the lines of this:http://walden.mvp.net/~lackritz/ "Granny Barb" Lackritz is a Chronic Lymphocytic Leukemia patient (like Laura) who started her webpage because when she was dx'ed with CLL there was precious little web info related to this fairly rare leukemia. I certainly would not want it to be "Kyle's page", but she has a boatload of links, stories, etc. There's lots of stuff already on CP, especially for kids, but no relevant resources specific to aging and CP. Anecdotal evidence that I've garnered pretty much says that the "system" (research, associations, physicians, medical societies, etc.) loses interest in helping adults. I don't mean to slight anyone here, but if you are among the "walking wounded", you're pretty much left to your own devices. By "walking wounded" (phrase is growing on me) I mean those of us who were ambulatory and independent during our youth and early adulthood. You all know my story: fit and athletic through my mid-thirties and then Bang! Ten years later I can barely get from point A to point B. Lots of folks come to mind offhand: Bobby, Kat, Ken, me, Rayna, the Jennifers, etc. That's just from "our" little village. There are a lot more besides us. Sound like an idea? Kat, could you get back to me on the Yahoo site? I would like to make sure its easily accessible. Thanks! -Kyle -----Original Message----- From: Salkin Kathleen To: [log in to unmask] Sent: 6/28/02 5:41 PM Subject: Re: Rough go right now... Kyle, we could always use my Yahoo site, cpadults. And I've got website space via my ISP I can use. Kat