Hi Bobby and Ken!!! I know when I was new to this - I desperately wanted an adult with CP like Amber's to talk too. I couldn't find one. I wanted to know things that Amber had no way of articulating as a baby. At that time she had no apparent pain sensation in her her right side - or even acknowdgement of having an arm or hand there. I had left Amber in father's care and he taken her and placed her on the concrete patio - while he did some yard work and she was crawling by then, and he didn't think or anticipate her moves and I got her later, with the back of her right hand all torn up from dragging it across the concrete - but it did not seem to hurt her and I had horrible concerns about what could happen with no pain sensation. I had always in much as possible to tried to place myself in Amber's shoes in an effort to anticipate problems or accidents and not overly frustrate her with things she couldn't accomplish. Its Ironic that in trying to make sure she was always able to have her left and adept hand available - I carried her exclusive on my right hip and twisted a portion my spine ( the vertabrae) until they actually point sideways. I was intent on helping her I forgot - me. While by the time I finally found lists for parents - due to getting a computer and getting Internet access - I found I had oldest kid and I was helping other parents - becasue I could still remember my frustration - I figured Amber now articulate and I had a enough experience. Periodically I still have questions or situations arise with Amber that it is nice to have other opinions and help with. While we parents may not be physically disabled - our lives certainly don't go on as they where nor do they ever return to a normal status. Depending on how severely the child is affected - you give up a portion of your life - perhaps the entire rest of it and goodly amounts of your imcome, a significant amount of marriages bite the dust, relationships with friends and family can be severed depending on their acception of what has happened, your health and physical abilities becaome impaired due to stress and injuries can occur once the kids get older and bigger. The disablilty affects everyone they associated with. Mother, Father, Sister, Brother, Grandparents, future spouse and children etc. The entire family is in effect disabled. Brightest Blessings Trisha > you know bobby, i don't think my parents did either. > > > I often wish my mother had had access to a similar list. I don't think she > ever talked to another parent with a CP child. > > Bobby