<<Disclaimer: Verify this information before applying it to your situation.>> I'd like to thank the 20 or so people who replied to my mail. I know I was whinging a bit, but it did me so much good to give vent to my frustration at having to wait so long for help from the medical profession. Most of the replies were very personal and moving, offering me their personal experience and heartfelt support. Their messages were very uplifting for me and I am so grateful. In summary: Around 14 of the replies described a very different weight history from the stereotypical medical view of the 'wasted and frail' celiac patient. 4 had experienced considerable weight gain before diagnosis and had lost weight when on a GF diet. The others had maintained a normal (for them) weight prior to diagnosis, or gained less than a stone during their illness. 16 reported long waits for diagnosis, but stayed on gluten rich diets for the purposes of the tests - they strongly advised me to stay on gluten. 3 asked me why I didn't just forget the tests and go GF. (This is something I cannot afford to do, as if you have a low income in England, you can claim free GF prescriptions - GF foods cost a fortune here). Also I feel I need the recognition of a clear diagnosis and further investigation of lymph nodes and bones etc. 6 of the replies commented on having 'atypical symptoms', that is, they or their families had no diarrhea prior to diagnosis. Several mentioned having a single vague symptom such as fatigue or nausea, but no other signs. About half of the messages commented on the lack of knowledge among their diagnosing doctors and on negative initial tests which were later followed up with positive biopsies. All of the replies were really supportive and encouraging. Since I have joined this list, I have not felt so alone. Thanks Sheila (Stockport, England)