<<Disclaimer: Verify this information before applying it to your situation.>> Educational Lobbying with NIAMS Coalition The Coalition of Voluntary and Professional Associations Concerned with thePrograms of the National Institute of Arthritis and Musculoskeletal and SkinDiseases (NIAMS). Join the Gluten Intolerance Group (GIG) in Washington DC, March 27, 2001 to help spread the word to congress about dermatitis herpetiformis and gluten intolerance. We attend the NIAMS as part of the Coalition of Patient Associations for Skin Disease Research (CPASDR). Like the Digestive Disease National Coalition (DDNC) Public Policy Forum, on March 19, we are here to influence the decisions National Institute of Health (NIH) will make regarding designation of research funding. Numbers count! The impact of a large group of people with one disease has profound impact on awareness. This is how some disease groups caught the attention of NIH, DDNC and NIAMS. The following information is sent from NIAMS Coalition. Register Now for the NIAMS Coalition Capitol Hill Day (celebrating the 15th Anniversaryof NIAMS) Tuesday March 27, 2001 NIAMS Coalition Day is scheduled for Tuesday, March 27, 2001 in the Gold Room of the RayburnHouse Office, Room 2168. The evening reception, which will begin at 5:30p.m., will be held in the Rayburn Foyer. AGENDA NIAMS Coalition Capitol Hill Day Rayburn House Office Building, Gold Room, Room 2168 8:30 Registration/ Continental Breakfast (GF selection will be avail) 9:00 Welcome and Opening Remarks 9:10 Report by Stephen Katz, MD Director NIAMS 9:40 Remarks from Ralph Regula, Chairman, House Labor, HHS Appropriations Committee (invited) Remarks from Morton Kondracke (invite) 10:15 Briefing for Capitol Hill 10:30 Depart for Capitol Hill visits 12:00 Lunch (meal to be GF) 12:30 Briefing on FY2002 Budget & Appropriations Outlook by Mike Stephens, House Appropriations Committee 1:15 Depart for Capitol Hill Meetings with members of the House & Senate Appropriations & Budget Committees 3:00 -- 5:00 Debriefing Opportunity 5:00 -- 7:00 15th Anniversary Reception for NIAMS. NIAMS Public Service Award to be given to Senator Tom Harkin Need to Know: Capitol Hill Visits -- This year, we will make all of your appointments for you. We will hire a temporary employee to make all the appointments, so it is imperative that you send in your registration promptly! There will be two sets ofCapitol Hill visits during the day a " the morning sessions will give you the opportunity to meet with legislators from your home state. The afternoon visits will enable you to meet members of the Budget and Appropriations Committees. Meeting Materials -- you will receive 2 additional mailings prior to your participation in the meeting. You will receive a letter containing your registration confirmation, the FY 2002 NIAMS Fact sheet, the Research Advances and Opportunities Fact Sheet, and information on making Capitol Hill Visits a " including who is your Capitol Hill Team Leader and a list of your scheduled meetings. You will also be sent a NIAMS packet containing a wealth of information about the institute and its work. (Note from GIG: **Materials about gluten intolerance (CD/DH) will be added to the packets in DC.**) Hotel Accommodations: A block of rooms has been reserved in the name of the NIAMS Coalition at the Hotel George for the night preceding the meeting, March 26th and a smaller number of rooms for those who would like to attend the NIAMS Anniversary Reception and depart Washington on the morning of the 28th. The hotel is 1-1/2 blocks from Union Station and 3 blocks from Capitol Hill. Rates are $199 for singles and $224 for doubles, plus 14.5% District of Columbia sales tax. Please refer to group number 2681 when makingreservations. Hotel: Hotel George Address: 15 E St., NW, WashingtonDC 20001 Reservations: 800-576-8331 or www.hotelgeorge.com Group Number: 2681 Registration Deadline: March 5, 2001 Register Now! Complete the registration form. Include a check for $45 registration fee made out to AADA. The registration fee is for printed materials, and meals on the day of the meeting. Please send in your registration form as soon as possible. We look forward to seeing you on March 27th! NIAMS COALITION The Coalition of Voluntary andProfessional Associations Concerned with the Programs of the National Instituteof Arthritis and Musculoskeletal and Skin Diseases (NIAMS) REGISTRATION FORM 1. _____ YES! I plan to attend the NIAMS Coalition Day and Capitol Hill Visits on March 27,2001 in Washington DC Name (to appear on Nametag): _________________________________________ Organization: _______Gluten IntoleranceGroup_______________________ Address: ____________________________________________________ ____________________________________________________ Phone: ________________________ Fax: _________________ Email: _____________________________________________________ 2. Please list your members of Congress below so that wecan make an appointment for you; you will also have appointments with membersof the Appropriations and Budget Committees: My Senator: __________________________ My Senator: __________________________ My Rep: __________________________ 3. _____ YES!! I will attend the evening reception. 4. Mail to: CherylA. Hayden American Academy of DermatologyAssociation 1350 I St, NW Suite 880 Washington DC 20005 Fax: 202-842-4355; Phone:202-842-3555; Email: [log in to unmask] Submitted by: Gluten Intolerance Group (GIG) 15110 10th Ave SW, Suite A Seattle, WA 98166-1820 Telephone: 206-246-6652 Fax: 206-246-6531 Website: www.gluten.net Email: [log in to unmask] Executive Director: Cynthia Kupper, C.R.D. Nancy Seattle, WA USA