<<Disclaimer: Verify this information before applying it to your situation.>> HELLO EVERYONE, Thank you so much for all the responses, there are so many out there who Have the same symptoms and do not know what to do, I hope this summay helps you all. I have learnt a lot from it and also put into use some of the suggestions, With gods grace and some good luck i am sure i can find a solution to my problem. The summary is a bit long as i have quoted each and every letter that i have received, Good luck to you all. (I wake up that way a lot. I always thought it was the way I slept. Do you notice in what position that your hands are in when you wake up? Also if I recall, I only remember waking up to this fact since I went on gluten free diet. ) (I have the problem at night. With me it is like I have been sleeping on my arms, but I haven't. They should be getting enough circulation. Don't know the reason. Sometimes there are spells where it is more often than others. It doesn't happen to me in the day. Carol ) (it might be your bed and pillow, causing muscles and nerve problems. Try going to a relax the back store and get a better pillow that will support your neck when you sleep. ) (Have you tried some high quality (expensive) vitamins to go along with the B12? I get B12 shots myself to control numbness, parathesias, neuralgias, etc. I had a great osteopath a few years ago who recommended taking SourceNatural (USA - they have a website) sublingual B complex. I also use a B6 and a B2 in combination when I'm having carpal tunnel like problems - it really works for me. Have to be careful about over loading on a single B vitamin so as not to throw the others out of wack. SourceNatural also has a sublingual B12 - but it is really too expensive for me to use all of the time. Also he told me to take a good Vitamin C - so I take an Ester-C (easier to absorb). A good multi-vitamin too. Etc. Etc.! One other I might recommend is Alpha Lipoic acid - you might look into that. It has been studied in Europe mainly for diabetic periphereal neuropathy problems. Don't know if this will help - but one way I've been able to control some of the neuro. type symptoms was to educate myself as much as possible about nutrition since this is a digestion malabsorption disease and supplement with vitamins and minerals - even though most physicians seem to think that it isn't necessary. There are a few good nutrition manuals out there - but unfortunately I have found that there isn't that much in general about nutritional science. ) (Hi there. I used to get numbness in my hands and arms a lot. I had a book recommended to me called "The Yeast Connection", which I highly recommend. Through it, I learned that I had a problem with Candida - not just a gynecological Candida problem, but an intestinal yeast problem. I followed a treatment plan to rid myself of the Candida and I changed my diet. I also had my mercury fillings redone with another material. Candida feeds off of mercury (also sugar, lactose, and gluten). I also went through a mercury detoxification suggested in the same book. You can also have it done professionally. I think it's called chelation therapy. I have had only minimal problems (a couple times a year at most) with numbness since I went through that treatment plan about 8 years ago. Did you say you have lactose intolerance? That is also a sign of Candida. Do you have multiple allergies? There's another sign of it. I used to have visual problems and severe fatigue too, which are also signs of a possible Candida problem. I urge you to look into this. It did wonders for me. ) (This may seem to be a weird question, but have you looked at how you sleep, meaning in what position you are sleeping? I was having numbness at night, then realized I had been sleeping with my arms high over my head. When I stopped, the numbness went away. (I slept that way when I was younger with no problem). As I have aged, I've noticed this problem in other positions as well (arms bent tight at the elbow, wrists bent tightly, anywhere where the blood circulation may be cut off). just a thought. ) (RAMESH - I had been having some numbness in my hands when I sleep also, although it sound like you have a worse case than I do. It usually occurs when I lay on my back and lay my hands on my abdomen. My MD brushed it off by saying there was a nerve near my elbow that I was probably putting pressure on when I slept that way. I wasn't convinced of her explanation. For a while now I haven't had that problem. This could be due to the fact that I am finally getting some other food sensitivities under control which has improved my health immensely. For probably close to a year I have been slowly eliminating foods that cause GI upset(abdominal noise, nausea, constipation, heartburn, etc.), calf and foot cramps, among other things. I finally eliminated eggs from my diet and am now slowly adding some of the previously eliminated foods back into my diet. Most of health problems are now improving. I can't say that food sensitivities are your problem but you may suspect that the numbness is a symptom of other problems and not a specific vitamin deficiency. I would suggest that if you have not had relief with B12 injections you should quit them. I would be curious whether others have had this problem also. Could you summarize? Thanks Good luck on your quest for info. ) (hello, if it only happens in the middle of the night, then it is how you are sleeping. this happens to me at night and in the day though. you are pinching something in your neck or spine. does not have to be a pinched nerve, but something inflammed etc. it can be a nerve in your neck that is being pinched or just peresthesia. there can be many conditions that cause this, but most likely it is some way you are holding your body and pinching the nerve. good luck. i know what a pain this is. i have it happen to my arms/hands and my legs/feet. any combo... my left side is worse than my right always. kind of weird, but no doctor has ever given me any answers. this has only happened to me since i became a "full blown" celiac after my first pregnancy and during my 2 plus years of being gf. i keep a diary of what i eat etc every day as well as sleep times and any problems. sometimes you can find a trigger if it is a food allergy related thing, but this problem is with posture, or the nerves. sometimes my hands get hard and totally drained of blood and i have to physically move them to get them ok. this happens maybe once a month and scares the crud out of me. my dad has had nerve damage in his legs for many years and recently the arms in the past 10. he is putting off the surgery where they fuse the neck. they said it