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This one broke my heart.  Perhaps someone will have a way to be helpful.

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>They die. Another scenerio is, what about the people with permanent
>damage ,that if they have a good dr will put them on total
>parenteral nutrition instead of letting them die, like me.


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> I looked into this matter about 6 months ago.  I called at least 20
> nursing homes in the St. Louis area with a fictitious aunt with celiac
> disease who needs nursing home care.  Only 2 had a clue what I was
> talking about and unfortunately, one of them could be named the Ritz-
> Carleton nursing home.  Tres expensive.  I then wrote CSA/USA  and
> Celiac Disease Foundation in CA suggesting they might wish to explore
> this matter as I thought it would be of interest to many.  I have
> searched and searched for Mr. Rottman's reply from CSA/USA, but I
> obviously threw it away as it was a bunch of gibberish.  But at least
> he replied.   Never heard from CDF in California.  I was and still am
> discouraged.  Any suggestions, anyone?  Hopefully, we can get more
> publicity or I can start saving big time for the Cadillac of nursing
> homes in this area.