--------------Boundary-00=_HB0BQL80000000000000--
=========================================================================
Date: Fri, 22 Sep 2000 15:54:46 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: can anyone advise?
MIME-Version: 1.0
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Can you say "lawsuit?" He's got the makings of one...
Mike
Beth Anderson wrote:
> Hi ya'll,
>
> I have my own mailing list, for a country music singer - sometimes they get off
> topic, and this is off topic for my list - but told him I would run this past
> you all, and see if you had any opinions on his "situation"......... just
> answer me privately, or via this CP list and I'll send to him.
> -------------------------------------------------------------------------------------------------
>
> I'm not sure if anyone out there on the list will know if this is legal
> or not. But here goes...
>
> Back in December of 1999 I had to take a medical leave from work due to
> Lymphodema of my left leg. I have been going through therapy to treat
> this condition since January 1st of 2000 and I was officially released
> by my doctor(the one who recommended the therapy) on September 1st of
> 2000 so that I could return to work starting on the 5th of September.
>
> The front office knew that I was planning on returning on the 5th with
> my release. I had talked to a lady in personnel and she said thaat I
> just needed to come in with my release on the 5th, then she let me talk
> to my supervisor who in turn told me the same thing. Only I was to
> report to her desk at 7am on the 5th to begin my training.
>
> When I showed up on the 5th I was told that they had tried to call me
> and left a message on my machine stating that I had to call the office
> to schedule a "fitness for duty test" before I could return to work. So
> I was then sent home given an appointment to see the company doctor on
> the 6th of September.(still with me on this?)...
=========================================================================
Date: Fri, 22 Sep 2000 16:13:15 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: can anyone advise?
MIME-Version: 1.0
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Michael and Ken, that is pretty much what I told him before I asked you all, I
guess I'm also wondering if any ADA laws would be applicable here in his
favor..... at any rate, he'd have to get a lawyer - and if he's not had a
paycheck since June - he'd have to get one that'll work for 'peanuts'......
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Fri, 22 Sep 2000 13:47:00 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Chester Worwa <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
It is lower and it melts a lot faster.
--- "Barber, Kenneth L." <[log in to unmask]> wrote:
> hmmm... and i thought driving in snow was hard.
> virginia does not get as
> much snow as buffelo, but, when i lived in that
> area there was snow on the
> ground for the first two weeks and there was snow
> many times. if you are
> really thinking of moving, you might think of
> central fla., southern
> arizona, or the south gulf coast of texas
> (brownsville area). i guess i
> could through in san diago. but, with the exception
> of the last one you have
> to put up with lost of heat in the summer.
>
> -----Original Message-----
> From: Chester Worwa [mailto:[log in to unmask]]
> Sent: Friday, September 22, 2000 2:34 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> I'm just trying to figure out how to walk in snow
> with
> a walker.
>
> --- "Barber, Kenneth L." <[log in to unmask]> wrote:
> > look at it this way, chester, you can save money
> in
> > the winter by just
> > putting your food outside instead of running a
> deep
> > freeze.
> >
> > -----Original Message-----
> > From: Chester Worwa [mailto:[log in to unmask]]
> > Sent: Friday, September 22, 2000 10:19 AM
> > To: [log in to unmask]
> > Subject: Re: Hello
> >
> >
> > I want to move to Virginia because it is warmer.
> >
> >
> > Chester Worwa MWLIFCBNY (Man Who Lives In Freezing
> > Cold Buffalo, New York)
> >
> > --- "Michael H. Collis" <[log in to unmask]>
> > wrote:
> > > Ken, Was it that bad? lol
> > > mike
> > >
> > > "Barber, Kenneth L." wrote:
> > >
> > > > i spent a month in Richmond one day.
> > > >
> > > > Dear Mike, Please call me Lynn, and I know
> > where
> > > Richmond is. been there
> > > > once. but
=========================================================================
Date: Fri, 22 Sep 2000 19:23:22 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/22/00 7:26:34 PM, [log in to unmask] writes:
<< hmmm... and i thought driving in snow was hard. virginia does not get as
much snow as buffelo, but, when i lived in that area there was snow on the
ground for the first two weeks and there was snow many times. i >>
I've livedin NYC and Northern Virginia and Ken is correct, there's more in
Virginia.
Brownsville area, you gotta be kidding!!! San Antonio or East Texas such as
Commerce, Tyler or Longview.
Bobby
=========================================================================
Date: Fri, 22 Sep 2000 19:53:39 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 9/22/00 7:50:23 PM, [log in to unmask] writes:
<< You do it the same way if you didn't have a walker...very slowly, very ca=
refully and pray a lot.
Joanne
>>
Ha Ha!! Now that is funny!!
Bobby
=========================================================================
Date: Fri, 22 Sep 2000 19:59:17 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Well, maybe in the 60's and 70's, but in the last 13 years since I've lived here,
we've only had snow in any appreciable amounts, maybe six or seven times We do
get ice, which is FUN to drive power chairs on... Yeeehah!
"Bobby G. Greer" wrote:
> I've livedin NYC and Northern Virginia and Ken is correct, there's more in
> Virginia.
> Brownsville area, you gotta be kidding!!! San Antonio or East Texas such as
> Commerce, Tyler or Longview.
>
> Bobby
=========================================================================
Date: Fri, 22 Sep 2000 19:57:31 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: can anyone advise?
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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He needs to file an ADA litigation action with the EEOC(Equal Employment
Opportunity Commission). But probably he needsan attornet to do this for him.
Bobby
=========================================================================
Date: Fri, 22 Sep 2000 20:20:53 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Hello
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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How far is Staunton from I-64? I lived in Norfolk/Virginia Beach area for 5
years. I'm originally from Ohio so, I've done the I-64 to I-75 route more
than I'd care to admit.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Beth Anderson
> Sent: Friday, September 22, 2000 11:55 AM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> Hi Lynn,
>
> If you're two hours from Richmond, you'd be about 4 hours from
> me, probably. I
> am also, two hours from Richmond - but of course coming from a different
> direction than you would be! I have not been to the beach but
> once in my life.
> If things has worked out better, I would have been down there a
> couple weeks ago
> for a concert, but things didn't go that way.......
>
> See ya
> Beth
>
> --
> Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
> starchat.net chat room, and instructions for the rvsfans mailing list.
>
=========================================================================
Date: Fri, 22 Sep 2000 20:26:15 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Hi Beth (the OT)..........
I actually live in a small community about 4 miles south of Staunton, called
Mint Spring. It shares an exit on the interstate, with another little 'town'
called Stuarts Draft. If you go off the Mint Spring exit, I'm less than a mile
away. (I live very near a junction of two interstates - being I-81 and I-64.
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Fri, 22 Sep 2000 22:58:11 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Gordon, ya want funny? I just saw a tee shirt that had a drawing of a tooth
brush, and a roll of toilet paper-the tooth brush says, I think I have the
worst job in the world. The toilet paper say, no, I do...
=========================================================================
Date: Fri, 22 Sep 2000 23:00:52 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Hi Lynn,
I remember you. Glad you came through that move safely.
Mag
=========================================================================
Date: Fri, 22 Sep 2000 23:03:39 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
If they were using a really good cheese, I could understand, but they mostly
use Kraft pre-cut for the food industry.
=========================================================================
Date: Fri, 22 Sep 2000 23:08:36 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Hello/ weather
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Oakland has great weather, with the exception of September. Very mild
weather!
mag
=========================================================================
Date: Fri, 22 Sep 2000 23:12:43 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: can anyone advise?
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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Beth, your pal should talk to a lawyer.
mag
=========================================================================
Date: Fri, 22 Sep 2000 23:16:28 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Thanks Meg. I have a nice Apt. here in Virginia Beach. It feels like
home here now. I have some nice friends here. and a nice church home
to. Lynn
Magenta Raine wrote:
> Hi Lynn,
> I remember you. Glad you came through that move safely.
>
> Mag
=========================================================================
Date: Sat, 23 Sep 2000 00:29:03 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Hopefully one of you list gurus can help me out with this...
My computer was in for repairs last week, so I had to read my e-mail using
web based mail. When I received the digests there, they had the title of
each message, then if you scrolled down, they had the full text of each
message, separated by a bar.
Now that I'm back on my computer, using Outlook Express, I only get a list
of subjects, which show up as clickable links. You have to click on each
one for the text of each separate message. I really liked having the full
text display automatically. It was much faster and easier to read.
Is there some setting I need to change to get my digests to appear the first
way? I really appreciate the help. Thanks!
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 00:29:47 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Trisha...?
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Has anyone heard from Trisha or Betty lately? I miss their contributions to
the list, and I was wondering how they were doing.
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 00:40:45 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Skin Irritation
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
I'm not sure if this topic is too sensitive for the list. If it is, I
apologize, but I figured you guys might be able to help.
I wear absorbent underwear while at school or in an unfamiliar place. I can
control my bladder fully, but it makes my life a thousand times easier, in
that I don't have to worry about finding accessible bathrooms or taking a
huge chunk of time away from what I'm doing.
Recently, the skin on my inner thighs has been scaly, red, puffy, and
irritated. There are a few pimplish looking sores. It's very painful.
I've tried ice, Vagisil, moisturizer, plain old soap and water... everything
we can think of. As always, I'm really careful about drying the area, but
nothing seems to help. I'm thinking the underwear might be too tight, but
I'm afraid of switching to a larger size, and not having a tight enough
seal.
Has anyone dealt with this problem? I'd really appreciate any help. Oh,
and I'd like to keep this between members of the list, if possible. I'm
somewhat self-conscious about it, and no one besides my parents knows.
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 01:59:52 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/22/00 9:42:51 PM Pacific Daylight Time,
[log in to unmask] writes:
> which is FUN to drive power chairs on... Yeah!
yee haw! let's go chair skiing!
mag
=========================================================================
Date: Sat, 23 Sep 2000 05:04:33 -0400
Reply-To: [log in to unmask]
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. Stephen Margolis" <[log in to unmask]>
Subject: Re: Betty...?
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I've heard from Betty. She's ailing.
So. Why don't you send her an email?
S.
-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of - Joy -
Sent: Saturday, September 23, 2000 12:30 AM
To: [log in to unmask]
Subject: Trisha...?
Has anyone heard from Trisha or Betty lately? I miss their
contributions to
the list, and I was wondering how they were doing.
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 05:04:34 -0400
Reply-To: [log in to unmask]
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. Stephen Margolis" <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I've had the same problem since I started lurking. Solution indirect.
Opened a web based email account. Download each posting in separate
box on Outlook Express and Microsoft Outlook. Delete with delight.
Still receive Digest but haven't been able to get open text either-as
you described.
There's another way to get mail directly from Maelstrom, but I need to
look up the method.
Am in a forgetful phase-sigh.
S.
-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of - Joy -
Sent: Saturday, September 23, 2000 12:29 AM
To: [log in to unmask]
Subject: Technical Difficulties
Hopefully one of you list gurus can help me out with this...
My computer was in for repairs last week, so I had to read my e-mail
using
web based mail. When I received the digests there, they had the title
of
each message, then if you scrolled down, they had the full text of each
message, separated by a bar.
Now that I'm back on my computer, using Outlook Express, I only get a
list
of subjects, which show up as clickable links. You have to click on
each
one for the text of each separate message. I really liked having the
full
text display automatically. It was much faster and easier to read.
Is there some setting I need to change to get my digests to appear the
first
way? I really appreciate the help. Thanks!
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 06:41:20 -0400
Reply-To: joanne <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: joanne <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
>
> Is there some setting I need to change to get my digests to appear the
first
> way? I really appreciate the help. Thanks!
>
> ~Joy~
Joy I don't get the digest so I don't know if this will work or not. It does
work with individual e-mails.
On the task bar click view. Then click layout. Click on show preview pain,
clicl on whether you want it below or beside the message and then make sure
show preview pane header is clicked. Click apply than click OK. Like isaid I
don't know if this will help with the digest or not.
Joanne
=========================================================================
Date: Sat, 23 Sep 2000 08:06:02 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: to Karen
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Karen,
Since your daughters diagnosis has anyone hooked you up with the numerous
support groups and places to find information out about Autism. (It's
really bothering me that you may have been left without valuable
information). Let me know and I can send you to some places on the web that
give out fairly good and realiable info.
Elizabeth H. Thiers, OTR/L
homepage: http://www.bv.net/~john
email: [log in to unmask]
=========================================================================
Date: Sat, 23 Sep 2000 08:06:04 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Hello
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
So, what area of VA Beach did you end up in?
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of sara lynn weaver
> Sent: Friday, September 22, 2000 10:16 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> Thanks Meg. I have a nice Apt. here in Virginia Beach. It feels like
> home here now. I have some nice friends here. and a nice church home
> to. Lynn
>
> Magenta Raine wrote:
>
> > Hi Lynn,
> > I remember you. Glad you came through that move safely.
> >
> > Mag
>
=========================================================================
Date: Sat, 23 Sep 2000 08:12:07 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Skin Irritation
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Have you tried baby powder? or you can (and don't take this the wrong way
please) try the lotion for diaper rash and then once the rash is gone use
powder (talc, corn starch) to keep the area dry. It sounds like you may
getting irritation from the underwear rubbing against your skin or you may
be sweating and the area is moist all the time and contributing to skin
break down.
Hope that helps.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of - Joy -
> Sent: Friday, September 22, 2000 11:41 PM
> To: [log in to unmask]
> Subject: Skin Irritation
>
>
> I'm not sure if this topic is too sensitive for the list. If it is, I
> apologize, but I figured you guys might be able to help.
>
> I wear absorbent underwear while at school or in an unfamiliar
> place. I can
> control my bladder fully, but it makes my life a thousand times easier, in
> that I don't have to worry about finding accessible bathrooms or taking a
> huge chunk of time away from what I'm doing.
>
> Recently, the skin on my inner thighs has been scaly, red, puffy, and
> irritated. There are a few pimplish looking sores. It's very painful.
> I've tried ice, Vagisil, moisturizer, plain old soap and water...
> everything
> we can think of. As always, I'm really careful about drying the area, but
> nothing seems to help. I'm thinking the underwear might be too tight, but
> I'm afraid of switching to a larger size, and not having a tight enough
> seal.
>
> Has anyone dealt with this problem? I'd really appreciate any help. Oh,
> and I'd like to keep this between members of the list, if possible. I'm
> somewhat self-conscious about it, and no one besides my parents knows.
>
> ~Joy~
>
=========================================================================
Date: Sat, 23 Sep 2000 08:37:39 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Salome (Was: Article in New Mobility)
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Kyle, you can keep the sinus infection. I get enough ear infections during
the year, thank you very much...
Beth the OT (studiously avoiding two hurricanes)
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Cleveland, Kyle E.
> Sent: Thursday, September 21, 2000 7:49 AM
> To: [log in to unmask]
> Subject: Re: Salome (Was: Article in New Mobility)
>
>
> Beth, sure! What's mine is yours...even this darn sinus infection, if ya
> want it!
>
> -----Original Message-----
> From: Elizabeth H. Thiers [mailto:[log in to unmask]]
> Sent: Wednesday, September 20, 2000 8:59 PM
> To: [log in to unmask]
> Subject: Re: Salome (Was: Article in New Mobility)
>
>
> Kyle, Can I send your tagline to a few folks who will definately get some
> gigglets from it?
>
> beth the ot
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Cleveland, Kyle E.
> > Sent: Wednesday, September 20, 2000 10:52 AM
> > To: [log in to unmask]
> > Subject: FW: Salome (Was: Article in New Mobility)
> >
> >
> > Yo, Steve. No cruelty to Toto-type doggies anymore.
> >
> > -Kyle
> >
> > Father to Alex, 2.5 year-old, LTCFT (loves to contract "Fire
> Truck"), SSID
> > (Still shats in diaper), CSN (Chronic Snotty Nose); Anna, 7,
> > WLBWCGW (Whines
> > Line Banshee When Can't Get Way), WFNMHMYPHB (Won't Flush No
> > Matter How Much
> > You Pop Her Backside); Adrienne 16, DAIBD (Drives As If Brain
> > Dead), RDABC
> > (Regards Dad As Blank Checkbook); Husband to Laura (PMS--No
> More Need Be
> > Said)
> >
>
=========================================================================
Date: Sat, 23 Sep 2000 08:39:47 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Creation Duel(long)
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Bobby,
Finally read this and it was tooooo funny.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of greer.bobby
> Sent: Thursday, September 21, 2000 10:46 AM
> To: [log in to unmask]
> Subject: Creation Duel(long)
>
>
> I found this on the POLIO list and thought some of your might enjoy it.
>
> Bobby
>
> Creation Duel
>>
=========================================================================
Date: Sat, 23 Sep 2000 11:37:17 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: Trisha...?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Betty's doing okay, Was goingt to see her yesterday, but decided not to because
of the hassle involved in traveling and spending the night in a motel. Will tell
her you said hey...
Mike
.
- Joy - wrote:
> Has anyone heard from Trisha or Betty lately? I miss their contributions to
> the list, and I was wondering how they were doing.
>
> ~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 13:37:22 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Karen K. Perlow" <[log in to unmask]>
Subject: Re: to Karen
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Beth,
Thanks for your concern & offer of information.Feel free to send it.We are
going Oct.2nd to Judevine Center for Autism here in St.Louis for that
consultation I mentioned earlier.They have a support group for Asperger's
parents. We just haven't had the time to get involved yet. I don't feel I'm
uninformed.Sorry if I sounded harsh it's just that being a former government
employee, I have little tolerance for being thrown in a catch all category.I
was simply venting my frustration with the system. I hate feeling ignored or
patted on the head & told it will be okay.
Karen :)
=========================================================================
Date: Sat, 23 Sep 2000 11:58:55 -0600
Reply-To: "[log in to unmask]" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Tom Younkerman <[log in to unmask]>
Subject: Re: Skin Irritation
joy,
I've suffered from jock itch all summer and tried everything to no avail.
Your best bet may be corn starch. Keep the area dry as much as possible.
Baby powder or Bag Balm may help too, if all else fails see your doctor.
Tom
-----Original Message-----
From: - Joy - [SMTP:[log in to unmask]]
Sent: Friday, September 22, 2000 10:41 PM
To: [log in to unmask]
Subject: Skin Irritation
I'm not sure if this topic is too sensitive for the list. If it is, I
apologize, but I figured you guys might be able to help.
I wear absorbent underwear while at school or in an unfamiliar place. I
can
control my bladder fully, but it makes my life a thousand times easier, in
that I don't have to worry about finding accessible bathrooms or taking a
huge chunk of time away from what I'm doing.
Recently, the skin on my inner thighs has been scaly, red, puffy, and
irritated. There are a few pimplish looking sores. It's very painful.
I've tried ice, Vagisil, moisturizer, plain old soap and water...
everything
we can think of. As always, I'm really careful about drying the area, but
nothing seems to help. I'm thinking the underwear might be too tight, but
I'm afraid of switching to a larger size, and not having a tight enough
seal.
Has anyone dealt with this problem? I'd really appreciate any help. Oh,
and I'd like to keep this between members of the list, if possible. I'm
somewhat self-conscious about it, and no one besides my parents knows.
~Joy~
=========================================================================
Date: Sat, 23 Sep 2000 19:36:48 +0100
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: =?iso-8859-1?q?Gordon=20Stewart?= <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
--- "Barber, Kenneth L." <[log in to unmask]> wrote: > Ever
think your sole purpose in life is to serve as
> a warning to someone
> else?
yep. - If they get in my way, shoot em (after 1
warning of course...)
- <not literally - any cops here ??>
Gordon.
[log in to unmask]
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 19:39:27 +0100
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: =?iso-8859-1?q?Gordon=20Stewart?= <[log in to unmask]>
Subject: Re: Hair Folicles
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
--- "Cleveland, Kyle E." <[log in to unmask]>
wrote: > Oft wondered that m'self, Gordon. Does get
> confusing, no?
Does get confusing = YES!!!
Gordon.
[log in to unmask]
> -----Original Message-----
> From: Gordon Stewart
> [mailto:[log in to unmask]]
> Sent: Thursday, September 21, 2000 11:36 PM
> To: [log in to unmask]
> Subject: Re: Hair Folicles
> Q. - Why is it rare that anyone quotes the text that
> theyre replying to =
> on here.. ??
>
> Gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 19:41:48 +0100
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: =?iso-8859-1?q?Gordon=20Stewart?= <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
--- "Barber, Kenneth L." <[log in to unmask]> wrote: >
warmer than what? i live in georgia.
>
Stupid question here :-
Do you get stiff if youre cold ?
Gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 14:49:13 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: Skin Irritation
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/23/00 11:37:25 AM, [log in to unmask] writes:
<< Has anyone dealt with this problem? I'd really appreciate any help. Oh,
and I'd like to keep this between members of the list, if possible. I'm
somewhat self-conscious about it, and no one besides my parents knows.
>>
Mag,
Your best bet is an excellent dernatologist. I am lucky in that my AA
sponsor is also a Dermatologist. Cortaid is a good over the counter stop gap,
but with the "sore pimplish" stuff you'd best se a physician.
Bobby
=========================================================================
Date: Sat, 23 Sep 2000 20:01:29 +0100
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: =?iso-8859-1?q?Gordon=20Stewart?= <[log in to unmask]>
Subject: jokes
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
--- Magenta Raine <[log in to unmask]> wrote: > Gordon, ya
want funny? I just saw a tee shirt that
> had a drawing of a tooth
> brush, and a roll of toilet paper-the tooth brush
> says, I think I have the
> worst job in the world. The toilet paper say, no, I
do...
Hmm - I think its funny - dont know tho - just about
to fall asleep - suns coming up - so I better go
soon..
- When Im up again, i'll re-read it & tell yopu if im
laughing or not...
Gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 20:10:33 +0100
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: =?iso-8859-1?q?Gordon=20Stewart?= <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
--- "I. Stephen Margolis" <[log in to unmask]>
wrote: > I've had the same problem since I started
lurking.
> Solution indirect.
>
> Opened a web based email account. Download each
> posting in separate
> box on Outlook Express and Microsoft Outlook.
> Delete with delight.
>
> Still receive Digest but haven't been able to get
> open text either-as
> you described.
>
> There's another way to get mail directly from
> Maelstrom, but I need to
> look up the method.
>
yep - send an email to :-
[log in to unmask]
& in the body of the message - put
getpost c-palsy 11000-
---
- The 11000- means basically get message 11000 and
anything after it
- it will only get 100 messages though & im not sure
of the quick way to get the last 100 messages..
I just send repeated messages in - ie getpost 11000-
getpost 11200-
getpost 11500- etc..
- to find the last message (all to
[log in to unmask] )
- If anyone finds an easy way to JUST get the last 100
messages, without "finding" it - let me know
- thanks...
gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 14:01:44 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Chester Worwa <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
I get very stiff when I'm cold.
--- Gordon Stewart <[log in to unmask]>
wrote:
> --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> warmer than what? i live in georgia.
> >
>
> Stupid question here :-
>
> Do you get stiff if youre cold ?
>
> Gordon.
>
>
> =====
> [log in to unmask]
> [log in to unmask]
> My ICQ number is :- 83440115 http://www.icq.com
> gordonistewart_nz (at) hotmail (dot) com
>
>
____________________________________________________________
> Do You Yahoo!?
> Get your free @yahoo.co.uk address at
> http://mail.yahoo.co.uk
> or your free @yahoo.ie address at
http://mail.yahoo.ie
=========================================================================
Date: Sat, 23 Sep 2000 17:15:11 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Beth, I live at the pleasentvally area. not far from LynnHaven
Parkway. Lynn
"Elizabeth H. Thiers" wrote:
> So, what area of VA Beach did you end up in?
>
> Beth the OT
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of sara lynn weaver
> > Sent: Friday, September 22, 2000 10:16 PM
> > To: [log in to unmask]
> > Subject: Re: Hello
> >
> >
> > Thanks Meg. I have a nice Apt. here in Virginia Beach. It feels like
> > home here now. I have some nice friends here. and a nice church home
> > to. Lynn
> >
> > Magenta Raine wrote:
> >
> > > Hi Lynn,
> > > I remember you. Glad you came through that move safely.
> > >
> > > Mag
> >
=========================================================================
Date: Sat, 23 Sep 2000 18:53:26 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Skin Irritation
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/23/00 11:50:22 AM Pacific Daylight Time,
[log in to unmask] writes:
> Your best bet is an excellent dernatologist. I am lucky in that my AA
> sponsor is also a Dermatologist. Cortaid is a good over the counter stop
gap,
>
> but with the "sore pimplish" stuff you'd best se a physician.
I think you meant Joy L. not me. but as it happens, I do have this problem
myself - get it checked by a dr. mine said he couldn't find anything. so i
just use vagisil, and keep it dry.
=========================================================================
Date: Sat, 23 Sep 2000 18:54:08 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: to Karen
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Sorry it came off that way. Flippant and uncaring that is. I find working
with parents that the concerns are the same just more so with kids with
disabilities. Breathe, enjoy your child and no matter what they tell you,
expect the best from your daughter.
I also find that MDs sometimes leave parents hanging, with lots of questions
and very little answers. I've got a few places when you have a moment
(ha,ha) you can feel free to check them out. I've listed them at
www.bv.net/~john/autism.html
Let me know what you think of Judevine. Hope your visit goes well.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Karen K. Perlow
> Sent: Saturday, September 23, 2000 12:37 PM
> To: [log in to unmask]
> Subject: Re: to Karen
>
>
> Beth,
> Thanks for your concern & offer of information.Feel free to send it.We are
> going Oct.2nd to Judevine Center for Autism here in St.Louis for that
> consultation I mentioned earlier.They have a support group for Asperger's
> parents. We just haven't had the time to get involved yet. I
> don't feel I'm
> uninformed.Sorry if I sounded harsh it's just that being a former
> government
> employee, I have little tolerance for being thrown in a catch all
> category.I
> was simply venting my frustration with the system. I hate feeling
> ignored or
> patted on the head & told it will be okay.
