welcome to the list tombo. maybe you'll pick up some information to help. you will definately get friendship and support. -----Original Message----- From: tombo [mailto:[log in to unmask]] Sent: Friday, February 01, 2002 9:39 AM To: [log in to unmask] Subject: up around the bend------- aloha guys! my son shane (12 yrs.) has been diagnosed with CP (ataxic). unfortunately we came to this news late in the game & beyond being told "he needs more PT/OT" - i've been left to wonder 'what's next?' i'm doing the pediatric neurologist search & coming up short - few & far it seems. a year ago he had orthopedic surgery on both feet to help correct his gait - his walking is now worse. i hope this doesn't indicate a possible deterioration in ambulation. behavorial issues - quite bizarre - have been addressed, taking the focus away from his CP. the horizon has that gloomy glow & perhaps dad (moi) should be checking into a monastery in tibet. keeks! until that time i was hoping you guys who have been "down the pike" a bit might shed some light on what i may expect "up around the bend!" peace & all good! tombo