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CEL-KIDS  September 1999

CEL-KIDS September 1999

Subject:

DERMATITIS HERPETIFORMIS

From:

Beth Slater <[log in to unmask]>

Date:

Tue, 23 Nov 1999 15:33:24 EST

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text/plain

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<<Disclaimer:  Verify this information before applying it to your situation.>>

i have edited some of the responses i got when i requested info on DERMATITIS
HERPETIFORMIS.  some people described the condition, some told about their
own experience.

>>>>>>>>>>>>>>

It can look very similar to exema.  The feeling can range from itching to
burning, just like a flame is being held to the skin.  It then turns red and
sometimes gets a blister before it peels.  Depending on how deep it is
depends on how long it will peel and if it bleeds.  If it bleeds it sometimes
causes scarring.   It can take up to 20 years for all the gliadin to be
expeld from your body and for the sores to go away.

 DH is a comparatively rare condition.  possibly, the only way to verify DH
is with a biopsy by a qualified Dermatologist. The patient's positive
response to the use of a sulfa drug can verify that biopsy.  DH first
appeared when she/he was 22 years old.   The primary symptoms are a
dermatitis resembling (in his/her case) an allergic reaction to poison ivy or
to chicken pox: blisters filled with clear fluid and intense itching.  When
these first appeared, the Dermatologist consulted thought that it might be
excesma, but did not respond to the treatment for that. He then took the skin
biopsy.  The reference materials about DH state that the symptoms are most
likely to appear on "boney eminences" (elbows, knees, and in some people on
the buttocks).   This person's case is relatively mild, so diet alone and
occasional use of topical cortico-steroid creams have been the approach for
the last 20+ years.  His/her dietary restrictions are similar to those of
people with celiac's disease and their information networks re sources of GF
products and recipes are helpful to those of us with DH. *No wheat, rye,
barley or oats/No chocolate, nuts, coconut, peanuts, colas, shellfish or
iodized salt.

this person's shild had ezema  behind his legs and arms and had red cheeks
occasionally. they saw an allergists at 16 months and he was positive to
milk, egg, life threatning peanut allergy, dust mites, and cat. they then
took him off egg and milk and withing 3 days his skin was great!!! But he
continually lost weight for the next 3 months and had 5 bm a day!  they
finally got a referral to a GI and at the same time read about Celiac and
during the 2 week wait before seeing the GI they put him on a GF diet! He
gained 2 pounds during those 2 weeks!  they then saw the GI and he said to
keep him on GF diet and have done it for 6 months now, his BM are normal now
and he is growing!  it is 60% hereditary and 40% enviromental.   they just
put him back on cheese and yogurt this week to see if it was just the celiac
that made him unable to tolerate milk, well his cheeks have a red blkotch on
them. So yes skin patches can mean an intolerance to foods!

one parent said that their child's skin condition has been called DH, eczema
and atopic dermatitis.  He did have it on his face as a baby (cheeks).

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