>
> Karen :)
>
=========================================================================
Date: Sat, 23 Sep 2000 18:54:35 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Hello
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I lived in all the classy parts you know Ocean View and Lake Edward area.
Lots of cultural events at Town Pointe park, Chrysler Museum. Yeah,
sometimes I wish I never left. It'll all grow on you especially once you
figure out those weird main roads.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of sara lynn weaver
> Sent: Saturday, September 23, 2000 4:15 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> Dear Beth, I live at the pleasentvally area. not far from LynnHaven
> Parkway. Lynn
>
> "Elizabeth H. Thiers" wrote:
>
> > So, what area of VA Beach did you end up in?
> >
> > Beth the OT
> >
>>
=========================================================================
Date: Sat, 23 Sep 2000 19:12:35 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Karen K. Perlow" <[log in to unmask]>
Subject: Re: to Karen
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Let me know what you think of Judevine. Hope your visit goes well.
Beth,
With my son being autistic, we already have some experience with Judevine.He
has had respite services through them & the girls attended a sibling support
group for several years. I know they have been here a long time & they must
be expanding even further because they have 2 locations now in addition to
their residential facilities.Thankfully, they are BIG advocates of inclusion,
not just in schools but the community in general. I'll let you know what we
find out.
Thanks,
Karen :)
=========================================================================
Date: Sat, 23 Sep 2000 19:19:26 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Beth, I live in Norfolk the first 9 mounts I was here in Virginia. and I
lived on First View st. right at the Farm Fresh and the post office on First
View. and it was a really bad place there. there was 2 murders and 2 drug
raids and to sex for sale raids in the building I lived in. It was all I
could affoward at the time on my socical security disibility check. I moved
in the apt. I am in now in Novermebr of 98. The rent is based on your
income. and it is nice here. the apt. is made for handicapped people. and the
one in Norfolk was not. I could not even get into my bathroom there. I did
not get to see a lot of Norfolk when I was there. I did not have any money to
go out. and I did not (and still don't) have any family there. I do not have
a family because of my CP. my parents did not like haveing a Child born with
CP. so now we are not in touch with each othere any more. so learing my way
around was not easy. but I have been to some of the public events at the
Ocean View Park. and I enjoyed them a lot. and I have heard of the Chryler
Museum. and the Town Point Park. and there is a huge mall in down town
Norfolk. it is called the McAuther Center. it is real nice there. and I have
been to the Norfolk Scope a few times. There is a new really big boardwalk at
the Ocean Front here in Virgina Beach. A friend and I hopeful will be able to
go there sometime soon. she is married with two children. and it is hard for
her to get away. and I need help getting my wheelechair out of the car. so I
can not go there alone. and thay started building a really big Business and
Apt and shops center at the intersection of Virginia Beach Blvd and
Indendpendence Blvd. it will open sometime in late 2001 or early 2002.
Have you heard of the Plasentvally Market place. it is a shopping center real
close to me. I can go there in my powered wheelechair, with out crossing the
street. I know where Virginia beach Blvd is and LynnHaven Parkway and
Indendpendence is. I am on them all the time. and I am learning Indina River
Area. and the Frwell Parkway area is real close to me. Everything looks a
like here. so haveing some truble learing land marks to find my way around.
but I am slowly getting there. Lynn
"Elizabeth H. Thiers" wrote:
> I lived in all the classy parts you know Ocean View and Lake Edward area.
> Lots of cultural events at Town Pointe park, Chrysler Museum. Yeah,
> sometimes I wish I never left. It'll all grow on you especially once you
> figure out those weird main roads.
>
> Beth the OT
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of sara lynn weaver
> > Sent: Saturday, September 23, 2000 4:15 PM
> > To: [log in to unmask]
> > Subject: Re: Hello
> >
> >
> > Dear Beth, I live at the pleasentvally area. not far from LynnHaven
> > Parkway. Lynn
> >
> > "Elizabeth H. Thiers" wrote:
> >
> > > So, what area of VA Beach did you end up in?
> > >
> > > Beth the OT
> > >
> >>
=========================================================================
Date: Sat, 23 Sep 2000 23:23:34 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Gordon,
Thanks.
That may have been the way I was doing.
Ken--oh, hi Ken--may have another way. Or Deri.
Where's Deri?
S.
----- Original Message -----
From: "Gordon Stewart" <[log in to unmask]>
To: Sent: Saturday, September 23, 2000 3:10 PM
Subject: Re: Technical Difficulties
> --- "I. Stephen Margolis" <[log in to unmask]>
> wrote: > I've had the same problem since I started
> lurking.
> > Solution indirect.
> >
> > Opened a web based email account. Download each
> > posting in separate
> > box on Outlook Express and Microsoft Outlook.
> > Delete with delight.
> >
> > Still receive Digest but haven't been able to get
> > open text either-as
> > you described.
> >
> > There's another way to get mail directly from
> > Maelstrom, but I need to
> > look up the method.
> >
>
> yep - send an email to :-
>
> [log in to unmask]
>
> & in the body of the message - put
>
> getpost c-palsy 11000-
>
>
> ---
> - The 11000- means basically get message 11000 and
> anything after it
> - it will only get 100 messages though & im not sure
> of the quick way to get the last 100 messages..
>
> I just send repeated messages in - ie getpost 11000-
>
> getpost 11200-
> getpost 11500- etc..
>
> - to find the last message (all to
> [log in to unmask] )
>
> - If anyone finds an easy way to JUST get the last 100
> messages, without "finding" it - let me know
> - thanks...
>
> gordon.
>
>
> =====
>
=========================================================================
Date: Sun, 24 Sep 2000 00:43:17 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Re: Skin Irritation
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks to everyone for the tips. And no, I'm not offended about the diaper
rash idea... My theory is, go with what works. I've learned not to be
sensitive about titles. ; )
~Joy~
----- Original Message -----
From: "Elizabeth H. Thiers" <[log in to unmask]>
Sent: Saturday, September 23, 2000 9:12 AM
Subject: Re: Skin Irritation
> Have you tried baby powder? or you can (and don't take this the wrong way
> please) try the lotion for diaper rash and then once the rash is gone use
> powder (talc, corn starch) to keep the area dry. It sounds like you may
> getting irritation from the underwear rubbing against your skin or you may
> be sweating and the area is moist all the time and contributing to skin
> break down.
>
> Hope that helps.
>
> Beth the OT
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of - Joy -
> > Sent: Friday, September 22, 2000 11:41 PM
> > To: [log in to unmask]
> > Subject: Skin Irritation
> >
> >
> > I'm not sure if this topic is too sensitive for the list. If it is, I
> > apologize, but I figured you guys might be able to help.
> >
> > I wear absorbent underwear while at school or in an unfamiliar
> > place. I can
> > control my bladder fully, but it makes my life a thousand times easier,
in
> > that I don't have to worry about finding accessible bathrooms or taking
a
> > huge chunk of time away from what I'm doing.
> >
> > Recently, the skin on my inner thighs has been scaly, red, puffy, and
> > irritated. There are a few pimplish looking sores. It's very painful.
> > I've tried ice, Vagisil, moisturizer, plain old soap and water...
> > everything
> > we can think of. As always, I'm really careful about drying the area,
but
> > nothing seems to help. I'm thinking the underwear might be too tight,
but
> > I'm afraid of switching to a larger size, and not having a tight enough
> > seal.
> >
> > Has anyone dealt with this problem? I'd really appreciate any help.
Oh,
> > and I'd like to keep this between members of the list, if possible. I'm
> > somewhat self-conscious about it, and no one besides my parents knows.
> >
> > ~Joy~
> >
>
=========================================================================
Date: Sat, 23 Sep 2000 22:39:41 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gerry and Dianne Adams <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
When I'm at work, and I want to check my personal e-mail account, I use
www.mailstart.com. When I access my email thru their site, I get the digest
as one long text message. Doesn't work at all for pix or pgms, though.
Dianne
----- Original Message -----
From: I. STEPHEN MARGOLIS <[log in to unmask]>
Sent: Saturday, September 23, 2000 8:23 PM
Subject: Re: Technical Difficulties
> Gordon,
>
> Thanks.
>
> That may have been the way I was doing.
>
> Ken--oh, hi Ken--may have another way. Or Deri.
>
> Where's Deri?
>
> S.
>
> ----- Original Message -----
> From: "Gordon Stewart" <[log in to unmask]>
> To: Sent: Saturday, September 23, 2000 3:10 PM
> Subject: Re: Technical Difficulties
>
>
> > --- "I. Stephen Margolis" <[log in to unmask]>
> > wrote: > I've had the same problem since I started
> > lurking.
> > > Solution indirect.
> > >
> > > Opened a web based email account. Download each
> > > posting in separate
> > > box on Outlook Express and Microsoft Outlook.
> > > Delete with delight.
> > >
> > > Still receive Digest but haven't been able to get
> > > open text either-as
> > > you described.
> > >
> > > There's another way to get mail directly from
> > > Maelstrom, but I need to
> > > look up the method.
> > >
> >
> > yep - send an email to :-
> >
> > [log in to unmask]
> >
> > & in the body of the message - put
> >
> > getpost c-palsy 11000-
> >
> >
> > ---
> > - The 11000- means basically get message 11000 and
> > anything after it
> > - it will only get 100 messages though & im not sure
> > of the quick way to get the last 100 messages..
> >
> > I just send repeated messages in - ie getpost 11000-
> >
> > getpost 11200-
> > getpost 11500- etc..
> >
> > - to find the last message (all to
> > [log in to unmask] )
> >
> > - If anyone finds an easy way to JUST get the last 100
> > messages, without "finding" it - let me know
> > - thanks...
> >
> > gordon.
> >
> >
> > =====
> >
>
=========================================================================
Date: Sun, 24 Sep 2000 08:39:14 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Hello
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I haven't lived up there since 91 so, I'm sure a lot has changed. There was
alot of construction going up in Chesapeake and Suffolk and they were able
to start construction south of the green line in VA Beach. I'm sure the
traffic has gotten exponentially worse. Been through the tunnels at rush
hour yet? :-) I lived in Ocean View for the rents also (I was in the
military at the time) had our own street hooker on the corner and had to be
careful not to get followed home at night after doing laundry. I'm glad you
could get out of there.
I always liked VA beach in the fall and winter, cooler, quieter. If you
like good, cheap folk music see if Ramblin Conrads is still up and running.
They sold instruments and also invited some great folk musicians.
I don't know about you but, it always takes me awhile to find my groove in a
place. Sounds like your settling in.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of sara lynn weaver
> Sent: Saturday, September 23, 2000 6:19 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> Dear Beth, I live in Norfolk the first 9 mounts I was here in
> Virginia. and I
> lived on First View st. right at the Farm Fresh and the post
> office on First
> View. and it was a really bad place there. there was 2 murders and 2 drug
> raids and to sex for sale raids in the building I lived in. It was all I
> could affoward at the time on my socical security disibility
> check. I moved
> in the apt. I am in now in Novermebr of 98. The rent is based on your
> income. and it is nice here. the apt. is made for handicapped
> people. and the
> one in Norfolk was not. I could not even get into my bathroom
> there. I did
> not get to see a lot of Norfolk when I was there. I did not have
> any money to
> go out. and I did not (and still don't) have any family there. I
> do not have
> a family because of my CP. my parents did not like haveing a
> Child born with
> CP. so now we are not in touch with each othere any more. so
> learing my way
> around was not easy. but I have been to some of the public events at the
> Ocean View Park. and I enjoyed them a lot. and I have heard of the Chryler
> Museum. and the Town Point Park. and there is a huge mall in down town
> Norfolk. it is called the McAuther Center. it is real nice
> there. and I have
> been to the Norfolk Scope a few times. There is a new really big
> boardwalk at
> the Ocean Front here in Virgina Beach. A friend and I hopeful
> will be able to
> go there sometime soon. she is married with two children. and it
> is hard for
> her to get away. and I need help getting my wheelechair out of
> the car. so I
> can not go there alone. and thay started building a really big
> Business and
> Apt and shops center at the intersection of Virginia Beach Blvd and
> Indendpendence Blvd. it will open sometime in late 2001 or early 2002.
> Have you heard of the Plasentvally Market place. it is a shopping
> center real
> close to me. I can go there in my powered wheelechair, with out
> crossing the
> street. I know where Virginia beach Blvd is and LynnHaven Parkway and
> Indendpendence is. I am on them all the time. and I am learning
> Indina River
> Area. and the Frwell Parkway area is real close to me. Everything looks a
> like here. so haveing some truble learing land marks to find my
> way around.
> but I am slowly getting there. Lynn
>
> "Elizabeth H. Thiers" wrote:
>
>
=========================================================================
Date: Sun, 24 Sep 2000 15:01:41 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Parking Lot Solutions?
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Wow, seems like I'm bombarding the list with a lot of questions lately.
Anyhow, as some of you might know, for my 16th birthday, my parents gave me
an adapted Ford Windstar. It has an automatic ramp, and only one seat in
the front, which can be shifted from driver to passenger side. That way, I
can be in either position in my wheelchair, without the hassle of
transferring.
It's wonderful, but here's the problem. I'll park in a handicapped spot,
and come out to find someone parked in the striped area. That means that I
have to wait until they come out to move their car, because I can't put the
ramp down. Or, there will be no accessible spot available, so I'll park
diagonally across two to give myself enough room to get out. Then another
car will come park diagonally next to me, again leaving no space to get in.
Has anyone come up with some solution to this problem? I've seen people
with signs or stickers on their vans warning people about lifts, but I have
no clue where to get them. Thanks again for any info...
~Joy~
=========================================================================
Date: Sun, 24 Sep 2000 15:14:37 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
park so that you are too far inside the striped area for any idiot to park
next to you.
Have fun cruising!
mag
=========================================================================
Date: Sun, 24 Sep 2000 15:17:58 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Question for Beth
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Beth, Do you know where there is some good parking places for
people in a wheelechair. I have been haveing a lot of truble finding
parking places at the oceanfront for the handicapped. and you are so
right the traffic is real bad here now. but I do not care.
I will look for the Ramblin Conrads. and if I find it. I will let you
know. I am like you. it does take me a while to find a place to where i
feel like i can go and really relax. I am still looking for my favorate
place to go here in Virginia Beach. Lynn
=========================================================================
Date: Sun, 24 Sep 2000 18:53:26 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Technical Difficulties (ATTN: JOY)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Joy the Quester,
I may have a solution for us!!!!!
Go to:
<http://maelstrom.stjohns.edu/CGI/wa.exe?SUBED1=c-palsy&A=1&D=1&H=0&O=D&T=1>
Change (enter) Digest Format to "Nomime" (Traditional).
Good luck. ;-)
S.
MIME/NOMIME Toggles MIME options on and off. Currently only digests are
available in MIME format. If DIGEST mode is set, the user will receive a
MIME digest instead of the regular plain-text digest. Note that you must
have a mail client that supports MIME digests (Pegasus is one that does) or
this setting will do you little good. This option is automatically set at
subscribe time for users who send their subscription command using a
MIME-compliant agent, unless "Default-Options= NOMIME" is specified for the
list.
=========================================================================
Date: Sun, 24 Sep 2000 19:02:03 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dianne,
Thanks for the "clue." The problem may be solved. (At least there's
something to try.)
S.
----- Original Message -----
From: "Gerry and Dianne Adams" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 24, 2000 1:39 AM
Subject: Re: Technical Difficulties
> When I'm at work, and I want to check my personal e-mail account, I use
> www.mailstart.com. When I access my email thru their site, I get the
digest
> as one long text message. Doesn't work at all for pix or pgms, though.
>
> Dianne
> ----- Original Message -----
> From: I. STEPHEN MARGOLIS <[log in to unmask]>
> Sent: Saturday, September 23, 2000 8:23 PM
> Subject: Re: Technical Difficulties
>
>
> > Gordon,
> >
> > Thanks.
> >
> > That may have been the way I was doing.
> >
> > Ken--oh, hi Ken--may have another way. Or Deri.
> >
> > Where's Deri?
> >
> > S.
> >
> > ----- Original Message -----
> > From: "Gordon Stewart" <[log in to unmask]>
> > To: Sent: Saturday, September 23, 2000 3:10 PM
> > Subject: Re: Technical Difficulties
> >
> >
> > > --- "I. Stephen Margolis" <[log in to unmask]>
> > > wrote: > I've had the same problem since I started
> > > lurking.
> > > > Solution indirect.
> > > >
> > > > Opened a web based email account. Download each
> > > > posting in separate
> > > > box on Outlook Express and Microsoft Outlook.
> > > > Delete with delight.
> > > >
> > > > Still receive Digest but haven't been able to get
> > > > open text either-as
> > > > you described.
> > > >
> > > > There's another way to get mail directly from
> > > > Maelstrom, but I need to
> > > > look up the method.
> > > >
> > >
> > > yep - send an email to :-
> > >
> > > [log in to unmask]
> > >
> > > & in the body of the message - put
> > >
> > > getpost c-palsy 11000-
> > >
> > >
> > > ---
> > > - The 11000- means basically get message 11000 and
> > > anything after it
> > > - it will only get 100 messages though & im not sure
> > > of the quick way to get the last 100 messages..
> > >
> > > I just send repeated messages in - ie getpost 11000-
> > >
> > > getpost 11200-
> > > getpost 11500- etc..
> > >
> > > - to find the last message (all to
> > > [log in to unmask] )
> > >
> > > - If anyone finds an easy way to JUST get the last 100
> > > messages, without "finding" it - let me know
> > > - thanks...
> > >
> > > gordon.
> > >
> > >
> > > =====
> > >
> >
>
>
=========================================================================
Date: Mon, 25 Sep 2000 11:22:53 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: EEEK!!! Middle-aged
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
from a mailing list :-
>>
=20
The Famous Joke of the Day One Liner!
=20
Middle age is when you've met so many people that every new=20
person you meet reminds you of someone else.
- Ogden Nash
<<
Im only 31 - Am I middle-age ??
Gordon.
=========================================================================
Date: Sun, 24 Sep 2000 20:08:10 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/24/00 11:22:39 PM, [log in to unmask] writes:
<< Im only 31 - Am I middle-age ??
Gordon.
>>
Gordon,
You are a loooong way from middle age! try 45-55.
At 62(like me) you are entering "Geezerhood"
Bobby
Someone said, "You're only as old as you feel. If that's the case, why am I
not covered by Medicare??"
=========================================================================
Date: Mon, 25 Sep 2000 12:17:34 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/25/00 12:08 >>>
>
Gordon,
You are a loooong way from middle age! try 45-55.
At 62(like me) you are entering "Geezerhood"
Bobby
Someone said, "You're only as old as you feel. If that's the case, why am =
I
not covered by Medicare??"
<
Hmm - Some days i feel like Im dead - WAAAAYYY past 'geezer-hood' - other =
times I feel like a kid...
(ps - it was only a joke / funny thing I found - im not serious :-) )
PS 2 :- Whats past 'geezer-hood' - Is that from 60-70 or something ?
<joking>
Gordon.
=========================================================================
Date: Sun, 24 Sep 2000 21:33:38 -0300
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Carla MacInnis <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Bobby,
When I'm your age, will I be a geezerette?
Cheers!
Carla
http://www.brunnet.net/terrier
----- Original Message -----
From: Bobby G. Greer <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 24, 2000 9:08 PM
Subject: Re: EEEK!!! Middle-aged
> In a message dated 9/24/00 11:22:39 PM, [log in to unmask] writes:
>
> << Im only 31 - Am I middle-age ??
>
> Gordon.
> >>
>
> Gordon,
>
> You are a loooong way from middle age! try 45-55.
>
> At 62(like me) you are entering "Geezerhood"
>
> Bobby
>
> Someone said, "You're only as old as you feel. If that's the case, why am
I
> not covered by Medicare??"
=========================================================================
Date: Sun, 24 Sep 2000 20:44:53 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Joy C. Liebeskind" <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
Mime-version: 1.0
Content-type: text/plain; charset="US-ASCII"
Content-transfer-encoding: 7bit
~Joy~ We got one of those stickers at abilities expo--saw them te other day
at the conversion dealer also---We call the police-it doesn't get you in the
car faster, but makes the wait more interesting..and when the other guy has
a BIG ticket to pay, you can be sure they don't parl like that again....We
also have a pad of notes that explain what thos line spots are for...my son
loves to leave them on cars.....If you park at an angle in 2 spots you can
make it impossible for someone to fit next to you........as you can tell we
have not found a great solution..Try a letter to the editor of the local
paper explaining why the lines are therte & how hard it makes it for you
when someone parks there ilegally. Joy
----------
>From: - Joy - <[log in to unmask]>
>To: [log in to unmask]
>Subject: Parking Lot Solutions?
>Date: Sun, Sep 24, 2000, 3:01 PM
>
>Wow, seems like I'm bombarding the list with a lot of questions lately.
>
>Anyhow, as some of you might know, for my 16th birthday, my parents gave me
>an adapted Ford Windstar. It has an automatic ramp, and only one seat in
>the front, which can be shifted from driver to passenger side. That way, I
>can be in either position in my wheelchair, without the hassle of
>transferring.
>
>It's wonderful, but here's the problem. I'll park in a handicapped spot,
>and come out to find someone parked in the striped area. That means that I
>have to wait until they come out to move their car, because I can't put the
>ramp down. Or, there will be no accessible spot available, so I'll park
>diagonally across two to give myself enough room to get out. Then another
>car will come park diagonally next to me, again leaving no space to get in.
>
>Has anyone come up with some solution to this problem? I've seen people
>with signs or stickers on their vans warning people about lifts, but I have
>no clue where to get them. Thanks again for any info...
>
>~Joy~
>
=========================================================================
Date: Mon, 25 Sep 2000 12:53:39 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
Mime-Version: 1.0
Content-Type: multipart/mixed; boundary="=_3860C205.30511464"
This is a MIME message. If you are reading this text, you may want to
consider changing to a mail reader or gateway that understands how to
properly handle MIME multipart messages.
--=_3860C205.30511464
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Content-Disposition: inline
Q. It doesnt affect me (yet) - no car...
- But if we/you park in two spots - is that illegal ?
- You might get fined yourself.
Gordon.
Gordon Stewart
Officer BusinessDirect
Takapuna
Inland Revenue Department
Ph 09-488-1011 ext 32864
Fax 09-488-1068
[log in to unmask]
--=_3860C205.30511464
Content-Type: text/x-vcard
Content-Transfer-Encoding: base64
Content-Disposition: attachment; filename="Gordon Stewart.vcf"
QkVHSU46VkNBUkQNClZFUlNJT046Mi4xDQpYLUdXVFlQRTpVU0VSDQpGTjpHb3Jkb24gU3Rld2Fy
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--=_3860C205.30511464--
=========================================================================
Date: Sun, 24 Sep 2000 21:29:32 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Laura Cleveland <[log in to unmask]>
Organization: Crossed Wires
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
So glad you are back Chester--hope to hear some good tales from you!
Laura
----- Original Message -----
From: "Chester Worwa" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, September 16, 2000 7:22 AM
Subject: I'm back
> I just wanted to let everyone know that I am back on
> the list again. I'm still looking for a job and
> hoping something will come soon. I had a rough job at
> camp this year, but I survived. But already it's
> getting cold. YUCK!!!! Only 58 for a high today.
> Hugs to all my friends especially the ones in
> Virginia.
>
>
> Chester Worwa
>
=========================================================================
Date: Mon, 25 Sep 2000 00:37:04 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Joy, another work around, of course, is to move the lift to the back of the
van. I'm sure that costs a lot of money, but it would solve the problem,
until ppl become aware.
mag
=========================================================================
Date: Mon, 25 Sep 2000 00:41:26 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: David Freels <[log in to unmask]>
Subject: necessity for double-blind controlled studies?
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Is there really a necessity for double-blind controlled studies for
cerebral palsy--children or adults? In other words, does this population have a
history of improvement from placebo?
If a group of 60-year olds with high blood pressure is told, "here's a pill
that will reduce your blood presure", and they all take it--and it's a
sugar pill--and 75% of them do actually have reduced blood pressure, then
it would be reasonable to say that group of patients had improvement from
placebo.
In a group of cp kids/adults aged 1 to 9 or 99 (or whatever range), have
they ever been given a drug or treatment or food or whatever and been told,
"At 10
treatments/dosages you'll be able to sit up on your own. At 20 treatments
you'll be able to stand unaided. At 30 treatments you'll be able to
walk."--and then has this group then in fact been given the equivalent of a
'sugar pill'--something of no theraputic value, something of no basis in
science--and has this population then improved from placebo?
If there is no history of repeated improvement under placebo, then is there
a necessity for double-blind controlled studies for Hyperbaric Oxygen
Therapy in treating cp?
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate of
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
[log in to unmask]
=========================================================================
Date: Mon, 25 Sep 2000 00:40:45 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 12:28:23 AM, [log in to unmask] writes:
<< When I'm your age, will I be a geezerette?
Cheers!
Carla
http://www.brunnet.net/terrier >>
Naw, Just cute sweet Carla
Bobby
=========================================================================
Date: Mon, 25 Sep 2000 00:50:25 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 1:33:12 AM, [log in to unmask] writes:
<< So glad you are back Chester--hope to hear some good tales from you!
