<<Disclaimer: Verify this information before applying it to your situation.>> This one broke my heart. Perhaps someone will have a way to be helpful. [log in to unmask] >They die. Another scenerio is, what about the people with permanent >damage ,that if they have a good dr will put them on total >parenteral nutrition instead of letting them die, like me. >[log in to unmask] > I looked into this matter about 6 months ago. I called at least 20 > nursing homes in the St. Louis area with a fictitious aunt with celiac > disease who needs nursing home care. Only 2 had a clue what I was > talking about and unfortunately, one of them could be named the Ritz- > Carleton nursing home. Tres expensive. I then wrote CSA/USA and > Celiac Disease Foundation in CA suggesting they might wish to explore > this matter as I thought it would be of interest to many. I have > searched and searched for Mr. Rottman's reply from CSA/USA, but I > obviously threw it away as it was a bunch of gibberish. But at least > he replied. Never heard from CDF in California. I was and still am > discouraged. Any suggestions, anyone? Hopefully, we can get more > publicity or I can start saving big time for the Cadillac of nursing > homes in this area.