can either fix the problem or not...no guarnatees pluss you can never turn your head again after the surgery! he is in constant discomfort and that yuucky numbness burn you feel. he is very active since he works on helicopters and aircraft and does a lot of crawling around etc... he has to put this surgery off until he is older since he relies on his income....scary. so i am thinking genetics have something to do with this problem since it seems when i look back in my family there is a line of problems even with my grandfather. when i was 20 i was diagnosed with advanced arthritis of the neck. they said i had the neck of a 50 yr old woman! now i am 32. that explains my arms, but not my legs. i am thinking it could have happened after pregnancy and childbirth. i had my daughter born almost 6 weeks late (yes, no joke- my doc was on vacation and did not want to induce prior...) and my baby gave me many problems during a super long 28 hr. labor. back labor... so.... sorry i do not have any ideas. i have never been given any, nor has my dad. make sure you have a good bed and pillows. maybe try to get someone to massage you once a month to loosen up any muscles that may be too tight. drink enough fluids to keep blood volume high. have you had your arms tested for nerve damage? i would suggest this. (for my neck, i was told to not use the computer.. but i did this for my job for many years. i made sure that my monitor was just the right height and did not have to strain to look at it either up or down..) good luck,) (I have the same thing in my feet. They too are giving me B12 shots. The Doctor also has me soaking my feet in epson salts daily, then putting on a 50- 50 mix of lotrimin, and hydrocortisone cream 1%. This is all over the counter stuff. I don't know how much it helps, but it doesn't get any worse. I slacked off on using this at one time, and my feet did get worse. I went back to it and they got better, but only to a point.) (I had the same numbness. I found that I had to remove dairy from my diet too. Also if I eat meat that has been grain fed, I get a reaction. I try to buy grass fed meat. www.eatwild.com ) (You could have some other allergies like corn, potatoes, nuts. Nuts give me alot of problems too and I found out that cinnamon is another problematic food. By eliminating problematic foods, you will eventually find out which one it is that is causing problems. It took me a year to discover that nuts were a huge problem for me! ) (The doctor that I go to is a Celiac Specialist (Dr. Green out of New York Presbyterian Hospital) and he claims that Celiacs develop neurological problems because of the disease. I have been having dizziness for a few years and no doctor has been able to tell me what is wrong and how to correct it, if possible. On April 27, I am going to a neurologist that Dr. Green has recommended. He claims that she is aware of the neurological damage that Celiac can have on our systems. I am hoping that she can at least EXPLAIN what is happening and why I get these dizzy spells as well as very bad headaches. If you are interested in the results of my visit next week, e-mail and I will let you know. Good Luck - ) (I have the same thing and it's carpal tunnel syndrome. You need to see a neurologist and get nerve conduction studies done. Take care and let me know if you need any further info....) (This is just a suggestion. I have experienced the same feelings in hands and legs and had every medical test to determine the cause. Every dr. tells me there is nothing wrong with me. Then, I did some research on my own. I found out that peripheral neuropathy is one of the symptoms associated with celiac disease. I read that taking niacin supplements will help. Apparently our bodies don't absorb enough of these nutrients. After taking the supplements for a couple months, I have almost none of these symptoms any more. I was also having terrible acne breakouts since going GF. I also take B6 supplements for that. Has helped tremendously. No more breakouts. I think that most doctors do not realize that celiac can cause such a variety of symptoms. Sometimes it is up to us to inform them. Good Luck, ) (Just a suggestion but whenever I'm low on Calcium my arm and legs go numb. You might want to get a blood check on it.) (For the last 3 years I have been with gluten, casein, lecithin free diets...I do not have any digestive problems anymore but the urticaria (rash)(not DH) has never been cured..So the last 1 and half year has past with trying different combinations of antihistamines... ) (For the last 6 months I have been experiencing same problems with my hands and fingers... Sometimes that wakes me up at the middle of the night too. I have to shake my hands as fast as I can to get some feeling back...My doc could not figure it out...If you can get an answer please forward to me too.) (The problem you describe could be more a physical-mechanical problem than a nutritional one. Or you may need to address the numbness from both points of view. I've had occasional numbness in my hands and arms, especially at night. My doctor feels it may have something to do with arthritic changes in my cervical spine that are pinching the nerves; an xray of my neck does show some changes (I'm in my 50s). Being sure that the neck and head are supported properly during sleep may help you; I keep a pillow that I can fold to support my head and keep my neck straight, whatever position I'm in, and that does help me a lot with night-time numbness. Another cause, which is simple to avoid, is leaning on the elbows during the day. This pinches a nerve that goes to the hands, and causes numbness and tingling. Carpal tunnel syndrome can also cause tingling, but you have probably already explored this possibility. Good luck!) (This happens to me when I eat rice products, even a very small amount. My guess is, rice is to high in carbs and why I can not tolerate it. No rice no numbness in hands at night. ) (I experience pain and numbness in my hands and arms as well the soles of my feet, but the degree you suffer seems much greater. I had similar experience with the B12 shots. Medications seem ineffective and there are many times when my heating pad seems like my best friend. ) (It sounds like Carpal Tunnel Syndrome which some coeliacs get, also people with thyroid disorders (so this should maybe be checked also). You should be able to get some info from the Internet about CTS. There's a page on it at the very good www.thyroid.about.com site. I believe pressure on the nerves from swelling causes the problem. I think it is difficult to treat but my mother, who has this in one arm and hand, uses a splint at night to keep the wrist straight. )