Laura >>
Good hearing from you Laura. How is it going?
=========================================================================
Date: Mon, 25 Sep 2000 01:32:42 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
by decree, only men can be geezers. Women become earth mothers. ;-)
mag
=========================================================================
Date: Mon, 25 Sep 2000 01:44:15 -0400
Reply-To: [log in to unmask]
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. Stephen Margolis" <[log in to unmask]>
Subject: Technical Difficulties (MORE ~JOY~)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
J-O-Y
IT WORKS!
Email me directly if you need more help.
Now to Gordo. I've a less than satisfactory method. Still tinkering.
ISM
-
-----------------------------
Date: Sun, 24 Sep 2000 18:53:26 -0400
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Technical Difficulties (ATTN: JOY)
Joy the Quester,
I may have a solution for us!!!!!
Go to:
<http://maelstrom.stjohns.edu/CGI/wa.exe?SUBED1=3Dc-palsy&A=3D1&D=3D1&H=3D=
0&O=3DD&T=3D1>
Change (enter) Digest Format to "Nomime" (Traditional).
Good luck. ;-)
S.
MIME/NOMIME Toggles MIME options on and off. Currently only digests are
available in MIME format. If DIGEST mode is set, the user will receive a
MIME digest instead of the regular plain-text digest. Note that you must
have a mail client that supports MIME digests (Pegasus is one that does) =
or
this setting will do you little good. This option is automatically set =
at
subscribe time for users who send their subscription command using a
MIME-compliant agent, unless "Default-Options=3D NOMIME" is specified =
for the
list.
------------------------------
Date: Sun, 24 Sep 2000 19:02:03 -0400
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Re: Technical Difficulties
Dianne,
Thanks for the "clue." The problem may be solved. (At least there's
something to try.)
S.
----- Original Message -----
From: "Gerry and Dianne Adams" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 24, 2000 1:39 AM
Subject: Re: Technical Difficulties
> When I'm at work, and I want to check my personal e-mail account, I =
use
> www.mailstart.com. When I access my email thru their site, I get the
digest
> as one long text message. Doesn't work at all for pix or pgms, =
though.
>
> Dianne
> ----- Original Message -----
> From: I. STEPHEN MARGOLIS <[log in to unmask]>
> Sent: Saturday, September 23, 2000 8:23 PM
> Subject: Re: Technical Difficulties
>
>
> > Gordon,
> >
> > Thanks.
> >
> > That may have been the way I was doing.
> >
> > Ken--oh, hi Ken--may have another way. Or Deri.
> >
> > Where's Deri?
> >
> > S.
> >
>
SNIP-SNIP
-----Original Message-----
From: St. John's University Cerebral Palsy List =
[mailto:[log in to unmask]]On Behalf Of Automatic digest =
processor
Sent: Monday, September 25, 2000 12:04 AM
To: Recipients of C-PALSY digests
Subject: C-PALSY Digest - 23 Sep 2000 to 24 Sep 2000 (#2000-267)
There are 15 messages totalling 708 lines in this issue.
Topics of the day:
1. Skin Irritation
2. Technical Difficulties (2)
3. Hello
4. Parking Lot Solutions? (4)
5. Question for Beth
6. Technical Difficulties (ATTN: JOY)
7. EEEK!!! Middle-aged (4)
8. I'm back
End of C-PALSY Digest - 23 Sep 2000 to 24 Sep 2000 (#2000-267)
**************************************************************
=========================================================================
Date: Mon, 25 Sep 2000 07:12:39 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
if you have a cell phone, get your local precient number and when ever you
find someone in the stiped area (even if not your space) call and get the
police to ticket them.
get their attention and then they will learn.
-----Original Message-----
From: - Joy - [mailto:[log in to unmask]]
Sent: Sunday, September 24, 2000 3:02 PM
To: [log in to unmask]
Subject: Parking Lot Solutions?
Wow, seems like I'm bombarding the list with a lot of questions lately.
Anyhow, as some of you might know, for my 16th birthday, my parents gave me
an adapted Ford Windstar. It has an automatic ramp, and only one seat in
the front, which can be shifted from driver to passenger side. That way, I
can be in either position in my wheelchair, without the hassle of
transferring.
It's wonderful, but here's the problem. I'll park in a handicapped spot,
and come out to find someone parked in the striped area. That means that I
have to wait until they come out to move their car, because I can't put the
ramp down. Or, there will be no accessible spot available, so I'll park
diagonally across two to give myself enough room to get out. Then another
car will come park diagonally next to me, again leaving no space to get in.
Has anyone come up with some solution to this problem? I've seen people
with signs or stickers on their vans warning people about lifts, but I have
no clue where to get them. Thanks again for any info...
~Joy~
=========================================================================
Date: Mon, 25 Sep 2000 07:16:02 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: EEEK!!! Middle-aged
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
in the central alabama area, the female counterpart to a geezer is an "old
biddy."
-----Original Message-----
From: Bobby G. Greer [mailto:[log in to unmask]]
Sent: Sunday, September 24, 2000 8:08 PM
To: [log in to unmask]
Subject: Re: EEEK!!! Middle-aged
In a message dated 9/24/00 11:22:39 PM, [log in to unmask] writes:
<< Im only 31 - Am I middle-age ??
Gordon.
>>
Gordon,
You are a loooong way from middle age! try 45-55.
At 62(like me) you are entering "Geezerhood"
Bobby
Someone said, "You're only as old as you feel. If that's the case, why am I
not covered by Medicare??"
=========================================================================
Date: Mon, 25 Sep 2000 07:54:13 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Joy C. Liebeskind" <[log in to unmask]>
Subject: Re: Parking Lot Solutions?
Mime-version: 1.0
Content-type: text/plain; charset="US-ASCII"
Content-transfer-encoding: 7bit
In some states that presents an insurance problem..Here in Ct most Co don't
want a van with the ramp in back-because a small accident means big repairs
& you are most likely to be hit from behind...Joy
----------
>From: Magenta Raine <[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Parking Lot Solutions?
>Date: Mon, Sep 25, 2000, 12:37 AM
>
>Joy, another work around, of course, is to move the lift to the back of the
>van. I'm sure that costs a lot of money, but it would solve the problem,
>until ppl become aware.
>
>mag
>
=========================================================================
Date: Mon, 25 Sep 2000 06:47:44 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: can anyone advise?
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
mailto:[log in to unmask]
this is a listserv of ada lawyers. they may have advice.
-----Original Message-----
From: Beth Anderson [mailto:[log in to unmask]]
Sent: Friday, September 22, 2000 4:13 PM
To: [log in to unmask]
Subject: Re: can anyone advise?
Michael and Ken, that is pretty much what I told him before I asked you all,
I
guess I'm also wondering if any ADA laws would be applicable here in his
favor..... at any rate, he'd have to get a lawyer - and if he's not had a
paycheck since June - he'd have to get one that'll work for 'peanuts'......
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Mon, 25 Sep 2000 06:56:13 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Technical Difficulties
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
i do not handle the systems here, but, i think this is probably just how
outlook works, but, mayby there is an option somewhere that can be set.
maybe someone can tell us.
-----Original Message-----
From: - Joy - [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 12:29 AM
To: [log in to unmask]
Subject: Technical Difficulties
Hopefully one of you list gurus can help me out with this...
My computer was in for repairs last week, so I had to read my e-mail using
web based mail. When I received the digests there, they had the title of
each message, then if you scrolled down, they had the full text of each
message, separated by a bar.
Now that I'm back on my computer, using Outlook Express, I only get a list
of subjects, which show up as clickable links. You have to click on each
one for the text of each separate message. I really liked having the full
text display automatically. It was much faster and easier to read.
Is there some setting I need to change to get my digests to appear the first
way? I really appreciate the help. Thanks!
~Joy~
=========================================================================
Date: Mon, 25 Sep 2000 06:51:06 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
you know more about texas than i. all i know is hearsay. i did like san
antonio when i visited. hated huston, liked the area south of dallas.
-----Original Message-----
From: Bobby G. Greer [mailto:[log in to unmask]]
Sent: Friday, September 22, 2000 7:23 PM
To: [log in to unmask]
Subject: Re: Hello
In a message dated 9/22/00 7:26:34 PM, [log in to unmask] writes:
<< hmmm... and i thought driving in snow was hard. virginia does not get
as
much snow as buffelo, but, when i lived in that area there was snow on the
ground for the first two weeks and there was snow many times. i >>
I've livedin NYC and Northern Virginia and Ken is correct, there's more in
Virginia.
Brownsville area, you gotta be kidding!!! San Antonio or East Texas such as
Commerce, Tyler or Longview.
Bobby
=========================================================================
Date: Mon, 25 Sep 2000 07:04:16 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
i get stiff if the weather changes. damp cool weather is worst.
-----Original Message-----
From: Gordon Stewart [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 2:42 PM
To: [log in to unmask]
Subject: Re: Hello
--- "Barber, Kenneth L." <[log in to unmask]> wrote: >
warmer than what? i live in georgia.
>
Stupid question here :-
Do you get stiff if youre cold ?
Gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Mon, 25 Sep 2000 09:45:06 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Salome (Was: Article in New Mobility)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Ow! Ow! Ow! I had those all the time as a kid. Ow!
My folks managed to avoid Helene, but Gordon kept 'em worried a bit.
They're at water's edge and the house is 10' above sea level. Dad said the
boat dock/patio was underwater, but the storm surge barely crested the
seawall. Pretty lucky, I guess.
Hurricanes I think I could deal with because of the warning time.
Tornadoes, on the other hand... Xenia, Ohio (about 50 miles south) got
popped hard last week by an F-4 tornado (1 dead, about 100 injured). The
same town was virtually destroyed 26 years ago in 1974 by another F-4.
Ironically, only one of six tornado sirens was operational last week because
they were installing upgraded software at the time!
-Kyle
-----Original Message-----
From: Elizabeth H. Thiers [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 9:38 AM
To: [log in to unmask]
Subject: Re: Salome (Was: Article in New Mobility)
Kyle, you can keep the sinus infection. I get enough ear infections during
the year, thank you very much...
Beth the OT (studiously avoiding two hurricanes)
=========================================================================
Date: Mon, 25 Sep 2000 10:01:58 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: Skin Irritation
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Joy
A couple of things to try....
It may be a fungal/ yeast problem. You could try an athlete's foot cream - =
it'll clear the rash in a couple of days if this is it. Everything else is =
usually helped by a cortisone type preparation or an anti-bacterial =
ointment like polysporin.=20
If you want to try the diaper rash cream route - Balmex is the BEST! We =
can't buy it here in Canada so I have friends pick it up for me in the =
States so I never run out. I use it for any kind of minor skin irritation =
for the boys and us. Usually works overnight.
Once the problem is cleared up I would recommend corn starch to keep the =
area dry : cheap, natural, effective. Forget about commercial powders and =
talcs, even those claiming to be made with corn starch - not enough in =
there to matter and you don't need the other stuff that's in it!=20
Good luck!
Yvonne
>>> [log in to unmask] 09/24/00 12:43AM >>>
Thanks to everyone for the tips. And no, I'm not offended about the =
diaper
rash idea... My theory is, go with what works. I've learned not to be
sensitive about titles. ; )
~Joy~
----- Original Message -----
From: "Elizabeth H. Thiers" <[log in to unmask]>
Sent: Saturday, September 23, 2000 9:12 AM
Subject: Re: Skin Irritation
> Have you tried baby powder? or you can (and don't take this the wrong =
way
> please) try the lotion for diaper rash and then once the rash is gone =
use
> powder (talc, corn starch) to keep the area dry. It sounds like you may
> getting irritation from the underwear rubbing against your skin or you =
may
> be sweating and the area is moist all the time and contributing to skin
> break down.
>
> Hope that helps.
>
> Beth the OT
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of - Joy -
> > Sent: Friday, September 22, 2000 11:41 PM
> > To: [log in to unmask]
> > Subject: Skin Irritation
> >
> >
> > I'm not sure if this topic is too sensitive for the list. If it is, I
> > apologize, but I figured you guys might be able to help.
> >
> > I wear absorbent underwear while at school or in an unfamiliar
> > place. I can
> > control my bladder fully, but it makes my life a thousand times =
easier,
in
> > that I don't have to worry about finding accessible bathrooms or =
taking
a
> > huge chunk of time away from what I'm doing.
> >
> > Recently, the skin on my inner thighs has been scaly, red, puffy, and
> > irritated. There are a few pimplish looking sores. It's very =
painful.
> > I've tried ice, Vagisil, moisturizer, plain old soap and water...
> > everything
> > we can think of. As always, I'm really careful about drying the area,
but
> > nothing seems to help. I'm thinking the underwear might be too tight,
but
> > I'm afraid of switching to a larger size, and not having a tight =
enough
> > seal.
> >
> > Has anyone dealt with this problem? I'd really appreciate any help.
Oh,
> > and I'd like to keep this between members of the list, if possible. =
I'm
> > somewhat self-conscious about it, and no one besides my parents knows.
> >
> > ~Joy~
> >
>
=========================================================================
Date: Mon, 25 Sep 2000 10:10:30 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
That's not possible for you, Gordon. It's my understanding that you can't
even "ponder" owning/using a firearm in NZ or neighbor Australia, right?
Unless your speaking of an aboriginal blowgun, eh? ;>)
-Kyle
-----Original Message-----
From: Gordon Stewart [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 2:37 PM
To: [log in to unmask]
Subject: Re: purpose
--- "Barber, Kenneth L." <[log in to unmask]> wrote: > Ever
think your sole purpose in life is to serve as
> a warning to someone
> else?
yep. - If they get in my way, shoot em (after 1
warning of course...)
- <not literally - any cops here ??>
Gordon.
[log in to unmask]
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Mon, 25 Sep 2000 10:13:26 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Is that why my wife keeps the house thermostat at 50 deg F.? And to think I
just assumed she wanted to save money!
-----Original Message-----
From: Chester Worwa [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 5:02 PM
To: [log in to unmask]
Subject: Re: Hello
I get very stiff when I'm cold.
--- Gordon Stewart <[log in to unmask]>
wrote:
> --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> warmer than what? i live in georgia.
> >
>
> Stupid question here :-
>
> Do you get stiff if youre cold ?
>
> Gordon.
>
>
> =====
> [log in to unmask]
> [log in to unmask]
> My ICQ number is :- 83440115 http://www.icq.com
> gordonistewart_nz (at) hotmail (dot) com
>
>
____________________________________________________________
> Do You Yahoo!?
> Get your free @yahoo.co.uk address at
> http://mail.yahoo.co.uk
> or your free @yahoo.ie address at
http://mail.yahoo.ie
=========================================================================
Date: Mon, 25 Sep 2000 10:15:09 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: joanne <[log in to unmask]>
Subject: Re: Hello
X-To: [log in to unmask]
MIME-Version: 1.0
Content-Type: Multipart/Mixed;
boundary="------------Boundary-00=_9X4GQL80000000000000"
--------------Boundary-00=_9X4GQL80000000000000
Content-Type: Multipart/Alternative; boundary="------------Boundary-00=_AX4GLVC0000000000000"
--------------Boundary-00=_AX4GLVC0000000000000
Content-Type: Text/Plain
Content-Transfer-Encoding: quoted-printable
Better a cold house then having her go around humming "I can't get no sat=
isfaction " all day long
-------Original Message-------
From: Cleveland, Kyle E.=20
To: [log in to unmask]
Subject: Re: Hello
Is that why my wife keeps the house thermostat at 50 deg F.? And to thin=
k I
just assumed she wanted to save money!
-----Original Message-----
From: Chester Worwa [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 5:02 PM
To: [log in to unmask]
Subject: Re: Hello
I get very stiff when I'm cold.
--- Gordon Stewart <[log in to unmask]>
wrote:
> --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> warmer than what? i live in georgia.
> >
>
> Stupid question here :-
>
> Do you get stiff if youre cold ?
>
> Gordon.
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<DIV>Better a cold house then having her go around humming "I can't=
get no=20
satisfaction " all day long</DIV>
<DIV> </DIV>
<DIV><I>-------Original Message-------</I></DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV dir=3Dltr id=3Dfromshowfield><U><I>From:</I></U><B> Cleveland,=
Kyle E.=20
<[log in to unmask]></B></DIV>
<DIV dir=3Dltr id=3Dtoshowfield><U><I>To:</I></U><B>=20
[log in to unmask]</B></DIV>
<DIV dir=3Dltr id=3Dsubjectshowfield><U><I>Subject:</I></U><B> Re:=20
Hello</B></DIV><BR>Is that why my wife keeps the house thermostat a=
t 50=20
deg F.? And to think I<BR>just assumed she wanted to save=20
money!<BR><BR>-----Original Message-----<BR>From: Chester Worwa [<A=
=20
href=3D"mailto:[log in to unmask]">mailto:[log in to unmask]</A>]<BR>Se=
nt:=20
Saturday, September 23, 2000 5:02 PM<BR>To: <A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]
OHNS.EDU</A><BR>Subject:=20
Re: Hello<BR><BR><BR>I get very stiff when I'm cold.<BR><BR>--- Gor=
don=20
Stewart <<A=20
href=3D"mailto:[log in to unmask]">gordonistewart_nz@YAH=
OO.CO.UK</A>><BR>wrote:<BR>>=20
--- "Barber, Kenneth L." <<A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A>> wrote: ><BR>&g=
t; warmer=20
than what? i live in georgia.<BR>> ><BR>><BR>> Stupid q=
uestion=20
here :-<BR>><BR>> Do you get stiff if youre cold ?<BR>><BR=
>>=20
Gordon.<BR><A href=3D"http://mail.yahoo.ie"><BR><BR></A></TD>
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=========================================================================
Date: Mon, 25 Sep 2000 09:21:20 -0500
Reply-To: Jay Hill <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Jay Hill <[log in to unmask]>
Subject: Introduction
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Greetings everyone: =20
My name is Jay Hill and I am a Physical Therapist Assistant in =
Arkansas. I am currently doing PRN in Pediatrics and do enjoy it very =
much. My training consisted of a pediatric rotation from which I learned =
a lot about working with this population. I am wanting to grow in my =
skills as a rehab provider to this population and hope to gain more =
insight about this disorder from this list...Thanks
Jay Hill
=========================================================================
Date: Mon, 25 Sep 2000 10:39:32 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: HBOT/SPECT-scans
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David
We did a SPECT scan before his first HBO series but he was so miserable =
and sick from the sedation we didn't have a second one done. After all, =
the purpose of the treatments was to see improvement in quality of life, =
which we did. One of the reasons we like HBO is that it is pleasant for =
him. The SPECT scan experience was not! The scientist in me regrets we =
don't have imaging evidence to support Anthony's clinical improvements but =
the Mom in me is okay with that.
Yvonne
>>> [log in to unmask] 09/20/00 01:20AM >>>
Yvonne,
Did Anthony have SPECT-scans before HBOT and again after HBOT?
I have never claimed that HBOT is a claim for cp, only that it is a proven =
treatment verified by SPECT-scan imaging.
=========================================================================
Date: Mon, 25 Sep 2000 10:49:39 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Bruce notte <[log in to unmask]>
Subject: Funding for theraputic horseback riding
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Hello,
My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
live in New Jersey and I am interested in finding out if anyone has been
successful in getting either their health insurance company or the DDD
to pay for hippo therapy (therapeutic horseback riding). My son wants to
go but it costs $85 per hourly session. (ouch).
Thanks!
Joyce
=========================================================================
Date: Mon, 25 Sep 2000 11:02:07 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: acronyms
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>>> [log in to unmask] 09/20/00 03:51PM >>>
Something that troubles me deeply is when a parent obtains their own
identity through their child(ren)'s medical problems. It's kind of like
soccer parents who obtain some sense of self-worth because their kids do
well on the playing field. I guess because these are inundated with large
amounts of medical data on a daily basis, their vocabulary tends to =
revolve
around the ubiquitous acronyms of medicalese. Methinks it's a casualty of
our "information age."
To those parents who might be offended by this--speaking as one who has
passed through the fire of growing up with a disability--your children =
will
have a hard enough time "fitting in" without the albatross of one acronym =
or
another slung 'round their necks.
Respectfully,
Kyle>>>>>
Kyle (& others)
I felt I should address this as it was probably my tag line from my HBOT =
(another acronym, lol) that sparked this thread. I usually don't use that =
on this list for exactly that reason.=20
On other lists it is helpful to share such info as it helps people =
identify with one another. Another parent of a preemie, one interested in =
HBO, one with multiples or one who may have lost a child will know that =
they can connect with me to discuss shared experiences. It is really just =
a little recap of my intro.=20
Your point is a good one though about getting caught up in the jargon. =
From Day 1 with my children (triplets born 10 weeks early each weighing 3 =
lbs or under) we were innundated with medical jargon. For the first 3 =
weeks we were treated as visitors rather than parents in the neo-natal =
ICU. We had to learn the lingo or risk not knowing what was going on with =
our sons. I am a nurse but that didn't help much since I work in adult =
psychiatry - about as far removed from apnea monitors and incubators as =
you can get, lol. We had to make a conscious effort to stop using a lot of =
the terms and "medicalese" once the boys were finally allowed to come =
home. Now aside from talking to docs and therapists and on other listserves=
, Anthony just has CP. In fact, sometimes I even forget that (it's just =
the way he is), so he's just a typical (dare I say normal?) 3 year-old! =
Which is another whole tag line of acronyms.
Yvonne
Mommy to Anthony (3 years old...$!#!*!@$^**)
=========================================================================
Date: Mon, 25 Sep 2000 11:15:24 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: David Freels <[log in to unmask]>
Subject: Re: HBOT/SPECT-scans
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
The second SPECT-scan provides very convincing evidence of the efficacy of
Hyperbaric Oxygen Therapy--which is very helpful when seeking reimbursement
from 3rd party payors. If reimbursement is not an issue, then I wouldn't
worry about a second SPECT-scan.
>David
>
>We did a SPECT scan before his first HBO series but he was so miserable =
>and sick from the sedation we didn't have a second one done. After all, =
>the purpose of the treatments was to see improvement in quality of life, =
>which we did. One of the reasons we like HBO is that it is pleasant for =
>him. The SPECT scan experience was not! The scientist in me regrets we =
>don't have imaging evidence to support Anthony's clinical improvements but =
>the Mom in me is okay with that.
>
>Yvonne
>
>>>> [log in to unmask] 09/20/00 01:20AM >>>
>Yvonne,
>
>Did Anthony have SPECT-scans before HBOT and again after HBOT?
>
>I have never claimed that HBOT is a claim for cp, only that it is a proven =
>treatment verified by SPECT-scan imaging.
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate of
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
[log in to unmask]
=========================================================================
Date: Mon, 25 Sep 2000 11:48:45 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: Hello
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
LOL, Joanne!=20
Yvonne
(turning down the thrmostat as soon as I get home tonight...)
>>> [log in to unmask] 09/25/00 10:15AM >>>
Better a cold house then having her go around humming "I can't get no =
satisfaction " all day long
-------Original Message-------
From: Cleveland, Kyle E.=20
To: [log in to unmask]
Subject: Re: Hello
Is that why my wife keeps the house thermostat at 50 deg F.? And to think =
I
just assumed she wanted to save money!
-----Original Message-----
From: Chester Worwa [mailto:[log in to unmask]]=20
Sent: Saturday, September 23, 2000 5:02 PM
To: [log in to unmask]
Subject: Re: Hello
I get very stiff when I'm cold.
--- Gordon Stewart <[log in to unmask]>
wrote:
> --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> warmer than what? i live in georgia.
> >
>
> Stupid question here :-
>
> Do you get stiff if youre cold ?
>
> Gordon.
=========================================================================
Date: Mon, 25 Sep 2000 12:02:26 -0400
Reply-To: joanne <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: joanne <[log in to unmask]>
Subject: Re: HBOT/SPECT-scans double blind studies
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
> >
> >>>> [log in to unmask] 09/20/00 01:20AM >>>
> >Yvonne,
> >
> >Did Anthony have SPECT-scans before HBOT and again after HBOT?
> >
> >I have never claimed that HBOT is a claim for cp, only that it is a
proven =
> >treatment verified by SPECT-scan imaging.
But DO SPECT scans rally verify the treatment of HBOT. I think one of the
things that would be put to rest in the HBOT discussion is which way
verifies the treatment. I would compare the before and after SPECT scans
with a real HBO session with pressurized 02, a mock hbo session with just 02
( hope that makes sense), just regular cannula 02, after an hour of just
regular PT/OT, and maybe something so unrealated as an hour of listening to
Mozart music.
It could be the SPECT is just a money maker and not a really reliable test
of effectiveness.
My true test would be a verified impartial observer who measures change in
range of motion, vocialization, new skills learned etc ( or what ever target
area you want tested). This would also show that maybe HBO isn't that good
for say speech but is good to improve sleep patterns or digestion.
Joanne
>
>
>
>
>
>
>
>
>
>
> "I have sworn upon the altar of God, eternal hostility against every form
> of tyranny over the mind of man." --Thomas Jefferson, an early advocate of
> Hyperbaric Oxygen Therapy.
> ----------------------------
> David Freels
> 2948 Windfield Circle
> Tucker, GA 30084-6714
> USA
> 770/491-6776 (phone and fax)
> [log in to unmask]
>
=========================================================================
Date: Mon, 25 Sep 2000 12:13:23 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Joy C. Liebeskind" <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
Mime-version: 1.0
Content-type: text/plain; charset="US-ASCII"
Content-transfer-encoding: 7bit
Joyce--Don't know if this helps you but here in Ct BESB ( Bd. of Ed Services
for the Blind ) will fund recreation activities--so many families get hippo
therapy covered by them if Ins. won't pay...the down side child must have
vission issues that qualify them for services.....
