<<Disclaimer: Verify this information before applying it to your situation.>> Hi Listmates, about a week ago, I sent a post about my experiencing recurrent diarrhea and shared my frustration in dealing with it. I was overwhelmed with the support of 25 replies! Thank you all for the wonderful support! Here's the summary: ...Mildred O. WEB SITES: Leaky Gut Syndromes: Breaking the Vicious Cycle - HealthWorld Online http://www.healthy.net/library/articles/galland/Leakygut.htm ------------------------- http://ibscrohns.about.com/health/ibscrohns/gi/dynamic/offsite.htm?site= http://www.gastro.net.au/diseases/microscopiccolitis.html ------------------------- you might want to get a comprehensive stool analysis test - more info: http://www.gsdl.com/assessments/cdsa/index.html ------------------------- I had mega food problems which I am still working out but much improved when I learned about amine and salicylate intolerance. Check out: <http://www.ozemail.com.au/~sdengate/> ------------------------- http://www.delphi.com/celiac http://www.csaceliacs.org/ ------------------------- Have your doctor check for microscopic colitis, which can be associated with celiac. http://www.finerhealth.com/Educational_Info/Microscopic_Colitis ------------------------- www.celiac.com Scroll down the table of contents to an article: "Celiac in the 90s and Beyond". This is by Dr. Murray. In the 4th.paragraph from the end are his recommendations..... recheck the diagnosis look for enzyme supplements check pancreatic problems, lymphoma, etc. ================================== BOOKS/ARTICLES Leaky Gut Syndromes: Breaking the Vicious Cycle (c) 1995, Leo Galland, M.D., F.A.C.N. (I have a copy. Let me know if you'd like a copy, and I'll fax it to you.) Intestinal Permeability by Simon Martin First published in BioMed Newsletter Issue No. 11, May 1995. Breaking the Vicious Cycle. I found the reason for my diarrhea: carbohydrates (even gluten free). ==================================== ON HIDDEN GLUTENS: An "identical" prescription that the manufacturer told me was GF. No more generics for me ------------------------- Have you checked all your medications? Are you using canola oil, white vinegar or products that contain vinegar, balsamic vinegar that is cut with white vinegar? Stay away from Pam, certain margarines, etc. ===================================== ON NON-CELIAC CAUSES: *get a comprehensive stool analysis test *Infection *Microscopic colitis <http://ibscrohns.about.com/health/ibscrohns/gi/dynamic/offsite.htm?site= http://www.gastro.net.au/diseases/microscopiccolitis.html> *A parasite. A common parasite here in Alaska is giarrdia(sp?), which we call 'beaver fever'. *Imbalance microbiology (ie wrong bacteria/too much yeast). *Amine and salicylate intolerance. I can have salicylates, but amines do me in. http://www.ozemail.com.au/~sdengate/ *Gallbladder. I had diarrhea and pain. Gallstones are very common. *Eliminate lactose from your diet for awhile. It is one of the more common causes of chronic diarrhea besides CD. *Irritable bowel syndrome (IBS). * many celiac adults have an insufficiency produced by the pancreas. *Amine and salicylate intolerance. Check out http://www.ozemail.com.au/~sdengate/ *carbohydrates (even gluten free). ============================= ON TREATMENT *Be agressive. You need to keep going back to the doctor and ask him or her to treat you more aggressively. *Try the pepto bismol therapy. It is very save. Ask your doctor....i did it twice and my symptoms have improved 100% *Get the homeopathic remedy VERATRUM ALB 30C, take two pills under the tongue with each diarrhea attack. It should stop almost instantly with no side effects build up your gut. *A pharmacist said: keep narcotic analgesics around for days like that. They ease the pain, help the diarrhea and let me get sleep. I never have to take more than 1 or 2 to get me through. I wouldn't recommend it to anyone though, because being a pharmacist, I've seen too many people hooked on narcotics... You may want to check out every medication you may be on. So many list GI distress and diarrhea as a side effect. I noticed you take Ginko? Do you also take huperzine A? It can increase cholinergic activity and make you have diarrhea. Ginko could be doing it if you aren't using a standardized extract or making an infusion with the leaves. You might try imodium or a fiber supplement. There is also a medication called Equalactin that helps produce a normal stool whether the problem is diarrhea or constipation. It's used in irritable bowel syndrome, but I'm not sure of the GF status of this product. *A clinical nutrition student: Maintain a food and symptom diary. It will help you pin point what is ingested just prior to your bouts of diarrhea.= Include in it how you feel emotionally. There are other causes of diarrhea for example lactose the sugar in milk. Each of these conditions require different strategies to treat. *Starting over. Begin again with very few (boring) food items, maintain them for a week, and then add another new one. Use not sauces or spices, go plain. You could do rice, chicken, and a vegetable for dinner. Eggs and fruit for breakfast. Chicken, rice and vegetable for lunch. Slowly build up from there. Funny, that's what we do to our kids when they are babies and it works so well. *Digestive enzymes. I have had similar problems for the last few years and had removed so much (food) from my diet that it was pretty sparce. My MD suspected refractory sprue or a lymphoma since I was losing weight. I had asked him previously to order prescription enzymes because of an article that Joe Murray from Mayo Clinic had written. He (my MD) had always refused, but after a new endoscopy and biopsy showed no increased villi damage he agreed to prescribe Pancrease capsules. These are much more potent than those you can buy in the health food store and at the International Conference last weekend these were discussed as being helpful when the diet is correct and the symptoms persist. There doesn't seem to be any down side that I can find in the literature. *I am aged 54 and maybe it takes a lot longer when you are older, than a child who would perhaps respond more quickly to a gf diet (I've been on a strict diet for 18 months) A gastoenterologist said that for adults the average time to anything like full recovery was 2 to 3 years. *Rice will get you over the runs, and when it does, include it in your daily diet *Get a comprehensive stool analysis test *recheck the diagnosis, look for enzyme supplements, and check pancreatic problems, lymphoma, etc.