Gordon, you AIN'T stupid! Moebius syndrome is a congenital (meaning, it started very early in fetal development) oculofacial (eyes and face) paralysis. In other words, I can't really close my eyes, raise my eye brows, smile or frown or show any facial expression. Do you remember hearing about the little girl (Chelsey) who had "smile surgery" five years ago, in California? THAT is "Moebius syndrome". There are a whole lot of "other" things .... from respiratory (kids with trachs, ventilators), eating problems (kids w/ g-tubes), "Poland anomaly" (chest and should abnormalities, club feet, missing feet or hands, syndactyly (webbed or small hands), autism, retardation, depression, etc. I knew nothing - NOTHING - when I was a kid. I just thought I was weird, different, etc. And I kept it all inside and pretended to be "normal" because that is what I thought everybody expected. I didn't even know if I "qualified" to be "disabled" (I just thought I "qualified" for 'weird or different') It's only after getting the diagnosis (when I was 22) and looking up information (ALL of it strictly medical in nature, not a pinch of social stuff) that I later found stuff written about the social-emotional aspects of a facial disfigurement. Frankly, I wish there had been some way this all could have been introduced to me when I was a kid, in some "developmentally appropriate" manner. But no one ever seems to ask the adults with it how they think the kids could benefit by knowing things about their disabilities. You, me, everybody else has a RIGHT to know about our bodies! Like how they got the disability they got, and how others have fared in the past with the same things. Our disability history is no less valid than our family history! We look at albums showing grandma and grandpa so we have a sense of their history, but what about OUR history ... how have others fared with the same thing we have, before us?