Joy- Mom to Sarah almost 13, Cp, Mosaic for Turners Syndrome, & Bilateral
cataracts ( 1 IOl now) And Joshua -11 years old- SID, OCD, ADHD
----------
>From: Bruce notte <[log in to unmask]>
>To: [log in to unmask]
>Subject: Funding for theraputic horseback riding
>Date: Mon, Sep 25, 2000, 10:49 AM
>
>Hello,
>
>My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
>live in New Jersey and I am interested in finding out if anyone has been
>successful in getting either their health insurance company or the DDD
>to pay for hippo therapy (therapeutic horseback riding). My son wants to
>go but it costs $85 per hourly session. (ouch).
>
>Thanks!
>
>Joyce
>
=========================================================================
Date: Mon, 25 Sep 2000 11:18:02 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
All I can say is I wish I could hot OR cold. LOL
Bobby
Yvonne Craig wrote:
> LOL, Joanne!=20
>
> Yvonne
> (turning down the thrmostat as soon as I get home tonight...)
>
> >>> [log in to unmask] 09/25/00 10:15AM >>>
> Better a cold house then having her go around humming "I can't get no =
> satisfaction " all day long
>
> -------Original Message-------
>
> From: Cleveland, Kyle E.=20
> To: [log in to unmask]
> Subject: Re: Hello
>
> Is that why my wife keeps the house thermostat at 50 deg F.? And to think =
> I
> just assumed she wanted to save money!
>
> -----Original Message-----
> From: Chester Worwa [mailto:[log in to unmask]]=20
> Sent: Saturday, September 23, 2000 5:02 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
> I get very stiff when I'm cold.
>
> --- Gordon Stewart <[log in to unmask]>
> wrote:
> > --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> > warmer than what? i live in georgia.
> > >
> >
> > Stupid question here :-
> >
> > Do you get stiff if youre cold ?
> >
> > Gordon.
=========================================================================
Date: Mon, 25 Sep 2000 14:26:54 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Man, I hear that!
-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Monday, September 25, 2000 7:04 AM
To: [log in to unmask]
Subject: Re: Hello
i get stiff if the weather changes. damp cool weather is worst.
-----Original Message-----
From: Gordon Stewart [mailto:[log in to unmask]]
Sent: Saturday, September 23, 2000 2:42 PM
To: [log in to unmask]
Subject: Re: Hello
--- "Barber, Kenneth L." <[log in to unmask]> wrote: >
warmer than what? i live in georgia.
>
Stupid question here :-
Do you get stiff if youre cold ?
Gordon.
=====
[log in to unmask] [log in to unmask]
My ICQ number is :- 83440115 http://www.icq.com
gordonistewart_nz (at) hotmail (dot) com
____________________________________________________________
Do You Yahoo!?
Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk
or your free @yahoo.ie address at http://mail.yahoo.ie
=========================================================================
Date: Mon, 25 Sep 2000 14:33:57 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Bobby
I'll say this once...funny-shaped blue pill. Makes a great place to stack
doughnuts if mamma suddenly don't wanna go...if you get my drift.
-Kyle
-----Original Message-----
From: greer.bobby [mailto:[log in to unmask]]
Sent: Monday, September 25, 2000 12:18 PM
To: [log in to unmask]
Subject: Re: Hello
All I can say is I wish I could hot OR cold. LOL
Bobby
Yvonne Craig wrote:
> LOL, Joanne!=20
>
> Yvonne
> (turning down the thrmostat as soon as I get home tonight...)
>
> >>> [log in to unmask] 09/25/00 10:15AM >>>
> Better a cold house then having her go around humming "I can't get no =
> satisfaction " all day long
>
> -------Original Message-------
>
> From: Cleveland, Kyle E.=20
> To: [log in to unmask]
> Subject: Re: Hello
>
> Is that why my wife keeps the house thermostat at 50 deg F.? And to think
=
> I
> just assumed she wanted to save money!
>
> -----Original Message-----
> From: Chester Worwa [mailto:[log in to unmask]]=20
> Sent: Saturday, September 23, 2000 5:02 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
> I get very stiff when I'm cold.
>
> --- Gordon Stewart <[log in to unmask]>
> wrote:
> > --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> > warmer than what? i live in georgia.
> > >
> >
> > Stupid question here :-
> >
> > Do you get stiff if youre cold ?
> >
> > Gordon.
=========================================================================
Date: Mon, 25 Sep 2000 15:59:28 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Kelly Clark <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hello Joyce,
My son Rodney goes through horseback riding through shriners here where
we live. Well here it's called Care for Children but it's sponsered by
shriners I think. Not sure. I can give you the phone number it's
814-362-4621. The lady who may be able to help you is Anne Ambuske. You
can tell her that Kelly Rodney's Mom told you to call. I don't know if this
will be of any help since we are in Pa but it's worth a shot.
Kelly
Bruce notte wrote:
> Hello,
>
> My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
> live in New Jersey and I am interested in finding out if anyone has been
> successful in getting either their health insurance company or the DDD
> to pay for hippo therapy (therapeutic horseback riding). My son wants to
> go but it costs $85 per hourly session. (ouch).
>
> Thanks!
>
> Joyce
=========================================================================
Date: Mon, 25 Sep 2000 17:03:31 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: Re: Technical Difficulties (ATTN: JOY)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks, Stephen! Let's hope that worked. It's amazing how the little
things in life bother me the most. ; )
~Joy~
----- Original Message -----
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sent: Sunday, September 24, 2000 6:53 PM
Subject: Technical Difficulties (ATTN: JOY)
> Joy the Quester,
>
> I may have a solution for us!!!!!
>
> Go to:
>
<http://maelstrom.stjohns.edu/CGI/wa.exe?SUBED1=c-palsy&A=1&D=1&H=0&O=D&T=1>
>
> Change (enter) Digest Format to "Nomime" (Traditional).
>
> Good luck. ;-)
>
> S.
>
>
> MIME/NOMIME Toggles MIME options on and off. Currently only digests are
> available in MIME format. If DIGEST mode is set, the user will receive a
> MIME digest instead of the regular plain-text digest. Note that you must
> have a mail client that supports MIME digests (Pegasus is one that does)
or
> this setting will do you little good. This option is automatically set at
> subscribe time for users who send their subscription command using a
> MIME-compliant agent, unless "Default-Options= NOMIME" is specified for
the
> list.
>
=========================================================================
Date: Mon, 25 Sep 2000 17:37:13 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 6:30:48 PM, [log in to unmask] writes:
<< Bobby
I'll say this once...funny-shaped blue pill. Makes a great place to stack
doughnuts if mamma suddenly don't wanna go...if you get my drift.
-Kyle >>
Being hypertensive and knowing some side effects vis a vis the old
cardiovascular system, I'll pass on the blue pill. Don't need a Nelson
Rockefeller. From teaching my Alcohol & Drug course, amyl nitrite will
enhance the romance fo menn and women if you are into that. Any vasodilator
will enhance the "effect".
Bobby
=========================================================================
Date: Mon, 25 Sep 2000 18:02:29 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Fw: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
That's the way I want to go Bobby--the NR way!
And they won't need to wipe the smile off my face before they call the
coroner
S.
>
> ----- Original Message -----
> From: "Bobby G. Greer" <[log in to unmask]>
> To:
> Sent: Monday, September 25, 2000 5:37 PM
> Subject: Re: Hello
>
>
> > In a message dated 9/25/00 6:30:48 PM, [log in to unmask]
writes:
> >
> > << Bobby
> >
> > I'll say this once...funny-shaped blue pill. Makes a great place to
stack
> > doughnuts if mamma suddenly don't wanna go...if you get my drift.
> >
> > -Kyle >>
> >
> > Being hypertensive and knowing some side effects vis a vis the old
> > cardiovascular system, I'll pass on the blue pill. Don't need a Nelson
> > Rockefeller. From teaching my Alcohol & Drug course, amyl nitrite will
> > enhance the romance fo menn and women if you are into that. Any
> vasodilator
> > will enhance the "effect".
> >
> > Bobby
> >
> >
>
=========================================================================
Date: Mon, 25 Sep 2000 18:05:59 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Re: Technical Difficulties (ATTN: JOY)
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
You're welcome. Thanks for noting and responding. ;-)
The change works.
Not so little irritation when you cope with opening each email in a day of
many posts, let trace our CP threads. :-) "Open text" reads easier.
Finding the "little" things irritating is part of what makes us human. The
"big" moments usually compel our better angels.
S.
> ----- Original Message -----
> From: "- Joy -" <[log in to unmask]>
> To: <>
> Sent: Monday, September 25, 2000 5:03 PM
> Subject: Re: Technical Difficulties (ATTN: JOY)
>
>
> > Thanks, Stephen! Let's hope that worked. It's amazing how the little
> > things in life bother me the most. ; )
> >
> > ~Joy~
> >
> > ----- Original Message -----
> > From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
> > Sent: Sunday, September 24, 2000 6:53 PM
> > Subject: Technical Difficulties (ATTN: JOY)
> >
> >
> > > Joy the Quester,
> > >
> > > I may have a solution for us!!!!!
> > >
> > > Go to:
> > >
> >
>
<http://maelstrom.stjohns.edu/CGI/wa.exe?SUBED1=c-palsy&A=1&D=1&H=0&O=D&T=1>
> > >
> > > Change (enter) Digest Format to "Nomime" (Traditional).
> > >
> > > Good luck. ;-)
> > >
> > > S.
> > >
> > >
> > > MIME/NOMIME Toggles MIME options on and off. Currently only digests
are
> > > available in MIME format. If DIGEST mode is set, the user will receive
a
> > > MIME digest instead of the regular plain-text digest. Note that you
must
> > > have a mail client that supports MIME digests (Pegasus is one that
does)
> > or
> > > this setting will do you little good. This option is automatically set
> at
> > > subscribe time for users who send their subscription command using a
> > > MIME-compliant agent, unless "Default-Options= NOMIME" is specified
for
> > the
> > > list.
>
=========================================================================
Date: Mon, 25 Sep 2000 18:09:34 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Is "that" how you carry them into the office?
S
.
DELETE 'NOSPAM" WHEN REPLYING
----- Original Message -----
From: "Cleveland, Kyle E." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, September 25, 2000 2:33 PM
Subject: Re: Hello
> Bobby
>
> I'll say this once...funny-shaped blue pill. Makes a great place to stack
> doughnuts if mamma suddenly don't wanna go...if you get my drift.
>
> -Kyle
>
> -----Original Message-----
> From: greer.bobby [mailto:[log in to unmask]]
> Sent: Monday, September 25, 2000 12:18 PM
> To: [log in to unmask]
> Subject: Re: Hello
>
>
> All I can say is I wish I could hot OR cold. LOL
>
> Bobby
>
> Yvonne Craig wrote:
>
> > LOL, Joanne!=20
> >
> > Yvonne
> > (turning down the thrmostat as soon as I get home tonight...)
> >
> > >>> [log in to unmask] 09/25/00 10:15AM >>>
> > Better a cold house then having her go around humming "I can't get no =
> > satisfaction " all day long
> >
> > -------Original Message-------
> >
> > From: Cleveland, Kyle E.=20
> > To: [log in to unmask]
> > Subject: Re: Hello
> >
> > Is that why my wife keeps the house thermostat at 50 deg F.? And to
think
> =
> > I
> > just assumed she wanted to save money!
> >
> > -----Original Message-----
> > From: Chester Worwa [mailto:[log in to unmask]]=20
> > Sent: Saturday, September 23, 2000 5:02 PM
> > To: [log in to unmask]
> > Subject: Re: Hello
> >
> > I get very stiff when I'm cold.
> >
> > --- Gordon Stewart <[log in to unmask]>
> > wrote:
> > > --- "Barber, Kenneth L." <[log in to unmask]> wrote: >
> > > warmer than what? i live in georgia.
> > > >
> > >
> > > Stupid question here :-
> > >
> > > Do you get stiff if youre cold ?
> > >
> > > Gordon.
>
>
=========================================================================
Date: Mon, 25 Sep 2000 18:23:43 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Technical Difficulties--Gordon
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Gordon,
So far, the best I've figured is calling for the most immediate issue of the
monthly archive. This will be "current" from the point of "shipment" plus
everything prior through the month's start.
The group's collective wisdom may arrive at "instructions" to get
Maelstrom to recognize requests for the most "current" 100.
Otherwise you'll need to rough it.
The specific monthly archive log can be obtained by requesting an Index.
Hope this helps.
S.
----- Original Message -----
To: "I. Stephen Margolis" <[log in to unmask]>
Sent: Monday, September 25, 2000 1:40 AM
Subject: Re: Output of your job "ismarki"
> > Get CO-PALSY LOG0009
> File "C-PALSY LOG0009" has been mailed to you under separate cover.
>
> Summary of resource utilization
> -------------------------------
> CPU time: 0.860 sec Device I/O: 184
> Overhead CPU: N/A Paging I/O: 0
> CPU model: AlphaServer 1000A 5/400 (640M)
> DASD model: 4 Member RAID 0+1
> Job origin: [log in to unmask]
>
=========================================================================
Date: Mon, 25 Sep 2000 18:37:57 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Laura Cleveland <[log in to unmask]>
Organization: Crossed Wires
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hey Bobby!
Hectic, but good. Have a cream puff job, but we still aren't in the groove
yet. Teaching is the easiest part of my day.
Kyle and I have planned a pleasure trip to Boston in Oct. and a not so
pleasurable trip to Houston to MD Anderson Cnacer Hospital in December. I
want to see an expert in the field--the word "treatment" keeps coming up, so
I want to get the guru of CLL.
Thanks for asking. How is your clan, your job, your life?
Fill me in.
Laura
----- Original Message -----
From: "Bobby G. Greer" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, September 25, 2000 12:50 AM
Subject: Re: I'm back
> In a message dated 9/25/00 1:33:12 AM, [log in to unmask] writes:
>
> << So glad you are back Chester--hope to hear some good tales from you!
> Laura >>
>
> Good hearing from you Laura. How is it going?
>
=========================================================================
Date: Mon, 25 Sep 2000 18:52:11 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Karen K. Perlow" <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
a not so
pleasurable trip to Houston to MD Anderson Cnacer Hospital in December.
Laura,
This is the second time in 2 weeks I have heard good things about that
hospital.A chat buddy's daughter in law also has Leukemia.She has been sent
there for state of the art treatment.
Karen :)
=========================================================================
Date: Mon, 25 Sep 2000 21:26:14 -0300
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "A.Villaflor" <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
please,unsuscribe me from this list I can not afford internet here!!! its
too expensive for me, so i will not be on line again! thanks for all you
have written!!!-----Original Message-----
De: Karen K. Perlow <[log in to unmask]>
Para: [log in to unmask] <[log in to unmask]>
Fecha: Lunes 25 de Septiembre de 2000 19:54
Asunto: Re: I'm back
>a not so
>pleasurable trip to Houston to MD Anderson Cnacer Hospital in December.
>
>Laura,
>This is the second time in 2 weeks I have heard good things about that
>hospital.A chat buddy's daughter in law also has Leukemia.She has been sent
>there for state of the art treatment.
>
>Karen :)
>
=========================================================================
Date: Mon, 25 Sep 2000 20:02:20 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "( Linn A. Walsh )" <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 10:09:47 AM US Mountain Standard Time,
[log in to unmask] writes:
>
> My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
> live in New Jersey and I am interested in finding out if anyone has been
> successful in getting either their health insurance company or the DDD
> to pay for hippo therapy (therapeutic horseback riding). My son wants to
> go but it costs $85 per hourly session. (ouch).
>
> Thanks!
>
> Joyce
>
>
Joyce,
When I was a DDD casemanager, we could get it paid for if it was written up
as PT by the PCP ! Inother words, If the individual was qualified to received
physical therapy thru DDD or at school and he/she had a script by his doc,
then therapeutic riding was funded! Look into it...it's worth a try!
Linn :D
~~~~~~~~~~~~~~~~~~~
Linn Walsh-Knueppel, M. Ed.
Tucson, AZ
=========================================================================
Date: Mon, 25 Sep 2000 20:24:37 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Michael Jeffries <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
www.bluelight.com
www.ourhouse.net
FREE INTERNET ACCESS
=========================================================================
Date: Mon, 25 Sep 2000 20:50:08 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 5:25:26 PM Pacific Daylight Time,
[log in to unmask] writes:
> www.bluelight.com
> www.ourhouse.net
>
> FREE INTERNET ACCESS
I think the person you sent this to, lives in a central American country. So,
she may not be able to use these.
=========================================================================
Date: Mon, 25 Sep 2000 21:18:20 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: isp & regional
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Well, today was my ISP meeting, and what that is, is every month at my staff
meeting, we go over my ISP, (individual support plan) and AND if things need
changing, how I am getting on w/ my helpers, etc. Today my Regional Center
caseworker was supposed to come after the staff meeting. Well, she got lost
driving around, and was one hour late, then she talked to us for 1.5 hours.
I was exhausted. I couldn't get anything done today, like make dentist,
hearing aid, or glasses appointments.
Anyway the RC worker is from Russia, she speaks very well, but on the phone
she speaks one word a minute.
Anyway, she kept referring to my place as a "facility," and my helper Tami
repeatedly corrected her, and on other things. And I'm like thinking RC needs
to train its people a lot better! Is that what You do, Gary? Eh?
=========================================================================
Date: Mon, 25 Sep 2000 21:59:03 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Linda Wagner <[log in to unmask]>
Subject: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi everyone,
I guess I need to vent a bit...Do any of you feel that because of your
disability people are "nice" to you at first and seem friendly, but then
basically drop off the face of the earth? I ask this because I have
been talking with a local guy via AOL IM and on the phone. He was very
aware of my having cp before I ever gave him my number. Then today, out
of the blue, he says he doesn't want to talk to me anymore but won't
give me a reason. I've drawn my own conclusions...It all just
infuriates me because I am sick of people saying they are ok with the
fact that I have cp but they are really not. Heck, I am human, with
feelings - don't LIE to me! This has happened to me more than once in
my childhood and now in my adult life. I do have many good friends who
truely don't care about my cp, but I am sick of these other FALSE
people, ya know?
Ok, I'm done venting now!
Linda
=========================================================================
Date: Mon, 25 Sep 2000 22:25:22 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Laura Cleveland <[log in to unmask]>
Organization: Crossed Wires
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Karen,
Would love to talk to you/her sometime about the particulars--I, too have
heard great things.
Thanks for the info Karen. Do you know what type she has?
Laura
----- Original Message -----
From: "Karen K. Perlow" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, September 25, 2000 6:52 PM
Subject: Re: I'm back
> a not so
> pleasurable trip to Houston to MD Anderson Cnacer Hospital in December.
>
> Laura,
> This is the second time in 2 weeks I have heard good things about that
> hospital.A chat buddy's daughter in law also has Leukemia.She has been
sent
> there for state of the art treatment.
>
> Karen :)
>
=========================================================================
Date: Mon, 25 Sep 2000 19:38:31 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Bill Hyatt <[log in to unmask]>
Subject: Re: isp & regional
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hello Magenta-
I work for a Regional Center and I think your right.
There are so many new workers at Regional Centers
theses days I don't think they all get the training
need to work with people with disabilities.
--- Magenta Raine <[log in to unmask]> wrote:
> Well, today was my ISP meeting, and what that is, is
> every month at my staff
> meeting, we go over my ISP, (individual support
> plan) and AND if things need
> changing, how I am getting on w/ my helpers, etc.
> Today my Regional Center
> caseworker was supposed to come after the staff
> meeting. Well, she got lost
> driving around, and was one hour late, then she
> talked to us for 1.5 hours.
> I was exhausted. I couldn't get anything done
> today, like make dentist,
> hearing aid, or glasses appointments.
>
> Anyway the RC worker is from Russia, she speaks very
> well, but on the phone
> she speaks one word a minute.
>
> Anyway, she kept referring to my place as a
> "facility," and my helper Tami
> repeatedly corrected her, and on other things. And
> I'm like thinking RC needs
> to train its people a lot better! Is that what You
> do, Gary? Eh?
=====
Bill Hyatt
"The shortest distance between two points is.....
usually not accessible"
__________________________________________________
Do You Yahoo!?
Send instant messages & get email alerts with Yahoo! Messenger.
http://im.yahoo.com/
=========================================================================
Date: Mon, 25 Sep 2000 22:47:33 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Linda, I know what you mean. I run into the same thing all the time.
and I feel like you do. I am a human beaning. do not Lie to me. or pretean
you are my friend. and then I find out you just feel sorry for me. or do not
want to be around me at all. I have been ask to leave a church becuaue I am
in a wheelechair. (no Kidding) and it hurts when you lie to me. or when you
say to me I do not want to be around you, because you remind me of what life
can do. and I do not want to be reminded. so go away from me. People can be
so cold at times. I am sorry this happend to you. Lynn
Linda Wagner wrote:
> Hi everyone,
>
> I guess I need to vent a bit...Do any of you feel that because of your
> disability people are "nice" to you at first and seem friendly, but then
> basically drop off the face of the earth? I ask this because I have
> been talking with a local guy via AOL IM and on the phone. He was very
> aware of my having cp before I ever gave him my number. Then today, out
> of the blue, he says he doesn't want to talk to me anymore but won't
> give me a reason. I've drawn my own conclusions...It all just
> infuriates me because I am sick of people saying they are ok with the
> fact that I have cp but they are really not. Heck, I am human, with
> feelings - don't LIE to me! This has happened to me more than once in
> my childhood and now in my adult life. I do have many good friends who
> truely don't care about my cp, but I am sick of these other FALSE
> people, ya know?
>
> Ok, I'm done venting now!
>
> Linda
=========================================================================
Date: Tue, 26 Sep 2000 00:08:18 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/26/00 2:02:17 AM, [log in to unmask] writes:
<< .It all just
infuriates me because I am sick of people saying they are ok with the
fact that I have cp but they are really not. Heck, I am human, with
feelings - don't LIE to me! This has happened to me more than once in
my childhood and now in my adult life. I do have many good friends who
truely don't care about my cp, but I am sick of these other FALSE
people, ya know?
Ok, I'm done venting now!
Linda
>>
Linda,
All I can say is that the guy was a jerk. Whether or not he behaved liked
a jerk because of your cp is yet to be seen. sometimes we jump to tha
conclusion before we have all the facts.
=========================================================================
Date: Tue, 26 Sep 2000 00:12:32 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/25/00 10:40:18 PM, [log in to unmask] writes:
<< trip to Houston to MD Anderson Cnacer Hospital in December. I
want to see an expert in the field--the word "treatment" keeps coming up, so
I want to get the guru of CLL. >>
Laura,
Good luck MDA is a great place besides Sloan Kettering.. God's speed go
with you and Kyle and have fun in Bosyon.
I'll be praying for you Laura and I'm not even the church type. LOL
=========================================================================
Date: Tue, 26 Sep 2000 01:00:22 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi ya'll,
I personally have a hard time with actually 'meeting' people - online is no
problem, I can type just fine. In person, I have a few physical problems, that
I imagine are probably very distracting to a "normal" individual. I sometimes
use a "walker", or a mobilator as I call it, to walk with - but sometimes I go
on my own. The thing with going on my own, is that I have a VERY limited
ability to "stand up", for more than 30 seconds, without "wobbling" a lot. I
have NO balance. So, if you get in a situation without the walker, you then are
standing and wobbling, trying to carry on a conversation. NOT my favorite thing
to do - the very first thing I do when I walk in a room, is look for a chair,
and plant myself in it! This tends to look like I am an unfriendly person (to a
'normal' individual) probably........ but, I can't help it. Sitting down is my
'most comfortable', social position!
As for meeting - I tend to look at it, the same way as I do WORK. I sometimes
think a 'disabled' person has to work twice as hard, at the very same job that
an 'able-bodied' person has, in order to prove themselves....... at least that
is the way it feels to me. And, for meeting people, I have to work twice as
hard, to 'get' a relationship. I'm lucky, that I own my mailing list, and have
met a LOT of people all around the country. They "know" me - online. Whether
or not they are 'surprised' at what they get 'in person', I don't know.
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Tue, 26 Sep 2000 02:38:15 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Linda,
I can't count t 'em anymore. You're not alone. All I can say is never give
up.
Mag
=========================================================================
Date: Tue, 26 Sep 2000 02:39:38 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: isp & regional
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Bill, where are you located? Would love to meet you sometime and share tales
of woe.
Mag
=========================================================================
Date: Tue, 26 Sep 2000 06:37:47 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
more free internet
www.freeatlast.com
www.juno.com
www.altavista.com
there are many others.
-----Original Message-----
From: Michael Jeffries [mailto:[log in to unmask]]
Sent: Monday, September 25, 2000 8:25 PM
To: [log in to unmask]
Subject: Re: I'm back
www.bluelight.com
www.ourhouse.net
FREE INTERNET ACCESS
=========================================================================
Date: Tue, 26 Sep 2000 06:43:53 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
I have been ask to leave a church becuaue I am
in a wheelechair. (no Kidding)
as a christian, this action offends me and i'd say not much to call itself a
church. i am just dismayed.
=========================================================================
Date: Tue, 26 Sep 2000 23:31:25 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Barber go and find a other church
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 10:43
Subject: Re: Meeting People
> I have been ask to leave a church becuaue I am
> in a wheelechair. (no Kidding)
>
> as a christian, this action offends me and i'd say not much to call itself
a
> church. i am just dismayed.
>
=========================================================================
Date: Tue, 26 Sep 2000 07:33:02 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
i'd certainly advise that. no church should be like that. at our church we
have walkers, crutches, wheelchairs etc scattered throughout the
congregation.
-----Original Message-----
From: marie [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 7:31 AM
To: [log in to unmask]
Subject: Re: Meeting People
Barber go and find a other church
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 10:43
Subject: Re: Meeting People
> I have been ask to leave a church becuaue I am
> in a wheelechair. (no Kidding)
>
> as a christian, this action offends me and i'd say not much to call itself
a
> church. i am just dismayed.
>
=========================================================================
Date: Tue, 26 Sep 2000 23:36:52 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
barber where r u
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:33
Subject: Re: Meeting People
> i'd certainly advise that. no church should be like that. at our church we
> have walkers, crutches, wheelchairs etc scattered throughout the
> congregation.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:31 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> Barber go and find a other church
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 10:43
> Subject: Re: Meeting People
>
>
> > I have been ask to leave a church becuaue I am
> > in a wheelechair. (no Kidding)
> >
> > as a christian, this action offends me and i'd say not much to call
itself
> a
> > church. i am just dismayed.
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 07:36:09 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
i am living in stone mountain georgia and my church is calvary chapel, stone
mountain.
-----Original Message-----
From: marie [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 7:37 AM
To: [log in to unmask]
Subject: Re: Meeting People
barber where r u
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:33
Subject: Re: Meeting People
> i'd certainly advise that. no church should be like that. at our church we
> have walkers, crutches, wheelchairs etc scattered throughout the
> congregation.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:31 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> Barber go and find a other church
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 10:43
> Subject: Re: Meeting People
>
>
> > I have been ask to leave a church becuaue I am
> > in a wheelechair. (no Kidding)
> >
> > as a christian, this action offends me and i'd say not much to call
itself
> a
> > church. i am just dismayed.
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 07:37:08 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
oh, stone mountain is a suburb of Atlanta, GEORGIA, USA.
-----Original Message-----
From: marie [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 7:37 AM
To: [log in to unmask]
Subject: Re: Meeting People
barber where r u
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:33
Subject: Re: Meeting People
> i'd certainly advise that. no church should be like that. at our church we
> have walkers, crutches, wheelchairs etc scattered throughout the
> congregation.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:31 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> Barber go and find a other church
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 10:43
> Subject: Re: Meeting People
>
>
> > I have been ask to leave a church becuaue I am
> > in a wheelechair. (no Kidding)
> >
> > as a christian, this action offends me and i'd say not much to call
itself
> a
> > church. i am just dismayed.
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 23:41:34 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
have a look at this page http://home.clear.net.nz/pages/cmwdt/
it is good I go there
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:36
Subject: Re: Meeting People
> i am living in stone mountain georgia and my church is calvary chapel,
stone
> mountain.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:37 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> barber where r u
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 11:33
> Subject: Re: Meeting People
>
>
> > i'd certainly advise that. no church should be like that. at our church
we
> > have walkers, crutches, wheelchairs etc scattered throughout the
> > congregation.
> >
> > -----Original Message-----
> > From: marie [mailto:[log in to unmask]]
> > Sent: Tuesday, September 26, 2000 7:31 AM
> > To: [log in to unmask]
> > Subject: Re: Meeting People
> >
> >
> > Barber go and find a other church
> > ----- Original Message -----
> > From: "Barber, Kenneth L." <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, September 26, 2000 10:43
> > Subject: Re: Meeting People
> >
> >
> > > I have been ask to leave a church becuaue I am
> > > in a wheelechair. (no Kidding)
> > >
> > > as a christian, this action offends me and i'd say not much to call
> itself
> > a
> > > church. i am just dismayed.
> > >
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 07:46:26 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
THANKS, looks good, i'll explore it in detail when i get time, maybe at
lunch break.
-----Original Message-----
From: marie [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 7:42 AM
To: [log in to unmask]
Subject: Re: Meeting People
have a look at this page http://home.clear.net.nz/pages/cmwdt/
it is good I go there
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:36
Subject: Re: Meeting People
> i am living in stone mountain georgia and my church is calvary chapel,
stone
> mountain.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:37 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> barber where r u
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 11:33
> Subject: Re: Meeting People
>
>
> > i'd certainly advise that. no church should be like that. at our church
we
> > have walkers, crutches, wheelchairs etc scattered throughout the
> > congregation.
> >
> > -----Original Message-----
> > From: marie [mailto:[log in to unmask]]
> > Sent: Tuesday, September 26, 2000 7:31 AM
> > To: [log in to unmask]
> > Subject: Re: Meeting People
> >
> >
> > Barber go and find a other church
> > ----- Original Message -----
> > From: "Barber, Kenneth L." <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, September 26, 2000 10:43
> > Subject: Re: Meeting People
> >
> >
> > > I have been ask to leave a church becuaue I am
> > > in a wheelechair. (no Kidding)
> > >
> > > as a christian, this action offends me and i'd say not much to call
> itself
> > a
> > > church. i am just dismayed.
> > >
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 23:50:17 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
ok
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 11:46
Subject: Re: Meeting People
> THANKS, looks good, i'll explore it in detail when i get time, maybe at
> lunch break.
>
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 7:42 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> have a look at this page http://home.clear.net.nz/pages/cmwdt/
> it is good I go there
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 11:36
> Subject: Re: Meeting People
>
>
> > i am living in stone mountain georgia and my church is calvary chapel,
> stone
> > mountain.
> >
> > -----Original Message-----
> > From: marie [mailto:[log in to unmask]]
> > Sent: Tuesday, September 26, 2000 7:37 AM
> > To: [log in to unmask]
> > Subject: Re: Meeting People
> >
> >
> > barber where r u
> > ----- Original Message -----
> > From: "Barber, Kenneth L." <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, September 26, 2000 11:33
> > Subject: Re: Meeting People
> >
> >
> > > i'd certainly advise that. no church should be like that. at our
church
> we
> > > have walkers, crutches, wheelchairs etc scattered throughout the
> > > congregation.
> > >
> > > -----Original Message-----
> > > From: marie [mailto:[log in to unmask]]
> > > Sent: Tuesday, September 26, 2000 7:31 AM
> > > To: [log in to unmask]
> > > Subject: Re: Meeting People
> > >
> > >
> > > Barber go and find a other church
> > > ----- Original Message -----
> > > From: "Barber, Kenneth L." <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Sent: Tuesday, September 26, 2000 10:43
> > > Subject: Re: Meeting People
> > >
> > >
> > > > I have been ask to leave a church becuaue I am
> > > > in a wheelechair. (no Kidding)
> > > >
> > > > as a christian, this action offends me and i'd say not much to call
> > itself
> > > a
> > > > church. i am just dismayed.
> > > >
> > >
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 08:25:19 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Cindy Mallory <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Kelly,
Where in PA do you live? I know there is a Shriners in Philly, but the
area code is in blair and cambria counties. Is this horseback riding located
at a shriner's location? We live in York, this is why I'm asking. Cindy
=========================================================================
Date: Tue, 26 Sep 2000 09:53:19 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: Re: isp & regional
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Something gets lost in translation, Mag.
Tell her: Eta doma. Nye (as in "NYET") F-A-C-I-L-I-T-Y
That "may" get her to wake up.
S.
----- Original Message -----
From: "Magenta Raine" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, September 25, 2000 9:18 PM
Subject: isp & regional
> Well, today was my ISP meeting, and what that is, is every month at my
staff
> meeting, we go over my ISP, (individual support plan) and AND if things
need
> changing, how I am getting on w/ my helpers, etc. Today my Regional
Center
> caseworker was supposed to come after the staff meeting. Well, she got
lost
> driving around, and was one hour late, then she talked to us for 1.5
hours.
> I was exhausted. I couldn't get anything done today, like make dentist,
> hearing aid, or glasses appointments.
>
> Anyway the RC worker is from Russia, she speaks very well, but on the
phone
> she speaks one word a minute.
>
> Anyway, she kept referring to my place as a "facility," and my helper Tami
> repeatedly corrected her, and on other things. And I'm like thinking RC
needs
> to train its people a lot better! Is that what You do, Gary? Eh?
>
>
=========================================================================
Date: Tue, 26 Sep 2000 10:10:35 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
-----Original Message-----
From: Bobby G. Greer [mailto:[log in to unmask]]
Sent: Monday, September 25, 2000 5:37 PM
To: [log in to unmask]
Subject: Re: Hello
From teaching my Alcohol & Drug course, amyl nitrite will
enhance the romance fo menn and women if you are into that.
Bobby
Ah, yes, I believe that was sold under the street name "Locker Room" when I
was young and impetuous. Those were the days when we used "whip-it"s for
more than making chocolate sundaes.
=========================================================================
Date: Tue, 26 Sep 2000 10:18:12 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: isp & regional
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Something gets lost in "translation," Mag.
Tell her: Eta doma (Loosely, This is a house)! Nye ("Not") (As related to
"NYET"=No) F-A-C-I-L-I-T-Y
A few forceful Russian words: That "may" get her to wake up.
S.
----- Original Message -----
From: "Magenta Raine" <[log in to unmask]>
To: <>
Sent: Monday, September 25, 2000 9:18 PM
Subject: isp & regional
> Anyway the RC worker is from Russia, she speaks very well, but on the
phone
> she speaks one word a minute.
>
> Anyway, she kept referring to my place as a "facility," and my helper Tami
> repeatedly corrected her, and on other things. And I'm like thinking RC
needs
> to train its people a lot better! Is that what You do, Gary? Eh?
>
>
=========================================================================
Date: Tue, 26 Sep 2000 10:22:32 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: Re: Hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Steak and potatoes didn't satisfy the appetite?
S.
----- Original Message -----
From: "Cleveland, Kyle E." <[log in to unmask]>
To:
<Sent: Tuesday, September 26, 2000 10:10 AM
Subject: Re: Hello
> -----Original Message-----
> From: Bobby G. Greer [mailto:[log in to unmask]]
> Sent: Monday, September 25, 2000 5:37 PM
> To:
> Subject: Re: Hello
>
>
> From teaching my Alcohol & Drug course, amyl nitrite will
> enhance the romance fo menn and women if you are into that.
>
> Bobby
>
> Ah, yes, I believe that was sold under the street name "Locker Room" when
I
> was young and impetuous. Those were the days when we used "whip-it"s for
> more than making chocolate sundaes.
>
>
=========================================================================
Date: Mon, 25 Sep 2000 12:24:06 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: dcon278 <[log in to unmask]>
Subject: Re: Hello
Lynn,
hi my name is Samantha and my husband and I live here in Virginia Beach as
well. We have 3 kids, Victoria-7, Payton-5 and little David-3 who has CP.
He goes to Princess Anne Elem. He has done extremely well. You can e-mail
me seperately if you would like. [log in to unmask] Take care.
Samantha
-----Original Message-----
From: sara lynn weaver <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, September 22, 2000 8:16 PM
Subject: Re: Hello
>Thanks Meg. I have a nice Apt. here in Virginia Beach. It feels like
>home here now. I have some nice friends here. and a nice church home
>to. Lynn
>
>Magenta Raine wrote:
>
>> Hi Lynn,
>> I remember you. Glad you came through that move safely.
>>
>> Mag
=========================================================================
Date: Tue, 26 Sep 2000 12:06:59 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Preach it, Linda, PREACH IT!!!!!!!!!!!!!!!!!!!! I too have the feeling.
Linda Wagner wrote:
> Hi everyone,
>
> I guess I need to vent a bit...Do any of you feel that because of your
> disability people are "nice" to you at first and seem friendly, but then
> basically drop off the face of the earth? I ask this because I have
> been talking with a local guy via AOL IM and on the phone. He was very
> aware of my having cp before I ever gave him my number. Then today, out
> of the blue, he says he doesn't want to talk to me anymore but won't
> give me a reason. I've drawn my own conclusions...It all just
> infuriates me because I am sick of people saying they are ok with the
> fact that I have cp but they are really not. Heck, I am human, with
> feelings - don't LIE to me! This has happened to me more than once in
> my childhood and now in my adult life. I do have many good friends who
> truely don't care about my cp, but I am sick of these other FALSE
> people, ya know?
>
> Ok, I'm done venting now!
>
> Linda
=========================================================================
Date: Tue, 26 Sep 2000 11:10:57 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
Content-Transfer-Encoding: 7bit
It's funny, but this thread got me to thinking about when I was single. I
begin preferring to date "bad" girls and not for the obvious reasons!! To me,
they were more honest than the "goody two shoes" types and would tell what
they thought.
Bobby
Michael H. Collis wrote:
> Preach it, Linda, PREACH IT!!!!!!!!!!!!!!!!!!!! I too have the feeling.
>
> Linda Wagner wrote:
>
> > Hi everyone,
> >
> > I guess I need to vent a bit...Do any of you feel that because of your
> > disability people are "nice" to you at first and seem friendly, but then
> > basically drop off the face of the earth? I ask this because I have
> > been talking with a local guy via AOL IM and on the phone. He was very
> > aware of my having cp before I ever gave him my number. Then today, out
> > of the blue, he says he doesn't want to talk to me anymore but won't
> > give me a reason. I've drawn my own conclusions...It all just
> > infuriates me because I am sick of people saying they are ok with the
> > fact that I have cp but they are really not. Heck, I am human, with
> > feelings - don't LIE to me! This has happened to me more than once in
> > my childhood and now in my adult life. I do have many good friends who
> > truely don't care about my cp, but I am sick of these other FALSE
> > people, ya know?
> >
> > Ok, I'm done venting now!
> >
> > Linda
=========================================================================
Date: Tue, 26 Sep 2000 13:42:28 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Bruce notte <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Thanks Linn.
Right now Anthony's PT is funded by his school and I know they won't cover the
horseback riding even though it is therapeutic.
If I get a script from his orthopedic doctor, can I just go to the DDD and ask
them for funding? Should the script say hippo therapy or just physical therapy
and leave out the "horse" part. Right now his physical therapist uses balls,
walkers and an adapted bike with Anthony. Couldn't a horse be considered a type
of adapted equipment? I realize it's a horse is not an inanimate object but if it
has the same therapeutic effect, what's the difference? Am I stretching it to
much? Sometimes it just a matter of using the correct terminology.
Any more advice would be great. Thanks in advance.
( Linn A. Walsh )" wrote:
> In a message dated 9/25/00 10:09:47 AM US Mountain Standard Time,
> [log in to unmask] writes:
>
> >
> > My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
> > live in New Jersey and I am interested in finding out if anyone has been
> > successful in getting either their health insurance company or the DDD
> > to pay for hippo therapy (therapeutic horseback riding). My son wants to
> > go but it costs $85 per hourly session. (ouch).
> >
> > Thanks!
> >
> > Joyce
> >
> >
> Joyce,
> When I was a DDD casemanager, we could get it paid for if it was written up
> as PT by the PCP ! Inother words, If the individual was qualified to received
> physical therapy thru DDD or at school and he/she had a script by his doc,
> then therapeutic riding was funded! Look into it...it's worth a try!
> Linn :D
> ~~~~~~~~~~~~~~~~~~~
> Linn Walsh-Knueppel, M. Ed.
> Tucson, AZ
=========================================================================
Date: Tue, 26 Sep 2000 15:23:54 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Laura Cleveland <[log in to unmask]>
Organization: Crossed Wires
Subject: Re: I'm back
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Dont have to the church type to pray Bobby!
Touche'-
LOL
Thanks for the prayer and good wishes!!
Laura
----- Original Message -----
From: "Bobby G. Greer" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 12:12 AM
Subject: Re: I'm back
> In a message dated 9/25/00 10:40:18 PM, [log in to unmask] writes:
>
> << trip to Houston to MD Anderson Cnacer Hospital in December. I
> want to see an expert in the field--the word "treatment" keeps coming up,
so
> I want to get the guru of CLL. >>
>
> Laura,
>
> Good luck MDA is a great place besides Sloan Kettering.. God's speed
go
> with you and Kyle and have fun in Bosyon.
>
> I'll be praying for you Laura and I'm not even the church type. LOL
>
=========================================================================
Date: Tue, 26 Sep 2000 15:26:55 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Laura Cleveland <[log in to unmask]>
Organization: Crossed Wires
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Whoa! What's up with that Ken? That makes my stomach turn, Ken! What are
you/ did you do?
What kind of church would this be?
Oh, that's horrible!
Laura
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 6:43 AM
Subject: Re: Meeting People
> I have been ask to leave a church becuaue I am
> in a wheelechair. (no Kidding)
>
> as a christian, this action offends me and i'd say not much to call itself
a
> church. i am just dismayed.
>
=========================================================================
Date: Tue, 26 Sep 2000 16:06:06 -0400
Reply-To: "I. S. Margolis" <ismargolis@earthlink.net>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: Dggone It!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
A man runs into the vet's office carrying his dog, screaming for
help. The vet rushes him back to an examination room and has him
put his dog down on the examination table. The vet examines the
still, limp body and, after a few moments, tells the man that his
dog, regrettably, is dead.
The man, clearly agitated and not willing to accept this, demands
a second opinion.
The vet goes into the back room and comes out with a cat and puts
the cat down next to the dog's body. The cat sniffs the body,
walks from head to tail poking and sniffing the dog's body and
finally looks at the vet and meows.
The vet looks at the man and says, "I'm sorry, but the cat thinks
that your dog is dead too."
The man is still unwilling to accept that his dog is dead. The
vet brings in a black Labrador. The lab sniffs the body, walks
from head to tail, and finally looks at the vet and barks. The
vet looks at the man and says, "I'm sorry, but the lab thinks
your dog is dead, too."
The man, finally resigned to the diagnosis, thanks the vet and
asks how much he owes.
The vet answers, "$650."
"$650 to tell me my dog is dead?" exclaimed the man....
"Well," the vet replies, "I would only have charged you $50 for
my initial diagnosis. The additional $600 was for the cat scan
and lab tests."
=========================================================================
Date: Wed, 27 Sep 2000 10:25:43 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: purpose
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/26/00 02:10 >>>
>That's not possible for you, Gordon. It's my understanding that you =
can't
even "ponder" owning/using a firearm in NZ or neighbor Australia, right?
Unless your speaking of an aboriginal blowgun, eh? ;>)
<
Yep - people own guns - though not as hihgh (per population) as in USA / =
other countries..
of course - most/all of the cops do....
- but they do get into trouble with people shooting guns / robberies =
etc...
- so the bad guys must get the guns from somewhere
- Whether legally or not - They do get them somewhere..
gordon.
=========================================================================
Date: Tue, 26 Sep 2000 20:28:21 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: - Joy - <[log in to unmask]>
Subject: September 25 Digest
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
There was a bunch of stuff I wanted to respond to in yesterday's digest... I
hope it's okay if I combine topics. I'm too lazy to do separate e-mails.
; )
Mag - We decided against a lift in the back because it's easier to get into
accidents while unloading that way. You have to roll out straight into
oncoming traffic (or back into the space, which leaves the front of the car
hanging out to get hit.
Stephen - Your solution worked! I'm loving my new digest version... Thanks
again!
Ken - Thanks for the tip about calling the police. I guess I was shy about
bothering them with "minor" problems. If anyone else asks about the digest,
tell them to set their subscription to Traditional NoMime.
Yvonne - Thanks for the cornstarch tip. The talc powder has been doing the
trick for me, but I've been looking for an alternative. Baby powder has
been linked to ovarian cancer, and since that runs in my family already, I
don't want to heighten my risk anymore. I'll give the cornstarch a try.
Linda - I completely hear you about meeting people. What you described
happens to me all the time. People are always too nice to me, so much so
that it's insincere. But, I'm lucky to have a few good friends who I know
really like me, and don't feel sorry for me. They aren't afraid to tease me
or say no to me. Be patient... you'll find the right people in time. <hugs>
Re: hippotherapy - No matter what the cost, if at all feasible, do it!
I've been riding for about a year, and have seen unbelievable benefits. My
balance, my posture, the flexibility in my hamstrings, and my trunk strength
have all improved. Plus, it's so much fun, and it's great exercise.
Re: damp cold - I have the same problem with stiffness when it gets cold and
damp. We've had two days of solid rain in DC, and my hips are excruciating.
I can barely move... It's supposed to be sunny tomorrow, though, so I'm
keeping my fingers crossed. Not like I can uncross them now anyway. ; )
~Joy~
=========================================================================
Date: Wed, 27 Sep 2000 12:57:09 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Funny ???
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/26/00 05:00 >>>
Hi beth - Im just writing this to get myself calm down..
- Very funny joke / message - I cant forward it, as every time i look at =
it I crack up.. - wait till people start going home - & no one is around - =
i'll send it...
ok - im calm now - here goes :-
- i'll reply to your message next...
DO NOT READ THIS IF YOU ARE GOING TO LAUGH
- from work-mate
MEN DON'T LISTEN....
On a flight to Chicago, a gentleman had a serious problem. He had
made several attempts to get into the men's restroom, but it had always
been occupied.
The Stewardess noticed that he was walking short steps and had a
look of pain on his face. "Sir," she said, "you may use the
ladies room if you promise not to touch any of the buttons on the wall."
He would have promised anything and said so. The relief was pure
joy, and as he sat there savouring the feeling, he noticed the buttons he =
had
promised not to touch. Each button was identified by letters:
WW, WA, PP, and a red one labelled ATR. Who would know if he
touched them? He couldn't resist.
He pushed WW. Warm water was sprayed gently upon his bottom. What
a nice feeling, he thought.
Men's restrooms don't have nice things like this
Anticipating greater pleasure, he pushed the WA button.
Warm air replaced the warm water, gently drying his underside.
When this stopped, he pushed the PP button. A large powder puff
caressed his bottom adding a fragile scent of spring flowers to
this unbelievable pleasure.
The ladies restroom was more than a restroom, it is tender loving =
pleasure.
When the powder puff completed its pleasure, he couldn't wait to
push the ATR button which he knew would be supreme ecstasy.
He knew he was in a hospital as soon as he opened his eyes.
A nurse was staring down at him with a smirk on her face.
"What happened?" he exclaimed.
"You pushed one too many buttons," replied the nurse.
"The last button marked ATR was an Automatic Tampon Remover.
Your testicles are under your pillow."
----------------------------------------------------------------
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which
it is addressed and may contain confidential and/or privileged material. =
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=========================================================================
Date: Tue, 26 Sep 2000 20:58:47 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Lynn, what specifically did they say offended them about your wheelchair?
=========================================================================
Date: Tue, 26 Sep 2000 21:01:10 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: Funny ???
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Hi Gordon,
Having just gone to the gyn yesterday - I'd say I can appreciate the humor
there............
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Tue, 26 Sep 2000 21:04:56 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I'll never forget the lady who objected to putting a ramp in at Temple in
Manhattan Beach Calif. It was so another lady who'd had polio would be better
able to get in and out on her crutches. the lady that objected said it would
ruin the architecture of the Temple. As if it were an 18th century
masterpiece. Not! So, the sisterhood lost their president with polio.
=========================================================================
Date: Wed, 27 Sep 2000 13:12:50 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: Meeting People
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/26/00 05:00 >>>
>Hi ya'll,<
Hi Beth - me again - I'l reply to your massage..
>
I personally have a hard time with actually 'meeting' people - online is =
no
problem, I can type just fine. In person, I have a few physical problems, =
that
I imagine are probably very distracting to a "normal" individual. I =
sometimes
use a "walker", or a mobilator as I call it, to walk with - but sometimes =
I go
on my own. The thing with going on my own, is that I have a VERY limited
ability to "stand up", for more than 30 seconds, without "wobbling" a lot. =
I
have NO balance. So, if you get in a situation without the walker, you =
then are standing and wobbling, trying to carry on a conversation. NOT my =
favorite thing to do - the very first thing I do when I walk in a room, is =
look for a chair, and plant myself in it! This tends to look like I am an =
unfriendly person (to a 'normal' individual) probably........ but, I can't =
help it. Sitting down is my 'most comfortable', social position!"
<cut>
Me too - Im probably not as bad as you are - ie 30 seconds, - but I do =
find the nearest seat I can find - probably looks to most people that im =
un-social. - I am in groups of people - but on one-on-one chats im =
perfectly fine..
The hardest part for me - i think, is sitting beside someone / people, =
start to talk & then they (after 5-10 minutes), move around to a different =
desk / group...(they like me - so its not anything afgainst me - i think) =
- Im left there standing/ sitting, wondering who to talkk to next....
>As for meeting - I tend to look at it, the same way as I do WORK. I =
sometimes think a 'disabled' person has to work twice as hard, at the very =
same job that an 'able-bodied' person has, in order to prove themselves....=
... at least that is the way it feels to me. And, for meeting people, I =
have to work twice as hard, to 'get' a relationship. I'm lucky, that I =
own my mailing list, and have met a LOT of people all around the country. =
They "know" me - online. Whether or not they are 'surprised' at what they =
get 'in person', I don't know.
<
Yep - i own / run lots of mailing lists - mostly international - trying to =
promote some NZ ones...
I know lots of people through them, (& the on-line chats) & most of them =
think im a great guy (knowing of my CP as well) - though they live too far =
away..
ive never actually met anyone (in person) through a list...
- but Over the last 4 or so months, I hink my confidence has increased a =
lot.. and hopefully - when I get the nerve up, to meet a live person - =
I'll be ok..
Right now, im seeing about disabled / able-bodied places around my area.. =
- that would be a good place to start i think..
- PS - NZ is so dis-organised - TONNES of different agencies, etc.. - but =
no co-ordinated effort to organise / share information - Thats what im =
hoping to do with one of my lists... (basically the same as this list - =
but for all disabilities, and specifically in NZ)
Gordon.
=========================================================================
Date: Tue, 26 Sep 2000 21:19:07 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi Gordon,
I suppose I don't dwell on my incapabilities, in written word, on my own list.
It's not about health issues, and so unless someone says something about me
(that knows me), or health comes up, I don't post about it. They know I was
born spina bifida - but quite frankly that means nothing to most people unless
they either have it, or know someone that does.........
I HAVE met quite a few of the list members! Since the list is for a country
music singer, we tend to 'congregate' to the shows - and we wear badges to
indicate who we are, so I'll recognize most of my list members. Plus - the ones
I haven't met, I have some pics of them on the website. So I may meet them
someday. But my main thing is - I go into a room, find a chair and sit........
it's like holding a sign up saying "I am unfriendly", or maybe "I don't want to
talk to you"........ but that's not so. I do like to talk to them - but if they
are standing - it makes it very hard.
I put myself thru the action of 'meeting and greeting' with the entertainer
himself - he does meet with the fans usually when he's doing soundcheck before
his shows. And, the way he normally does it - he walks around and just 'visits'
with people.......... and if you want your pic made with him, or if you have
something you want autographed, or, if you have a present you want to give him -
generally you have to walk up to him, and catch him when he doesn't have someone
else there........ so, I have a problem talking to him too. Maybe I oughta ask
him if he'd consider sitting down and chatting! 8-) I generally keep my visit
with him VERY short and sweet. Say what has to be said, and then GO sit down!
He probably figures I'm unfriendly too............
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Tue, 26 Sep 2000 21:19:04 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Magenta, thay said that it (my wheelechair) reminded them of what life
can do. and thay do not want to be reminded of what life can do to a person..
Like putting them in a wheelechair. Lynn
Magenta Raine wrote:
> Lynn, what specifically did they say offended them about your wheelchair?
=========================================================================
Date: Tue, 26 Sep 2000 21:34:00 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Funny ???
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Gordon,
this one takes the cake!
LOL, Rofl!
lmao!
May I forward this?
mag
=========================================================================
Date: Wed, 27 Sep 2000 13:42:31 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: free websites
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Hi Queen - & any other NZ'ers ??
http://www.zfree.co.nz=20
http://www.i4fre.co.nz -
Gordon.
=========================================================================
Date: Tue, 26 Sep 2000 21:40:06 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
That's the nice thing about a scooter or wheelchair. You can move with your
friends around a room. before I got my chair, I did the same thing, or I'd
walk to the next person and kneel on the floor.
=========================================================================
Date: Wed, 27 Sep 2000 13:44:38 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: Meeting People : NZ
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/26/00 11:41 >>>
>have a look at this page http://home.clear.net.nz/pages/cmwdt/=20
it is good I go there
<
Hi Queen - Im in Auckland..
- what is the above website for ? - Meeting people ??
Gordon.
[log in to unmask]
=========================================================================
Date: Tue, 26 Sep 2000 21:41:58 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Sputtering... Fiddle them! Lynn, that's not Christian at all! That's
downright horrible. have you found another church?
=========================================================================
Date: Tue, 26 Sep 2000 21:45:02 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Karen K. Perlow" <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
thay said that it (my wheelechair) reminded them of what life
can do. and thay do not want to be reminded of what life can do to a person..
Like putting them in a wheelechair. Lynn
Lynn,
That is terrible!! I hope you found a church that doesn't wear blinders ! You
are well rid of that church. Was this a church that you could have reported
to someone higher up the organizational ladder ?? For instance, I'm Catholic
, so I would call the ArchDiocese with any major complaint I had about a
parish.
Karen :)
=========================================================================
Date: Tue, 26 Sep 2000 22:08:05 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Magenta, Yes I have found a good church home. it is a small church.
and thay take me as I am. thay even help me when I need help getting in
and out of my car. or if I ask for help thay help me. thay let me do what
I am able to do. and if I need help I know thay are there for me. It
feels good to have a church home. Lynn
Magenta Raine wrote:
> Sputtering... Fiddle them! Lynn, that's not Christian at all! That's
> downright horrible. have you found another church?
=========================================================================
Date: Wed, 27 Sep 2000 14:13:13 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: Funny ???
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/27/00 01:34 >>>
>
Gordon,
this one takes the cake!
LOL, Rofl!
lmao!
May I forward this?
<
Sure - forward it to whoever you want.. - It came from one of my workmates,=
- he normally sends round dirty / filthy jokes etc.. so Ive asked him to =
stop that, & only send me the good stuff..
This is one of the best things ive seen - Im on several joke lists etc.. - =
I snigger for 2 secs & then its over - with this one I was sniggering (at =
work) for several hours - trying not to laugh...)
Gordon.
=========================================================================
Date: Tue, 26 Sep 2000 22:10:19 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Karen, I did not report them to anyone. I just prayed about it. and let the
Lord handle it. He can do a better job than any human can. He was rejected to
when He was here on earth. so He knows where I am comeing from. Lynn
"Karen K. Perlow" wrote:
> thay said that it (my wheelechair) reminded them of what life
> can do. and thay do not want to be reminded of what life can do to a person..
> Like putting them in a wheelechair. Lynn
>
> Lynn,
> That is terrible!! I hope you found a church that doesn't wear blinders ! You
> are well rid of that church. Was this a church that you could have reported
> to someone higher up the organizational ladder ?? For instance, I'm Catholic
> , so I would call the ArchDiocese with any major complaint I had about a
> parish.
>
> Karen :)
=========================================================================
Date: Wed, 27 Sep 2000 14:28:07 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People : NZ
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Gordon it is Marie I have got 3 e-mail address
----- Original Message -----
From: "Gordon Stewart" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 01:44
Subject: Re: Meeting People : NZ
> >>> [log in to unmask] 09/26/00 11:41 >>>
> >have a look at this page http://home.clear.net.nz/pages/cmwdt/=20
> it is good I go there
> <
>
> Hi Queen - Im in Auckland..
>
> - what is the above website for ? - Meeting people ??
>
> Gordon.
> [log in to unmask]
>
=========================================================================
Date: Tue, 26 Sep 2000 23:25:52 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "( Linn A. Walsh )" <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/26/00 10:47:02 AM US Mountain Standard Time,
[log in to unmask] writes:
>
> If I get a script from his orthopedic doctor, can I just go to the DDD and
> ask them for funding?
Hey, that's a good idea! Actually, why not talk to the DDD casemanager and
tell them you've located a great service (hippotherapy) and ask if your child
can receive this service thru their program? Or perhaps bring it up at a
planning meeting. I'd suggest doing some homework first...talk to the program
themselves and get their recommendations, for example how often an individual
usually attends (2 x a week, monthly). Ask about scholarships... is
transporatation provided...Then approach the casemanager and ask if a script
from your orthopedic doc will assist them in justification of the service esp
since DDD is not paying for PT (the school is providing it). Usually these
theraputic horseback programs are run by a PT or have a PT closely involved.
What do u think ?? Best wishes and keep me posted! Let me know if you have
any other thoughts or questions.... Linn
=========================================================================
Date: Wed, 27 Sep 2000 04:00:05 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Lynn,
I am glad you found a good church.
I'd like to kick that person in the other church!
argh!
mag
=========================================================================
Date: Wed, 27 Sep 2000 04:02:19 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Wow, in my childhood I took lessons because I loved horses, and now it's a
therapy.
mag
=========================================================================
Date: Wed, 27 Sep 2000 06:49:37 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
the lady that objected said it would
ruin the architecture of the Temple. As if it were an 18th century
masterpiece. Not!
when will people learn? God paves his roads with gold. how do we think he is
so impressed with our buildings? buildings are not what is suposed to be
important for Gods people.
=========================================================================
Date: Wed, 27 Sep 2000 07:04:24 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
there is some confusion, i was not ask to leave, i was however replying to
two on this list that were at different times. i think it was mag and lynn.
anyway, i was just saying how offensive that action is to a real christian.
JESUS did not die to build a building. he came for people and in my readings
of the bible, i find that people with disabilities were inportant to him.
hey guys, paul the apposle had some kind of disability "thorn in the flesh".
i read where a house of woprship is denighed to a pwd and it lights up my
temper.
-----Original Message-----
From: Laura Cleveland [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 3:27 PM
To: [log in to unmask]
Subject: Re: Meeting People
Whoa! What's up with that Ken? That makes my stomach turn, Ken! What are
you/ did you do?
What kind of church would this be?
Oh, that's horrible!
Laura
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 26, 2000 6:43 AM
Subject: Re: Meeting People
> I have been ask to leave a church becuaue I am
> in a wheelechair. (no Kidding)
>
> as a christian, this action offends me and i'd say not much to call itself
a
> church. i am just dismayed.
>
=========================================================================
Date: Thu, 28 Sep 2000 00:02:26 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
ken have u had a look at the website yet Marie
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 11:04
Subject: Re: Meeting People
> there is some confusion, i was not ask to leave, i was however replying
to
> two on this list that were at different times. i think it was mag and
lynn.
> anyway, i was just saying how offensive that action is to a real
christian.
> JESUS did not die to build a building. he came for people and in my
readings
> of the bible, i find that people with disabilities were inportant to him.
> hey guys, paul the apposle had some kind of disability "thorn in the
flesh".
>
> i read where a house of woprship is denighed to a pwd and it lights up
my
> temper.
>
> -----Original Message-----
> From: Laura Cleveland [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 3:27 PM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> Whoa! What's up with that Ken? That makes my stomach turn, Ken! What are
> you/ did you do?
> What kind of church would this be?
> Oh, that's horrible!
> Laura
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 6:43 AM
> Subject: Re: Meeting People
>
>
> > I have been ask to leave a church becuaue I am
> > in a wheelechair. (no Kidding)
> >
> > as a christian, this action offends me and i'd say not much to call
itself
> a
> > church. i am just dismayed.
> >
>
=========================================================================
Date: Wed, 27 Sep 2000 08:09:45 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
some, it appears to be more in your area of the country. i think it is good.
i did especially notice the Bible paraphrase from the disabled viewpoint
listed, but, could not find a place to click to take a look.
-----Original Message-----
From: marie [mailto:[log in to unmask]]
Sent: Wednesday, September 27, 2000 8:02 AM
To: [log in to unmask]
Subject: Re: Meeting People
ken have u had a look at the website yet Marie
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 11:04
Subject: Re: Meeting People
> there is some confusion, i was not ask to leave, i was however replying
to
> two on this list that were at different times. i think it was mag and
lynn.
> anyway, i was just saying how offensive that action is to a real
christian.
> JESUS did not die to build a building. he came for people and in my
readings
> of the bible, i find that people with disabilities were inportant to him.
> hey guys, paul the apposle had some kind of disability "thorn in the
flesh".
>
> i read where a house of woprship is denighed to a pwd and it lights up
my
> temper.
>
> -----Original Message-----
> From: Laura Cleveland [mailto:[log in to unmask]]
> Sent: Tuesday, September 26, 2000 3:27 PM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> Whoa! What's up with that Ken? That makes my stomach turn, Ken! What are
> you/ did you do?
> What kind of church would this be?
> Oh, that's horrible!
> Laura
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, September 26, 2000 6:43 AM
> Subject: Re: Meeting People
>
>
> > I have been ask to leave a church becuaue I am
> > in a wheelechair. (no Kidding)
> >
> > as a christian, this action offends me and i'd say not much to call
itself
> a
> > church. i am just dismayed.
> >
>
=========================================================================
Date: Thu, 28 Sep 2000 00:14:35 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: marie <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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oh ok ken we do have people from overseas coming to the camp
----- Original Message -----
From: "Barber, Kenneth L." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, September 28, 2000 12:09
Subject: Re: Meeting People
> some, it appears to be more in your area of the country. i think it is
good.
> i did especially notice the Bible paraphrase from the disabled viewpoint
> listed, but, could not find a place to click to take a look.
>
> -----Original Message-----
> From: marie [mailto:[log in to unmask]]
> Sent: Wednesday, September 27, 2000 8:02 AM
> To: [log in to unmask]
> Subject: Re: Meeting People
>
>
> ken have u had a look at the website yet Marie
> ----- Original Message -----
> From: "Barber, Kenneth L." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, September 27, 2000 11:04
> Subject: Re: Meeting People
>
>
> > there is some confusion, i was not ask to leave, i was however
replying
> to
> > two on this list that were at different times. i think it was mag and
> lynn.
> > anyway, i was just saying how offensive that action is to a real
> christian.
> > JESUS did not die to build a building. he came for people and in my
> readings
> > of the bible, i find that people with disabilities were inportant to
him.
> > hey guys, paul the apposle had some kind of disability "thorn in the
> flesh".
> >
> > i read where a house of woprship is denighed to a pwd and it lights up
> my
> > temper.
> >
> > -----Original Message-----
> > From: Laura Cleveland [mailto:[log in to unmask]]
> > Sent: Tuesday, September 26, 2000 3:27 PM
> > To: [log in to unmask]
> > Subject: Re: Meeting People
> >
> >
> > Whoa! What's up with that Ken? That makes my stomach turn, Ken! What
are
> > you/ did you do?
> > What kind of church would this be?
> > Oh, that's horrible!
> > Laura
> > ----- Original Message -----
> > From: "Barber, Kenneth L." <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, September 26, 2000 6:43 AM
> > Subject: Re: Meeting People
> >
> >
> > > I have been ask to leave a church becuaue I am
> > > in a wheelechair. (no Kidding)
> > >
> > > as a christian, this action offends me and i'd say not much to call
> itself
> > a
> > > church. i am just dismayed.
> > >
> >
>
=========================================================================
Date: Wed, 27 Sep 2000 08:42:47 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset=EUC-KR
Content-Transfer-Encoding: 7bit
Dear Mag, I am Picthing you kinking them. Thanks. Kick them real hard to
where thay can not sit down. and would wish thay could sit in a
wheelechair. Lynn
Magenta Raine wrote:
> Lynn,
> I am glad you found a good church.
>
> I'd like to kick that person in the other church!
> argh!
>
> mag
=========================================================================
Date: Wed, 27 Sep 2000 09:12:56 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: Meeting People
Mime-Version: 1.0
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Not that I would wish anyone ill but... Wouldn't it be ironic if the =
objecting woman had a stroke at some point and needed a ramp herself?
Yvonne
>>> [log in to unmask] 09/26/00 09:04PM >>>
I'll never forget the lady who objected to putting a ramp in at Temple in
Manhattan Beach Calif. It was so another lady who'd had polio would be =
better
able to get in and out on her crutches. the lady that objected said it =
would
ruin the architecture of the Temple. As if it were an 18th century
masterpiece. Not! So, the sisterhood lost their president with polio.
=========================================================================
Date: Wed, 27 Sep 2000 09:59:09 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Oddly enough, the State Supreme Court of Ohio (state or province of the US)
recently held that the local police are not legally responsible to protect
the lives of the citizenry, and it is up to the individual officer whether
or not he/she wants to protect civilian lives in a "deadly force" situation.
What a culture!
-----Original Message-----
From: Gordon Stewart [mailto:[log in to unmask]]
Sent: Tuesday, September 26, 2000 6:26 PM
To: [log in to unmask]
Subject: Re: purpose
>>> [log in to unmask] 09/26/00 02:10 >>>
>That's not possible for you, Gordon. It's my understanding that you =
can't
even "ponder" owning/using a firearm in NZ or neighbor Australia, right?
Unless your speaking of an aboriginal blowgun, eh? ;>)
<
Yep - people own guns - though not as hihgh (per population) as in USA / =
other countries..
of course - most/all of the cops do....
- but they do get into trouble with people shooting guns / robberies =
etc...
- so the bad guys must get the guns from somewhere
- Whether legally or not - They do get them somewhere..
gordon.
=========================================================================
Date: Wed, 27 Sep 2000 09:40:03 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: Meeting People
Mime-Version: 1.0
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It is so sad that people think this way. Life is life - it is not good or =
bad, fair or unfair - it just is. Most people wander through it believing =
in the illusion of control or oblivious to what is truly important - the =
connections we make with the others who walk this journey beside us. How =
sad that many feel the need to narrow their world by limiting their =
experiences and interactions with only those who share only superficial =
similarities (race, creed, abilities, etc.). What they will miss! There is =
only one race : the Human Race, to borrow a cliche.
I can't say how many times (and he's only 3 years old) that I have already =
heard from people who meet Anthony "Oh, but he'll outgrow it (CP)" or "But =
he will walk some day" or "Isn't it a shame he can't play like other =
children". I used to grit my teeth or come back with a caustic remark. Now =
I just smile and let them know that I am happy with how he is and wouldn't =
want him to be other than the wonderful little boy he is. Most people look =
at me with a mixture of shock (that I wouldn't want my son to be "normal") =
or pity ("poor thing must be in denial"). Then the typical response is " =
But he's so cute..." like it's a shame for him to be cute AND handicapped..=
. URGHHH. Most people just don't get it (including my Mom).
A few people, though, have smiled with me and UNDERSTOOD. So maybe there's =
hope after all. :-)
Yvonne
>>> [log in to unmask] 09/26/00 09:19PM >>>
Dear Magenta, thay said that it (my wheelechair) reminded them of what =
life
can do. and thay do not want to be reminded of what life can do to a =
person..
Like putting them in a wheelechair. Lynn
Magenta Raine wrote:
> Lynn, what specifically did they say offended them about your wheelchair?=
=========================================================================
Date: Wed, 27 Sep 2000 09:58:02 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 9/27/00 1:55:43 PM, [log in to unmask] writes:
<< Oddly enough, the State Supreme Court of Ohio (state or province of the US)
recently held that the local police are not legally responsible to protect
the lives of the citizenry, and it is up to the individual officer whether
or not he/she wants to protect civilian lives in a "deadly force" situation.
What a culture! >>
Then what are the police for?? To give parking tickets.
Bobby
=========================================================================
Date: Wed, 27 Sep 2000 10:43:57 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Well, it gives them an "out" to prevent the obligatory lawsuit.
BTW...Even unloaded, there's no sound scarier than that of a Mossberg 500
being racked. One would think it would be a helluva lot more effective on
tape than one of those "barking dog" alarms.
Thinking about this issue and our fellow CPers who are not ambulatory...do
you all worry about personal security much? Especially those of you who
live in large cities?
-Kyle
-----Original Message-----
From: Bobby G. Greer [mailto:[log in to unmask]]
Sent: Wednesday, September 27, 2000 9:58 AM
To: [log in to unmask]
Subject: Re: purpose
In a message dated 9/27/00 1:55:43 PM, [log in to unmask] writes:
<< Oddly enough, the State Supreme Court of Ohio (state or province of the
US)
recently held that the local police are not legally responsible to protect
the lives of the citizenry, and it is up to the individual officer whether
or not he/she wants to protect civilian lives in a "deadly force" situation.
What a culture! >>
Then what are the police for?? To give parking tickets.
Bobby
=========================================================================
Date: Wed, 27 Sep 2000 11:42:07 -0400
Reply-To: joanne <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: joanne <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
> I can't say how many times (and he's only 3 years old) that I have already
=
> heard from people who meet Anthony "Oh, but he'll outgrow it (CP)" or "But
=
> he will walk some day" or "Isn't it a shame he can't play like other =
> children". I used to grit my teeth or come back with a caustic remark. Now
=
> I just smile and let them know that I am happy with how he is and wouldn't
=
> want him to be other than the wonderful little boy he is. Most people look
=
> at me with a mixture of shock (that I wouldn't want my son to be "normal")
=
> or pity ("poor thing must be in denial"). Then the typical response is " =
> But he's so cute..." like it's a shame for him to be cute AND
handicapped..=
> . URGHHH. Most people just don't get it (including my Mom).
When Alex was younger and still in a regular stroller I really didn't much
reaction from people. Once he was independantly mobile in his WC ( rather
than dependant on me to push him in his stroller) people started to give us
those pity looks. It didn't make sense to me why independance over
depencancy was pitied but it was. I have found that MY attitude towards Alex
affects others attitude towards him. I treat his WC as his feet. A normal
toddler/preschooler will wander from mom ( he's already escaped from a
public restroom while I needed to use the toilet. Those push buttons that
make doors open can be a BAD thing at times!!!!!!). He got scolded for
escaping and people walking by just grinned...a normal kid after all. A
toddler/preschooler likes to be carried at times. With the WC I just walk
beside Alex holding hands as I more or less pull him along. We talk and
laugh and other parent kid things. My attitude tells others how to act
towards him although I'm not above giving my mother arch eyebrow to anyone
who is slow picking up the message.
Joanne
=========================================================================
Date: Wed, 27 Sep 2000 12:02:04 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: Re: purpose
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Worry, no. Take prudent precautions, yes.
Left worry and toxic shame/guilt out of my modus operandi years ago.
Survived so far.
S.
----- Original Message -----
From: "Cleveland, Kyle E." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 10:43 AM
Subject: Re: purpose
> Well, it gives them an "out" to prevent the obligatory lawsuit.
>
> BTW...Even unloaded, there's no sound scarier than that of a Mossberg 500
> being racked. One would think it would be a helluva lot more effective on
> tape than one of those "barking dog" alarms.
>
> Thinking about this issue and our fellow CPers who are not ambulatory...do
> you all worry about personal security much? Especially those of you who
> live in large cities?
>
> -Kyle
>
> -----Original Message-----
> From: Bobby G. Greer [mailto:[log in to unmask]]
> Sent: Wednesday, September 27, 2000 9:58 AM
> To: [log in to unmask]
> Subject: Re: purpose
>
>
> In a message dated 9/27/00 1:55:43 PM, [log in to unmask] writes:
>
> << Oddly enough, the State Supreme Court of Ohio (state or province of the
> US)
> recently held that the local police are not legally responsible to protect
> the lives of the citizenry, and it is up to the individual officer whether
> or not he/she wants to protect civilian lives in a "deadly force"
situation.
> What a culture! >>
>
> Then what are the police for?? To give parking tickets.
>
> Bobby
>
>
=========================================================================
Date: Wed, 27 Sep 2000 12:22:54 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
As with worry and toxic shame/guilt being removed from controlling my life,
I've stopped being run by other people's opinions and attitudes. That
leaves me freer to maneuver and get on with getting what's important for me.
Yes, I practice the finger up yours rule; sometimes with lubricant,
sometimes without.
See a disabled child: show pity and offer a cure. Benign discrimination.
People mistake their attitudes for reality. Don't realize they knee-jerk.
Comes with the wiring.
Your kids have moms and dads who "get it." That's all the love and
validation necessary.
S.
----- Original Message -----
From: "joanne" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 11:42 AM
Subject: Re: Meeting People
> > I can't say how many times (and he's only 3 years old) that I have
already
> =
> > heard from people who meet Anthony "Oh, but he'll outgrow it (CP)" or
"But
> =
> > he will walk some day" or "Isn't it a shame he can't play like other =
> > children". I used to grit my teeth or come back with a caustic remark.
Now
> =
> > I just smile and let them know that I am happy with how he is and
wouldn't
> =
> > want him to be other than the wonderful little boy he is. Most people
look
> =
> > at me with a mixture of shock (that I wouldn't want my son to be
"normal")
> =
> > or pity ("poor thing must be in denial"). Then the typical response is "
=
> > But he's so cute..." like it's a shame for him to be cute AND
> handicapped..=
> > . URGHHH. Most people just don't get it (including my Mom).
>
>
> When Alex was younger and still in a regular stroller I really didn't much
> reaction from people. Once he was independantly mobile in his WC ( rather
> than dependant on me to push him in his stroller) people started to give
us
> those pity looks. It didn't make sense to me why independance over
> depencancy was pitied but it was. I have found that MY attitude towards
Alex
> affects others attitude towards him. I treat his WC as his feet. A normal
> toddler/preschooler will wander from mom ( he's already escaped from a
> public restroom while I needed to use the toilet. Those push buttons that
> make doors open can be a BAD thing at times!!!!!!). He got scolded for
> escaping and people walking by just grinned...a normal kid after all. A
> toddler/preschooler likes to be carried at times. With the WC I just walk
> beside Alex holding hands as I more or less pull him along. We talk and
> laugh and other parent kid things. My attitude tells others how to act
> towards him although I'm not above giving my mother arch eyebrow to anyone
> who is slow picking up the message.
> Joanne
>
>
=========================================================================
Date: Wed, 27 Sep 2000 16:35:59 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: Meeting People
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Oh, I forgot about those looks I've gotten when scolding Anthony in =
public. He deserved it at the time for some typical 3 year old behaviour. =
No big deal. But, although no one said anything directly, you could just =
feel the attitude of some folks - "How can she scold that poor, handicapped=
child?" It's so silly, really. But no different than the looks when =
Bobby misbehaves in like fashion and before I can scold him, I get the =
look "Can't she control that child?"=20
Of course, some of my sensitivity to all of this is my own feeling of =
inadequacy as a parent sometimes. :-) I find when I'm frazzled and the =
boys are being a handful I am more sensitive to the reactions of others. =
Attitude can really make a difference in changing the perceptions of =
others, one way or the other. A sense of humour helps, too.
Yvonne
>>> joanne <[log in to unmask]> 09/27/00 11:42AM >>>
A normal toddler/preschooler will wander from mom ( he's already escaped =
from a public restroom while I needed to use the toilet. Those push =
buttons that make doors open can be a BAD thing at times!!!!!!). He got =
scolded for
escaping and people walking by just grinned...a normal kid after all. A
toddler/preschooler likes to be carried at times. With the WC I just walk
beside Alex holding hands as I more or less pull him along. We talk and
laugh and other parent kid things. My attitude tells others how to act
towards him although I'm not above giving my mother arch eyebrow to anyone =
who is slow picking up the message.
Joanne
=========================================================================
Date: Thu, 28 Sep 2000 11:14:04 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: purpose
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/28/00 01:59 >>>
>
Oddly enough, the State Supreme Court of Ohio (state or province of the =
US)
recently held that the local police are not legally responsible to protect
the lives of the citizenry, and it is up to the individual officer whether
or not he/she wants to protect civilian lives in a "deadly force" =
situation.
What a culture!
<
Well - i see their point - a person becomes a cop - to protect people - =
not to get killed..
- Its up to an individual cop as to how much he/she is willing to risk =
their own lives..
However, of the 'cop' TV shows etc.. - They do get up to some hair-raising =
stuff..
- in NZ we get shows on "wildest police chases" etc.. -=20
Gordon.
=========================================================================
Date: Wed, 27 Sep 2000 19:33:00 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Salome (Was: Article in New Mobility)
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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We get tornadoes down here two but, they are quickies. I've lived in Ohio
and have seen quite a few twisters (none on the ground though) The town I
grew up in had a big one come down the main drag on a Palm Sunday in 66. I
wasn't around but, my dad says that one guy woke up in the road on a
mattress. Glad your folks came out of Gordon alright. Our house is so many
feet above the road because of zoning rules.
Hurricanes ain't bad by the time they get to us they are just storms but,
Floyd last year was a bit nerve wreaking.
Beth
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Cleveland, Kyle E.
> Sent: Monday, September 25, 2000 8:45 AM
> To: [log in to unmask]
> Subject: Re: Salome (Was: Article in New Mobility)
>
>
> Ow! Ow! Ow! I had those all the time as a kid. Ow!
>
> My folks managed to avoid Helene, but Gordon kept 'em worried a bit.
> They're at water's edge and the house is 10' above sea level.
> Dad said the
> boat dock/patio was underwater, but the storm surge barely crested the
> seawall. Pretty lucky, I guess.
>
> Hurricanes I think I could deal with because of the warning time.
> Tornadoes, on the other hand... Xenia, Ohio (about 50 miles south) got
> popped hard last week by an F-4 tornado (1 dead, about 100 injured). The
> same town was virtually destroyed 26 years ago in 1974 by another F-4.
>
> Ironically, only one of six tornado sirens was operational last
> week because
> they were installing upgraded software at the time!
>
> -Kyle>
=========================================================================
Date: Wed, 27 Sep 2000 19:43:11 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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One thing that might help is to clarify if you are getting actual
hippotherapy (with an OT or PT) or therapeutic horseback riding
(recreational riding program). If it's hippotherapy (with a therapist),
then you can charge it a therapeutic activity (keep the hippo out of it).
Our local therapeutic riding program only charges $10 a session and
scholarships are available as they are a non-profit organization and rely
heavily on volunteers.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Joy C. Liebeskind
> Sent: Monday, September 25, 2000 11:13 AM
> To: [log in to unmask]
> Subject: Re: Funding for theraputic horseback riding
>
>
> Joyce--Don't know if this helps you but here in Ct BESB ( Bd. of
> Ed Services
> for the Blind ) will fund recreation activities--so many families
> get hippo
> therapy covered by them if Ins. won't pay...the down side child must have
> vission issues that qualify them for services.....
>
>
> Joy- Mom to Sarah almost 13, Cp, Mosaic for Turners Syndrome, & Bilateral
> cataracts ( 1 IOl now) And Joshua -11 years old- SID, OCD, ADHD
>
> ----------
> >From: Bruce notte <[log in to unmask]>
> >To: [log in to unmask]
> >Subject: Funding for theraputic horseback riding
> >Date: Mon, Sep 25, 2000, 10:49 AM
> >
>
> >Hello,
> >
> >My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
> >live in New Jersey and I am interested in finding out if anyone has been
> >successful in getting either their health insurance company or the DDD
> >to pay for hippo therapy (therapeutic horseback riding). My son wants to
> >go but it costs $85 per hourly session. (ouch).
> >
> >Thanks!
> >
> >Joyce
> >
>
=========================================================================
Date: Tue, 26 Sep 2000 22:25:19 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: dcon278 <[log in to unmask]>
Subject: Re: acronyms
how do i get off this list...please
-----Original Message-----
From: Bobby G. Greer <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, September 20, 2000 2:18 PM
Subject: Re: acronyms
>In a message dated 9/20/00 7:48:19 PM, [log in to unmask] writes:
>
><< Something that troubles me deeply is when a parent obtains their own
>identity through their child(ren)'s medical problems. It's kind of like
>soccer parents who obtain some sense of self-worth because their kids do
>well on the playing field. I guess because these are inundated with large
>amounts of medical data on a daily basis, their vocabulary tends to revolve
>around the ubiquitous acronyms of medicalese. Methinks it's a casualty of
>our "information age."
> >>
>
>It also gives them a sense of knowledge and control. We live in an age
>wherein folks think if you can name it, you won more than half the battle.
>Unfortunately, things don't work that way, most times.
>
>Bobby
=========================================================================
Date: Thu, 28 Sep 2000 12:57:46 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: un-subscribe
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
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>>> [log in to unmask] 09/27/00 05:25 >>>
how do i get off this list...please
you send an email to :-
[log in to unmask]
and in the text of the message - put :-
SIGNOFF c-palsy
=========================================================================
Date: Wed, 27 Sep 2000 20:55:07 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Bruce notte <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Thanks. That was very helpful. I've been told on the phone that it is
hippotherapy with a physical therapist. I plan on visiting the place to see
exactly what they do before I consider enrolling Anthony. I also want to see if
the therapist will be riding with Anthony or just overseeing what their
volunteers do. I also will ask if the PT can produce a bill (without the words
hippo or horse) with her PT licence number on it.
We're going to see his orthopedic doctor this Friday and I'll ask him about it
too.
Thanks again!
Joyce
"Elizabeth H. Thiers" wrote:
> One thing that might help is to clarify if you are getting actual
> hippotherapy (with an OT or PT) or therapeutic horseback riding
> (recreational riding program). If it's hippotherapy (with a therapist),
> then you can charge it a therapeutic activity (keep the hippo out of it).
> Our local therapeutic riding program only charges $10 a session and
> scholarships are available as they are a non-profit organization and rely
> heavily on volunteers.
>
> Beth the OT
>
> >From: Bruce notte <[log in to unmask]>
> > >To: [log in to unmask]
> > >Subject: Funding for theraputic horseback riding
> > >Date: Mon, Sep 25, 2000, 10:49 AM
> > >
> >
> > >Hello,
> > >
> > >My name is Joyce, mother of Anthony 10 years, spastic quadriplegic. We
> > >live in New Jersey and I am interested in finding out if anyone has been
> > >successful in getting either their health insurance company or the DDD
> > >to pay for hippo therapy (therapeutic horseback riding). My son wants to
> > >go but it costs $85 per hourly session. (ouch).
> > >
> > >Thanks!
> > >
> > >Joyce
> > >
> >
=========================================================================
Date: Wed, 27 Sep 2000 21:03:58 -0400
Reply-To: [log in to unmask]
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I.S.M." <[log in to unmask]>
Subject: ADMISSION POLICY TO HEAVEN
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Two doctors and an HMO manager died and lined up at the pearly gates =
for admission to heaven. St. Peter asked them to identify themselves.
=20
One doctor stepped forward and said, "I was a pediatric spine surgeon =
and helped kids overcome their deformities."
=20
St. Peter said, "You can enter."
=20
The second doctor said, "I was a psychiatrist. I helped people =
rehabilitate themselves."
=20
St. Peter also invited him in.
=20
The third applicant stepped forward and said, "I was an HMO manager. I =
helped people get cost-effective health care."
=20
St. Peter said, "You can come in too."
=20
As the HMO manager walked by, St. Peter added, "You can only stay three =
days. After that, you can go to hell."
=20
=20
=========================================================================
Date: Wed, 27 Sep 2000 21:25:29 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Meeting People
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 9/27/00 6:16:58 AM Pacific Daylight Time,
[log in to unmask] writes:
> objecting woman had a stroke at some point and needed a ramp herself?
Indeed, Yvonne, indeed. I am sure her words came back to haunt her at some
point.
mag
=========================================================================
Date: Tue, 26 Sep 2000 23:32:16 -0700
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: dcon278 <[log in to unmask]>
sign off c-palsy
=========================================================================
Date: Thu, 28 Sep 2000 13:52:52 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: ADMISSION POLICY TO HEAVEN
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Whats an HMO person ??
are those bad guys ??
Gordon.
>>> "I.S.M." <[log in to unmask]> 09/28/00 01:03 >>>
Two doctors and an HMO manager died and lined up at the pearly gates =3D
for admission to heaven. St. Peter asked them to identify themselves.
=3D20
One doctor stepped forward and said, "I was a pediatric spine surgeon =3D
and helped kids overcome their deformities."
=3D20
St. Peter said, "You can enter."
=3D20
The second doctor said, "I was a psychiatrist. I helped people =3D
rehabilitate themselves."
=3D20
St. Peter also invited him in.
=3D20
The third applicant stepped forward and said, "I was an HMO manager. I =
=3D
helped people get cost-effective health care."
=3D20
St. Peter said, "You can come in too."
=3D20
As the HMO manager walked by, St. Peter added, "You can only stay three =
=3D
days. After that, you can go to hell."
=3D20
=3D20
=========================================================================
Date: Thu, 28 Sep 2000 13:02:41 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: un-subscribe
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/28/00 12:57 >>>
>>> [log in to unmask] 09/27/00 05:25 >>>
how do i get off this list...please
you send an email to :-
[log in to unmask]
<<
DO not put the =3D20 sign at the end of the email..
- This email system (at work) sometimes put those in - dunno why / how to =
get it off..
Gordon..
=========================================================================
Date: Wed, 27 Sep 2000 22:02:43 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Beth Anderson <[log in to unmask]>
Subject: Re: un-subscribe
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi Gordon,
I wrote him privately, taking off the minus 20, and re-sending the listserv
address....... listserv is about as confusing as majordomo to some folks, and he
had sent the command to the 'list' instead.........
See ya
Beth
--
Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans
starchat.net chat room, and instructions for the rvsfans mailing list.
=========================================================================
Date: Wed, 27 Sep 2000 22:10:42 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: David Freels <[log in to unmask]>
Subject: necessity for double-blind controlled studies?
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Is there really a necessity for double-blind controlled studies for
cerebral palsy--children or adults? In other words, does this population have a
history of improvement from placebo?
If a group of 60-year olds with high blood pressure is told, "here's a pill
that will reduce your blood presure", and they all take it--and it's a
sugar pill--and 75% of them do actually have reduced blood pressure, then
it would be reasonable to say that group of patients had improvement from
placebo.
In a group of cp kids/adults aged 1 to 9 or 99 (or whatever range), have
they ever been given a drug or treatment or food or whatever and been told,
"At 10
treatments/dosages you'll be able to sit up on your own. At 20 treatments
you'll be able to stand unaided. At 30 treatments you'll be able to
walk."--and then has this group then in fact been given the equivalent of a
'sugar pill'--something of no theraputic value, something of no basis in
science--and has this population then improved from placebo?
If there is no history of repeated improvement under placebo, then is there
a necessity for double-blind controlled studies for Hyperbaric Oxygen
Therapy in treating cp?
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate of
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
[log in to unmask]
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate of
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
509/275-1618 (efax, sends fax as email attachment)
[log in to unmask]
=========================================================================
Date: Wed, 27 Sep 2000 22:17:29 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: David Freels <[log in to unmask]>
Subject: cp improvement from placebo?
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
List members,
I know many of you tire of my posts on Hyperbaric Oxygen Therapy, but we
have our Medicaid hearing on reimbursement of HBOT resuming in a couple of
days. One of the things the state is saying is that there have been no
double-blind controlled studies with cp kids.
I know most folks on this list are adults, but I would think the
subscribers here would know--of all people--is there a long history of
improvement in cp through placebo treatments.
My guess is there is not. Otherwise my little boy wouldn't be on the floor.
If there's no history of improvement with placebo, then why the necessity
for a double-blind controlled study?
For anything?
Thanks. I really look forward to as many responses as possible.
Sara, David, Rachael, and especially Jimmy Freels
2948 Windfield Circle
Tucker, GA 30084-6714
770/491-6776 (phone and fax)
509/275-1618 (efax, sends fax as email attachment)
[log in to unmask]
=========================================================================
Date: Wed, 27 Sep 2000 22:31:22 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: joanne <[log in to unmask]>
Subject: Re: necessity for double-blind controlled studies?
X-To: [log in to unmask]
MIME-Version: 1.0
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Content-Type: Text/Plain
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-------Original Message-------
From: David Freels=20
To: [log in to unmask]
Subject: necessity for double-blind controlled studies?
In a group of cp kids/adults aged 1 to 9 or 99 (or whatever range), have
they ever been given a drug or treatment or food or whatever and been tol=
d,
"At 10
treatments/dosages you'll be able to sit up on your own. At 20 treatments
you'll be able to stand unaided. At 30 treatments you'll be able to
walk."--and then has this group then in fact been given the equivalent of=
a
'sugar pill'--something of no theraputic value, something of no basis in
science--and has this population then improved from placebo?
David this is where a double blind cross over study will help you get you=
r answers. In this case a pt. with CP will recieve a set amount of HBOT t=
x's as well as the same amount of placebo HBO tx's. Both sets will occur =
in the chamber. Both sets will have dives of equal length of time. The di=
fference is one set will be pressurized O2 and the other will be just reg=
ular 02 pumped into the chamber. The results/improvements that occur afte=
r each session will be assessed after a equal amount of time with equal m=
easurement standard for evaluation. The same child in other words will re=
cieve both HBO and placebo HBO and none of the participants will know whi=
ch is which. Then we could all take the results and/or make up our minds =
on wether to seek out this tx based on these results. This way any type o=
f CP, any age of the patient, can participant as the person will recieve =
both HBO as well as placebo HBO.
Joanne
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate o=
f
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
[log in to unmask]
"I have sworn upon the altar of God, eternal hostility against every form
of tyranny over the mind of man." --Thomas Jefferson, an early advocate o=
f
Hyperbaric Oxygen Therapy.
----------------------------
David Freels
2948 Windfield Circle
Tucker, GA 30084-6714
USA
770/491-6776 (phone and fax)
509/275-1618 (efax, sends fax as email attachment)
[log in to unmask]
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<DIV><I>-------Original Message-------</I></DIV>
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<DIV dir=3Dltr id=3Dfromshowfield><U><I>From:</I></U><B> David Free=
ls=20
<[log in to unmask]></B></DIV>
<DIV dir=3Dltr id=3Dtoshowfield><U><I>To:</I></U><B>=20
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<DIV dir=3Dltr id=3Dsubjectshowfield><U><I>Subject:</I></U><B> nece=
ssity for=20
double-blind controlled studies?</B></DIV>
<P><BR><BR>In a group of cp kids/adults aged 1 to 9 or 99 (or whate=
ver=20
range), have<BR>they ever been given a drug or treatment or food or=
=20
whatever and been told,<BR>"At 10<BR>treatments/dosages you'll be a=
ble to=20
sit up on your own. At 20 treatments<BR>you'll be able to stand una=
ided.=20
At 30 treatments you'll be able to<BR>walk."--and then has this gro=
up then=20
in fact been given the equivalent of a<BR>'sugar pill'--something o=
f no=20
theraputic value, something of no basis in<BR>science--and has this=
=20
population then improved from placebo?<BR></P>
<P> </P>
<P>David this is where a double blind cross over study will help yo=
u get=20
your answers. In this case a pt. with CP will recieve a set amount =
of HBOT=20
tx's as well as the same amount of placebo HBO tx's. Both sets will=
occur=20
in the chamber. Both sets will have dives of equal length of time. =
The=20
difference is one set will be pressurized O2 and the other will be =
just=20
regular 02 pumped into the chamber. The results/improvements that o=
ccur=20
after each session will be assessed after a equal amount of time wi=
th=20
equal measurement standard for evaluation. The same child in other =
words=20
will recieve both HBO and placebo HBO and none of the participants =
will=20
know which is which. Then we could all take the results and/or make=
up our=20
minds on wether to seek out this tx based on these results. Th=
is way=20
any type of CP, any age of the patient, can participant as the pers=
on will=20
recieve both HBO as well as placebo HBO.</P>
<P>Joanne<BR><BR><BR><BR><BR><BR><BR><BR><BR><BR><BR><BR>"I have sw=
orn=20
upon the altar of God, eternal hostility against every form<BR>of t=
yranny=20
over the mind of man." --Thomas Jefferson, an early advocate=20
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>David=20
Freels<BR>2948 Windfield Circle<BR>Tucker, GA=20
30084-6714<BR>USA<BR>770/491-6776 (phone and fax)<BR><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A><B=
R><BR><BR><BR><BR><BR><BR><BR><BR><BR>"I=20
have sworn upon the altar of God, eternal hostility against every=20
form<BR>of tyranny over the mind of man." --Thomas Jefferson, an ea=
rly=20
advocate of<BR>Hyperbaric Oxygen=20
Therapy.<BR>----------------------------<BR>David Freels<BR>2948 Wi=
ndfield=20
Circle<BR>Tucker, GA 30084-6714<BR>USA<BR>770/491-6776 (phone and=20
fax)<BR>509/275-1618 (efax, sends fax as email attachment)<BR><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]<BR><B=
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=========================================================================
Date: Wed, 27 Sep 2000 23:10:26 -0400
Reply-To: "I. S. Margolis" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. S. Margolis" <[log in to unmask]>
Subject: ADMISSION POLICY TO HEAVEN
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Depends on your orientation.
Another acronym. Health Maintenance Organization(s): latest Yankee
experiment in letting free enterprise goof up after government goofs
up--they're getting criticism for putting profits before people by
interfering
in Doctor-Patient decisions to save costs.
Notice my tilt. ;-)
S.
----- Original Message -----
From: "Gordon Stewart" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, September 27, 2000 9:52 PM
Subject: Re: ADMISSION POLICY TO HEAVEN
> Whats an HMO person ??
>
> are those bad guys ??
>
> Gordon.
>
>
> >>> "I.S.M." <[log in to unmask]> 09/28/00 01:03 >>>
> Two doctors and an HMO manager died and lined up at the pearly gates =3D
> for admission to heaven. St. Peter asked them to identify themselves.
> =3D20
> One doctor stepped forward and said, "I was a pediatric spine surgeon =3D
> and helped kids overcome their deformities."
> =3D20
> St. Peter said, "You can enter."
> =3D20
> The second doctor said, "I was a psychiatrist. I helped people =3D
> rehabilitate themselves."
> =3D20
> St. Peter also invited him in.
> =3D20
> The third applicant stepped forward and said, "I was an HMO manager. I =
> =3D
> helped people get cost-effective health care."
> =3D20
> St. Peter said, "You can come in too."
> =3D20
> As the HMO manager walked by, St. Peter added, "You can only stay three =
> =3D
> days. After that, you can go to hell."
> =3D20
> =3D20
>
>
=========================================================================
Date: Thu, 28 Sep 2000 15:37:21 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: accronym file :
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
Version - (dunno) - Maybe in the next publication, i'll include a version =
number.
Gordon.
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=
=3D
C-Palsy Accronym File.
Last updated :- 28 Sep 2000
Official words :-
CP :- Cerebral Palsey
HBOT :- Hyperbaric Oxygen Therapy
HMO :- Health Maintenance Organization(s)
ISP :- Individual Support Plan
Internet Service Provider
KAFO :- Knee Ankle Foot Orthotics
UNKNOWN :-
ADHD
DDD
OCD
OT
PT
PT/OT
SID
SPECT =20
Un-official / funny :-
WTBMWABH :- Wants To Be Married With A Beautiful Husband
WTBMWABW :- Wants To Be Married With A Beautiful Wife ...
Good quotes - if theyre not on the Gordometer, they dont appear here...
"May your life be like toilet paper... Long and useful."
=========================================================================
Date: Wed, 27 Sep 2000 20:52:36 PDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Vicki Hendrickson <[log in to unmask]>
Subject: Re: Funding for theraputic horseback riding
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Joyce,
Another option you might want to consider if insurance won't cover it, is
contacting your local fraternity like the Loyal Order of the Moose, Elks
Club or something like that. They usually have "community projects" that
they contribute to and will help out. My daughter did hippotherapy for 8
1/2 years, (way before it was even accepted as a "therapy") and my folks
Moose lodge collected aluminum cans and gave me a check every month to pay
for her sessions. Our facility also gave scholarships so our cost was
reduced. Now that most insurance companies recognize hippotherapy as
theraputic because they get the one-on-one with the PT. Another key thing
to find out is if the program is Accredited. The way you can find out is
there is a web site at http://www.narha.org There you can find your state
and then find your program. If there is a * next to the name, then they are
accredited, thereby should be covered by your insurance. Another thing, if
you haven't already is call your insurance customer relations or whatever
they call it and ask if they cover hippotherapy by an accredited program.
Hope this helps.
Vicki - Mom to Heather 13 1/2 and Jacob 5
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=========================================================================
Date: Thu, 28 Sep 2000 00:00:25 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: un-subscribe
MIME-Version: 1.0
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In a message dated 9/28/00 2:05:13 AM, [log in to unmask] writes:
<< I wrote him privately, taking off the minus 20, and re-sending the listserv
address....... listserv is about as confusing as majordomo to some folks, and
he
had sent the command to the 'list' instead.........
See ya
Beth
>>
He has been removed
Bobby
=========================================================================
Date: Wed, 27 Sep 2000 21:07:43 PDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: mom mhc <[log in to unmask]>
Subject: Washington State & Parents with Disabilities
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On 9/12, I was asked to testify at the last minute in a parental termination
cases on the state's responsibility under the ADA to provide services to
address a parents cognitive disability, so that she could benefit from
Children & Family Services "reasonable efforts". Basically only standard
services were provided to a mom with an IQ of 75.
I did not expect this mom's PD would prevail because it was at the
termination phase.
Although the judge agreed with the termination, she was quite stident in the
written opinion that DCFS needed to provide specialized services to disabled
parents from the beginning of the case & was quite critical of the
department for not doing so! Basically, the judge agreed with my testimony!
The termination may be appealed. This may is also facing another termination
on her youngest child, so any info would be helpful.
I have sat on an team for 5 yrs telling DCFS this, but finally today they
are seeking out services for this mom, however, reluctantly.
Progress comes one step at a time, especially considering I had to testify
via cell phone while taking my foster child to the doctor.
Renee Hintz
Adept Disability Consultants, Spokane
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=========================================================================
Date: Thu, 28 Sep 2000 00:43:08 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Cindy Mallory <[log in to unmask]>
Subject: Re: theraputic horseback riding
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If anyone can help,
I would like to locate some theraputic horseback riding in York, PA.
Thanks, Cindy
=========================================================================
Date: Thu, 28 Sep 2000 03:06:00 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: Washington State & Parents with Disabilities
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Renee,
have you ever heard of a place called through the looking glass? It is a
small organization in Berkeley Calif. that helps parents with disabilities be
parents.
mag
=========================================================================
Date: Thu, 28 Sep 2000 06:51:26 -0400
Reply-To: joanne <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
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From: joanne <[log in to unmask]>
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----- Original Message -----
From: Bobby G. Greer <[log in to unmask]>
To: mailto:[log in to unmask]
>
> He has been removed
>
> Bobby
OH OH Bobby has a new role as the
TERMINATOR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Joanne
=========================================================================
Date: Thu, 28 Sep 2000 09:24:43 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: Re: Salome (Was: Article in New Mobility)
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Elizabeth-
Yeah, the Palm Sunday tornadoes were pretty nasty and most came through at
night. This was pre-siren days, so the combination of night and no audible
alert meant that there was NO warning. Scary stuff for a little kid of
eight!
This years hurricane season seems pretty light so far. Keep your fingers
crossed.
-----Original Message-----
From: Elizabeth H. Thiers [mailto:[log in to unmask]]
Sent: Wednesday, September 27, 2000 8:33 PM
To: [log in to unmask]
Subject: Re: Salome (Was: Article in New Mobility)
We get tornadoes down here two but, they are quickies. I've lived in Ohio
and have seen quite a few twisters (none on the ground though) The town I
grew up in had a big one come down the main drag on a Palm Sunday in 66. I
wasn't around but, my dad says that one guy woke up in the road on a
mattress.
=========================================================================
Date: Thu, 28 Sep 2000 10:57:20 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: Meeting People
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You're better off not going there, Lynn. If anybody needs reminding that life's
not fair to everyone, it's the "Christians."
M.
sara lynn weaver wrote:
> Dear Magenta, thay said that it (my wheelechair) reminded them of what life
> can do. and thay do not want to be reminded of what life can do to a person..
> Like putting them in a wheelechair. Lynn
>
> Magenta Raine wrote:
>
> > Lynn, what specifically did they say offended them about your wheelchair?
=========================================================================
Date: Thu, 28 Sep 2000 11:03:39 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: acronym file :
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>>> [log in to unmask] 09/27/00 11:37PM >>>
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D
C-Palsy Acronym File.
Last updated :- 28 Sep 2000
Official words :-
CP :- Cerebral Palsey
HBOT/HBO :- Hyperbaric Oxygen Therapy
HMO :- Health Maintenance Organization(s)
ISP :- Individual Support Plan
:-Internet Service Provider
KAFO :- Knee Ankle Foot Orthotics
UNKNOWN :-
>>>>>>>>>>>>
DDD ? Developmental Delay
ADHD - Attention Deficit Hyperactivity Disorder
OCD - Obsessive Compulsive Disorder
OT - Occupational Therapy
PT - Physiotherapy or Physical Therapy
SID - Sensory Integration Disorder
SLP - Speech Language Pathology (or ST - Speech Therapy)
SPECT Single Photon Emission Computed Tomography =20
Also,
AFO - Ankle Foot Orthotics
CVI - Cortical Visual Impairment
IVH - Intra Ventricular Hemorrhage
PDD - Pervasive Developmental Disorder
PVL - Peri Ventricular Leukomalacia
Hope this helps.
Yvonne
=========================================================================
Date: Thu, 28 Sep 2000 20:41:22 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: accronym file :
In-Reply-To: <[log in to unmask]>
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Gordon
OT=Occupational Therapist or Overtime Time
PT=Physical Therapist
OT/PT= see the above
ADHD=Attention Deficit Disorder/Hyperactive Disorder (think Tigger)
OCD-Obsessive Compulsive Disorder (usually, although I'm thinkin' it may
have been used in another context)
DDD=Developmental delay?
SID=Sensory Integration Disorder/ or more popularly known as the disorder
that babies die from in their sleep the name of which escapes me because I'm
wiped out.
And I just know someone else has answered this already.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Gordon Stewart
> Sent: Wednesday, September 27, 2000 10:37 PM
> To: [log in to unmask]
> Subject: accronym file :
>
>
> Version - (dunno) - Maybe in the next publication, i'll include a
> version =
> number.
>
> Gordon.
> C-Palsy Accronym File.
>
> Last updated :- 28 Sep 2000
>
> Official words :-
>
> CP :- Cerebral Palsey
> HBOT :- Hyperbaric Oxygen Therapy
> HMO :- Health Maintenance Organization(s)
>
> ISP :- Individual Support Plan
> Internet Service Provider
>
> KAFO :- Knee Ankle Foot Orthotics
>
> UNKNOWN :-
>
> ADHD
> DDD
> OCD
> OT
> PT
> PT/OT
> SID
>
>
> SPECT =20
>
>
> Un-official / funny :-
>
> WTBMWABH :- Wants To Be Married With A Beautiful Husband
> WTBMWABW :- Wants To Be Married With A Beautiful Wife ...
>
> Good quotes - if theyre not on the Gordometer, they dont appear here...
>
> "May your life be like toilet paper... Long and useful."
>
=========================================================================
Date: Fri, 29 Sep 2000 12:55:19 +1200
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Gordon Stewart <[log in to unmask]>
Subject: Re: accronym file :
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Thanks - How often shall i post it to this list ?
- as its been posted several times this week - i'll wait a few months..
- People can always search for it...
and my favourite quote ive found :-
"May your life be like toilet paper... Long and useful."
Gordon.
=========================================================================
Date: Thu, 28 Sep 2000 21:46:27 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: sara lynn weaver <[log in to unmask]>
Subject: Re: Meeting People
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Dear Michale, I do not go there anymore. the Lord has given me another church to go
to. and thay are so nice to me. thay live the christian life. not just say thay are
chrisianis. It is so nice to have a christian home to go to. since I do not have any
family. Lynn
"Michael H. Collis" wrote:
> You're better off not going there, Lynn. If anybody needs reminding that life's
> not fair to everyone, it's the "Christians."
> M.
>
> sara lynn weaver wrote:
>
> > Dear Magenta, thay said that it (my wheelechair) reminded them of what life
> > can do. and thay do not want to be reminded of what life can do to a person..
> > Like putting them in a wheelechair. Lynn
> >
> > Magenta Raine wrote:
> >
> > > Lynn, what specifically did they say offended them about your wheelchair?
=========================================================================
Date: Fri, 29 Sep 2000 06:54:58 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Eve <[log in to unmask]>
Subject: hello
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Hello all!
I have just joined this list, as I am a mainstream classroom teacher =
with two children with Cerebral Palsy in my classroom this year. I am =
presently being trained in some assistive technology, and would welcome =
any suggestions!
=========================================================================
Date: Fri, 29 Sep 2000 08:43:10 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: hello
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Eve,
Welcome to the list.What grade do you teach and how old are your two
students
with CP. Everyone on the list will try to assist you. Just ask specific
questions and we
will try to answer them or refer you to and appropriate source.
Bobby
Eve wrote:
> Hello all!
> I have just joined this list, as I am a mainstream classroom teacher =
> with two children with Cerebral Palsy in my classroom this year. I am =
> presently being trained in some assistive technology, and would welcome =
> any suggestions!
=========================================================================
Date: Fri, 29 Sep 2000 10:43:34 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Cleveland, Kyle E." <[log in to unmask]>
Subject: New take on an old tale
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The mind of a six year old is wonderful. First Grade.....true story.....
One day the first grade teacher was reading the
story of the Three Little Pigs to her class. She
came to the part of the story where the first pig
was trying to accumulate the building materials
for his home.
She read, "...And so the pig went up to the man
with the wheelbarrow full of straw and said, "Pardon
me sir, but may I have some of that straw to build my
house?'"
The teacher paused then asked the class, "And what
do you think that man said?"
One little boy raised his hand and said,
"I think he said 'Holy Shit! A talking pig!' "
The teacher was unable to teach for the next 10 minutes.
=========================================================================
Date: Fri, 29 Sep 2000 10:00:26 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: New take on an old tale
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Kyle this is so cute and very true. LOL
Cleveland, Kyle E. wrote:
> The mind of a six year old is wonderful. First Grade.....true story.....
>
> One day the first grade teacher was reading the
> story of the Three Little Pigs to her class. She
> came to the part of the story where the first pig
> was trying to accumulate the building materials
> for his home.
>
> She read, "...And so the pig went up to the man
> with the wheelbarrow full of straw and said, "Pardon
> me sir, but may I have some of that straw to build my
> house?'"
>
> The teacher paused then asked the class, "And what
> do you think that man said?"
>
> One little boy raised his hand and said,
> "I think he said 'Holy Shit! A talking pig!' "
>
> The teacher was unable to teach for the next 10 minutes.
=========================================================================
Date: Fri, 29 Sep 2000 11:17:01 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: accronym file :
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Content-Transfer-Encoding: quoted-printable
>>> [log in to unmask] 09/28/00 09:41PM >>>
SID=3DSensory Integration Disorder/ or more popularly known as the =
disorder
that babies die from in their sleep the name of which escapes me because =
I'm
wiped out.
Beth the OT>>>>>
SIDS - Sudden Infant Death Syndrome - In no way related to SID (see above) =
or CP necessarily.
Beth, loved the Tigger comment. I do believe that's the definitive =
metaphor for ADHD, lol.... still chuckling....
Yvonne
=========================================================================
Date: Fri, 29 Sep 2000 11:18:48 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: New take on an old tale
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LOL!!!!!! ROTFLOL!!!!!=20
Yvonne
>>> [log in to unmask] 09/29/00 10:43AM >>>
The mind of a six year old is wonderful. First Grade.....true story.....
One day the first grade teacher was reading the
story of the Three Little Pigs to her class. She
came to the part of the story where the first pig
was trying to accumulate the building materials
for his home.
She read, "...And so the pig went up to the man
with the wheelbarrow full of straw and said, "Pardon
me sir, but may I have some of that straw to build my
house?'"
The teacher paused then asked the class, "And what
do you think that man said?"
One little boy raised his hand and said,
"I think he said 'Holy Shit! A talking pig!' "
The teacher was unable to teach for the next 10 minutes.
=========================================================================
Date: Fri, 29 Sep 2000 10:23:39 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
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Yvonne,
What was Beth's tigger comment, I missed it?
Bobby
Yvonne Craig wrote:
> >>> [log in to unmask] 09/28/00 09:41PM >>>
> SID=3DSensory Integration Disorder/ or more popularly known as the =
> disorder
> that babies die from in their sleep the name of which escapes me because =
> I'm
> wiped out.
>
> Beth the OT>>>>>
>
> SIDS - Sudden Infant Death Syndrome - In no way related to SID (see above) =
> or CP necessarily.
>
> Beth, loved the Tigger comment. I do believe that's the definitive =
> metaphor for ADHD, lol.... still chuckling....
>
> Yvonne
=========================================================================
Date: Fri, 29 Sep 2000 11:49:18 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Tigger?
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These days I miss everything and don't know I miss anything.
Who/What's Tigger?
S.
----- Original Message -----
From: "greer.bobby" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 29, 2000 11:23 AM
Subject: Re: accronym file :
> Yvonne,
>
> What was Beth's tigger comment, I missed it?
>
> Bobby
>
> Yvonne Craig wrote:
>
> > >>> [log in to unmask] 09/28/00 09:41PM >>>
> > SID=3DSensory Integration Disorder/ or more popularly known as the =
> > disorder
> > that babies die from in their sleep the name of which escapes me because
=
> > I'm
> > wiped out.
> >
> > Beth the OT>>>>>
> >
> > SIDS - Sudden Infant Death Syndrome - In no way related to SID (see
above) =
> > or CP necessarily.
> >
> > Beth, loved the Tigger comment. I do believe that's the definitive =
> > metaphor for ADHD, lol.... still chuckling....
> >
> > Yvonne
>
>
=========================================================================
Date: Fri, 29 Sep 2000 12:59:08 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: accronym file :
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
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She wrote:
"ADHD=3DAttention Deficit Disorder/Hyperactive Disorder (think Tigger)"
My sons love Winnie-the-Pooh :
"The wonderful thing about Tiggers.... they're bouncy, trouncy, flouncy, =
pouncy, fun, fun, fun, fun, FUN..." Sounds like an ADHD kid to me. =
<smile>
Yvonne
>>> [log in to unmask] 09/29/00 11:23AM >>>
Yvonne,
What was Beth's tigger comment, I missed it?
Bobby
Yvonne Craig wrote:
> >>> [log in to unmask] 09/28/00 09:41PM >>>
> SID=3D3DSensory Integration Disorder/ or more popularly known as the =3D
> disorder
> that babies die from in their sleep the name of which escapes me because =
=3D
> I'm
> wiped out.
>
> Beth the OT>>>>>
>
> SIDS - Sudden Infant Death Syndrome - In no way related to SID (see =
above) =3D
> or CP necessarily.
>
> Beth, loved the Tigger comment. I do believe that's the definitive =3D
> metaphor for ADHD, lol.... still chuckling....
>
> Yvonne
=========================================================================
Date: Fri, 29 Sep 2000 12:10:55 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "greer.bobby" <[log in to unmask]>
Organization: The University of Memphis
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii; x-mac-type="54455854";
x-mac-creator="4D4F5353"
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My son who is now a 30+ bussiness man had a Winnie the Pooh mobile over his
baby bed. Everytime I hear that song, I think of waking him up as a baby. I get
tears in my eyes even now. My Grandson's room is also done in Winnie decor.
Bobby
Yvonne Craig wrote:
> She wrote:
> "ADHD=3DAttention Deficit Disorder/Hyperactive Disorder (think Tigger)"
>
> My sons love Winnie-the-Pooh :
>
> "The wonderful thing about Tiggers.... they're bouncy, trouncy, flouncy, =
> pouncy, fun, fun, fun, fun, FUN..." Sounds like an ADHD kid to me. =
> <smile>
>
> Yvonne
>
> >>> [log in to unmask] 09/29/00 11:23AM >>>
> Yvonne,
>
> What was Beth's tigger comment, I missed it?
>
> Bobby
>
> Yvonne Craig wrote:
>
> > >>> [log in to unmask] 09/28/00 09:41PM >>>
> > SID=3D3DSensory Integration Disorder/ or more popularly known as the =3D
> > disorder
> > that babies die from in their sleep the name of which escapes me because =
> =3D
> > I'm
> > wiped out.
> >
> > Beth the OT>>>>>
> >
> > SIDS - Sudden Infant Death Syndrome - In no way related to SID (see =
> above) =3D
> > or CP necessarily.
> >
> > Beth, loved the Tigger comment. I do believe that's the definitive =3D
> > metaphor for ADHD, lol.... still chuckling....
> >
> > Yvonne
=========================================================================
Date: Fri, 29 Sep 2000 13:43:50 -0400
Reply-To: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "I. STEPHEN MARGOLIS" <[log in to unmask]>
Subject: Re: Tigger?
X-To: Yvonne Craig <[log in to unmask]>
MIME-Version: 1.0
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Thanks!
Written in the 30's. I may have been a child in the 40's???
So that's the source for Calvin's imaginary tiger, Hobbes? (See what I
didn't miss and what I did?) I didn't follow Milne or many other favorite
childhood stories. Maybe it's not too late to catch up.
Is being exuberant and uninhibited now treated as disorder? <GRIN>
S.
----- Original Message -----
From: "Yvonne Craig" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 29, 2000 1:10 PM
Subject: Re: [C-PALSY] Tigger?
It's okay... If you don't have toddlers you wouldn't necessarily get the
reference. Tigger is Winnie-the-Pooh's friend. He is a frenetic stuffed
tiger with a spring in his tail. His favourite thing to do is to Bounce and
Pounce on everyone else. He is exhuberant and uninhibited in his joy.
The Pooh characters were created by A. A. Milne in a series of children's
books (? written in the 30's). The stories were written for his son. The
real bear called Winnie (short for Winnipeg, the soldier's home town)
belonged to a Canadian soldier who left him in London, England (at the zoo)
when he went over to Europe to fight in WW1.
Disney has made several movies and videos over the years. The Tigger Movie
was released last year.
Yvonne
>>> "I. STEPHEN MARGOLIS" <[log in to unmask]> 09/29/00 11:49AM >>>
These days I miss everything and don't know I miss anything.
Who/What's Tigger?
S.
----- Original Message -----
From: "greer.bobby" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 29, 2000 11:23 AM
Subject: Re: accronym file :
> Yvonne,
>
> What was Beth's tigger comment, I missed it?
>
> Bobby
>
> Yvonne Craig wrote:
>
> > >>> [log in to unmask] 09/28/00 09:41PM >>>
> > SID=3DSensory Integration Disorder/ or more popularly known as the =
> > disorder
> > that babies die from in their sleep the name of which escapes me because
=
> > I'm
> > wiped out.
> >
> > Beth the OT>>>>>
> >
> > SIDS - Sudden Infant Death Syndrome - In no way related to SID (see
above) =
> > or CP necessarily.
> >
> > Beth, loved the Tigger comment. I do believe that's the definitive =
> > metaphor for ADHD, lol.... still chuckling....
> >
> > Yvonne
>
>
=========================================================================
Date: Fri, 29 Sep 2000 14:09:37 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Yvonne Craig <[log in to unmask]>
Subject: Re: accronym file :
Mime-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
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I knew you were a big softie, Bobby!=20
Our nursery is done in Pooh, too. But "classic" Pooh versus Disney's =
version. If you get a chance to see the original books, the illustrations =
of the characters are much different : softer shapes, pastels. My kids =
like the brightness of the Disney stuff, though.=20
Aren't traditions great?
Yvonne
>>> [log in to unmask] 09/29/00 01:10PM >>>
My son who is now a 30+ bussiness man had a Winnie the Pooh mobile over =
his
baby bed. Everytime I hear that song, I think of waking him up as a baby. =
I get
tears in my eyes even now. My Grandson's room is also done in Winnie =
decor.
Bobby
Yvonne Craig wrote:
> She wrote:
> "ADHD=3D3DAttention Deficit Disorder/Hyperactive Disorder (think =
Tigger)"
>
> My sons love Winnie-the-Pooh :
>
> "The wonderful thing about Tiggers.... they're bouncy, trouncy, flouncy, =
=3D
> pouncy, fun, fun, fun, fun, FUN..." Sounds like an ADHD kid to me. =3D
> <smile>
>
> Yvonne
>
> >>> [log in to unmask] 09/29/00 11:23AM >>>
> Yvonne,
>
> What was Beth's tigger comment, I missed it?
>
> Bobby
>
> Yvonne Craig wrote:
>
> > >>> [log in to unmask] 09/28/00 09:41PM >>>
> > SID=3D3D3DSensory Integration Disorder/ or more popularly known as the =
=3D3D
> > disorder
> > that babies die from in their sleep the name of which escapes me =
because =3D
> =3D3D
> > I'm
> > wiped out.
> >
> > Beth the OT>>>>>
> >
> > SIDS - Sudden Infant Death Syndrome - In no way related to SID (see =
=3D
> above) =3D3D
> > or CP necessarily.
> >
> > Beth, loved the Tigger comment. I do believe that's the definitive =
=3D3D
> > metaphor for ADHD, lol.... still chuckling....
> >
> > Yvonne
=========================================================================
Date: Fri, 29 Sep 2000 15:29:48 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 9/29/00 6:14:22 PM, [log in to unmask] writes:
<< knew you were a big softie, Bobby!=20
>>
LOL The truth is revealed. Never thought of Tigger as ADHD. Makes you wonder
about the "wonders" of our modern day. Take a bouncy, energetic loving being
like Tigger and give him a Ritalin pill to calm him down. Hmmmmm.
Bobby
=========================================================================
Date: Fri, 29 Sep 2000 17:36:03 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: New take on an old tale
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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Kyle,
i love it! a talking pig...
;_)
=========================================================================
Date: Fri, 29 Sep 2000 20:45:28 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Bruce notte <[log in to unmask]>
Subject: Re: hello
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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I would love to help you. My son has been using assistive technology since he
was 18 months old and he is now 10 1/2 and in a regular 5th grade class. Can
you please tell me what grade you are teaching because the technology changes
as children grow. Also knowing what state you are in would be helpful in
referring you to local resources.
You also might want to check with the parents. They could have a wealth of
knowledge. I had to introduce my son's district to to the concept of
assistive technology. Of course that was 7 years ago and there was
significant resistance from our district at that time.
Joyce, mother of Anthony
Eve wrote:
> Hello all!
> I have just joined this list, as I am a mainstream classroom teacher =
> with two children with Cerebral Palsy in my classroom this year. I am =
> presently being trained in some assistive technology, and would welcome =
> any suggestions!
=========================================================================
Date: Fri, 29 Sep 2000 22:14:45 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Eve <[log in to unmask]>
Subject: Re: hello
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Joyce,
Thank you so much for your reply. I teach 6th grade in New Jersey, and
there is an abundance of support form the district and the parents in
setting up this program. What state are you in?
We will be using Write:Outloud, and Co Writer, along with IntelliKeys.
Several of the teachers who will be working with my student were in a
training session, and will continue to be trained with the technology
throughout the year. I have an open line of communication with the parents,
and they are extremely supportive of our program. Some of my question is
related to my expectations of this student, because it seems the more I
convey that I expect, the more he pushes himself. However, I want to be
realistic while setting high expectations. I also do not his aide to do his
work, and "enable" him.
Thanks for any suggestions!
----- Original Message -----
From: Bruce notte <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 29, 2000 8:45 PM
Subject: Re: hello
> I would love to help you. My son has been using assistive technology since
he
> was 18 months old and he is now 10 1/2 and in a regular 5th grade class.
Can
> you please tell me what grade you are teaching because the technology
changes
> as children grow. Also knowing what state you are in would be helpful in
> referring you to local resources.
>
> You also might want to check with the parents. They could have a wealth of
> knowledge. I had to introduce my son's district to to the concept of
> assistive technology. Of course that was 7 years ago and there was
> significant resistance from our district at that time.
>
> Joyce, mother of Anthony
>
> Eve wrote:
>
> > Hello all!
> > I have just joined this list, as I am a mainstream classroom teacher =
> > with two children with Cerebral Palsy in my classroom this year. I am =
> > presently being trained in some assistive technology, and would welcome
=
> > any suggestions!
=========================================================================
Date: Sat, 30 Sep 2000 08:58:37 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: accronym file :
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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It's what we call my niece who has ADHD. She's just one skinny little
bouncy Tigger. A much more positive way of looking at her abilities we
think.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Bobby G. Greer
> Sent: Friday, September 29, 2000 2:30 PM
> To: [log in to unmask]
> Subject: Re: accronym file :
>
>
> In a message dated 9/29/00 6:14:22 PM, [log in to unmask] writes:
>
> << knew you were a big softie, Bobby!=20
> >>
>
> LOL The truth is revealed. Never thought of Tigger as ADHD. Makes
> you wonder
> about the "wonders" of our modern day. Take a bouncy, energetic
> loving being
> like Tigger and give him a Ritalin pill to calm him down. Hmmmmm.
>
> Bobby
>
=========================================================================
Date: Sat, 30 Sep 2000 09:17:15 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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I think children may eventually outgrow ADHD. I know I was a Tigger
growing up at Matheny, and yet I have a normal concentration span now
without Ritalin...
"Elizabeth H. Thiers" wrote:
> It's what we call my niece who has ADHD. She's just one skinny little
> bouncy Tigger. A much more positive way of looking at her abilities we
> think.
>
> Beth the OT
>
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Bobby G. Greer
> > Sent: Friday, September 29, 2000 2:30 PM
> > To: [log in to unmask]
> > Subject: Re: accronym file :
> >
> >
> > In a message dated 9/29/00 6:14:22 PM, [log in to unmask] writes:
> >
> > << knew you were a big softie, Bobby!=20
> > >>
> >
> > LOL The truth is revealed. Never thought of Tigger as ADHD. Makes
> > you wonder
> > about the "wonders" of our modern day. Take a bouncy, energetic
> > loving being
> > like Tigger and give him a Ritalin pill to calm him down. Hmmmmm.
> >
> > Bobby
> >
=========================================================================
Date: Sat, 30 Sep 2000 10:56:35 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 9/30/00 1:15:52 PM, [log in to unmask] writes:
<< I think children may eventually outgrow ADHD. I know I was a Tigger
growing up at Matheny, and yet I have a normal concentration span now
without Ritalin... >>
Good for you Mike. I think we have medicated the world. In the "olden" days
the environment was safer to roam around in and "Tigger's" had more
opportunity to let off steam.
Bobby
=========================================================================
Date: Sat, 30 Sep 2000 11:14:41 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Michael H. Collis" <[log in to unmask]>
Subject: Re: accronym file :
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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I think we have overmedicated it.
Mike
"Bobby G. Greer" wrote:
> Good for you Mike. I think we have medicated the world. In the "olden" days
> the environment was safer to roam around in and "Tigger's" had more
> opportunity to let off steam.
>
> Bobby
=========================================================================
Date: Sat, 30 Sep 2000 20:43:06 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: Magenta Raine <[log in to unmask]>
Subject: Re: hello
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my favorite teachers were the ones who pushed me gently, but firmly. The
more they expected of me, the more I expected of myself.
=========================================================================
Date: Sat, 30 Sep 2000 21:19:43 -0400
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Barber, Kenneth L." <[log in to unmask]>
Subject: Re: hello
MIME-Version: 1.0
Content-Type: text/plain
ahh.... yes, i remember a teacher that thought i was as smart as 4 people
put together. i know she kept on saying, "you have an iq of 4."
-----Original Message-----
From: Magenta Raine [mailto:[log in to unmask]]
Sent: Saturday, September 30, 2000 8:43 PM
To: [log in to unmask]
Subject: Re: hello
my favorite teachers were the ones who pushed me gently, but firmly. The
more they expected of me, the more I expected of myself.
=========================================================================
Date: Sat, 30 Sep 2000 22:03:20 -0500
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Elizabeth H. Thiers" <[log in to unmask]>
Subject: Re: accronym file :
In-Reply-To: <[log in to unmask]>
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I work with a lot of kids who have this diagnosis or are borderline. I tell
parents I know it can be frustrating but, think of how those qualities will
come in handy later on. But, there is definately a difference between
active kids and kids with ADHD.
Beth the OT
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Michael H. Collis
> Sent: Saturday, September 30, 2000 8:17 AM
> To: [log in to unmask]
> Subject: Re: accronym file :
>
>
> I think children may eventually outgrow ADHD. I know I was a Tigger
> growing up at Matheny, and yet I have a normal concentration span now
> without Ritalin...
>
> "Elizabeth H. Thiers" wrote:
>
> > It's what we call my niece who has ADHD. She's just one skinny little
> > bouncy Tigger. A much more positive way of looking at her abilities we
> > think.
> >
> > Beth the OT
=========================================================================
Date: Sat, 30 Sep 2000 23:52:41 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: accronym file :
MIME-Version: 1.0
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In a message dated 10/1/00 2:05:25 AM, [log in to unmask] writes:
<< But, there is definately a difference between
active kids and kids with ADHD.
>>
No doubt there are truly ADHD kids, but given the loose and subjective
criteria there are unfortunately too many falsa positives. Just my humble
opinion.
Bobby
=========================================================================
Date: Sat, 30 Sep 2000 23:55:30 EDT
Reply-To: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
Sender: "St. John's University Cerebral Palsy List"
<[log in to unmask]>
From: "Bobby G. Greer" <[log in to unmask]>
Subject: Re: hello
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 10/1/00 1:20:13 AM, [log in to unmask] writes:
<< ahh.... yes, i remember a teacher that thought i was as smart as 4 people
put together. i know she kept on saying, "you have an iq of 4."
>>
good one Ken
Bobby