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C-PALSY  August 2005

C-PALSY August 2005

Subject:

Re: FW: [Fwd: Re: I'm Back]

From:

Kathy Pink <[log in to unmask]>

Reply-To:

St. John's University Cerebral Palsy List

Date:

Fri, 5 Aug 2005 18:06:13 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (461 lines)

To cover me and to make sure I am safe.













>From: Magenta Raine <[log in to unmask]>
>Reply-To: [log in to unmask]
>To: [log in to unmask]
>Subject: Re: FW: [Fwd: Re: I'm Back]
>Date: Thu, 4 Aug 2005 17:04:00 -0700
>
>well, what is the reason you need someone after ten pm?
>
>maybe we can work out a solution.
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
> > [Original Message]
> > From: Kathy Pink <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 8/4/2005 1:20:05 PM
> > Subject: Re: FW: [Fwd: Re: I'm Back]
> >
> > Mag, yes.
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > >From: Magenta Raine <[log in to unmask]>
> > >Reply-To: [log in to unmask]
> > >To: [log in to unmask]
> > >Subject: Re: FW: [Fwd: Re: I'm Back]
> > >Date: Wed, 3 Aug 2005 16:24:49 -0700
> > >
> > >kj, is there any reason you need somebody there at night?
> > >
> > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > >[log in to unmask]
> > >How can we expect new results if we do what we've always done?
> > >War is outdated for the 21st century!
> > >
> > >
> > > > [Original Message]
> > > > From: Kathy Jo Pink <[log in to unmask]>
> > > > To: <[log in to unmask]>
> > > > Date: 8/3/2005 3:24:48 PM
> > > > Subject: Re: FW: [Fwd: Re: I'm Back]
> > > >
> > > > Kendall,
> > > >
> > > >
> > > >
> > > > Under Community Based Programs, (MAPC & CIP) I can only get coverage
> > > > from 7AM-10PM.
> > > >
> > > >
> > > >
> > > > Kathy Jo
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >   Kendall David Corbett wrote:
> > > >
> > > > >Kathy Jo,
> > > > >
> > > > >Mag's right.  Back when I was working 1:1 with folks with
>disabilities
> > > > >was shortly after the de-institutionalization movement got a good
>head
> > > > >of steam, and Colorado was working on moving people into community
> > > > >programs.  After 1999, and the Olmstead Supreme Court decision, it
>has
> > > > >been easier to get people into least restrictive environments.
> > > > >
> > > > >It is expensive, but in most cases, it's less expensive than 24/7
>care
> > > > >in a nursing home or similar setting.  This is possible because the
> > > > >staff in nursing home4s get paid more  than the staff for most
> > > > >disability providers.  In '88 and '89, when I was doing direct
>staffing
> > > > >for folks with disabilities, the minimum wage was increased from
>$3.85
> > > > >an hour to $4.25 an hour, so everybody that started when I did got
>a
> > > > >raise.  A lot of states are now working to bring up the wages of
>their
> > > > >direct support staff to a livable wage.
> > > > >
> > > > >A lot of the people receiving community based services are covered
> > >under
> > > > >Medicaid Home and Community Based Waiver Services, because in
>addition
> > > > >to being a better way for people to live (healthier, more
>independent),
> > > > >it's less expensive.  In Wyoming, the cost to house people in our
>one
> > > > >remaining institution for people with disabilities is about 3X as
>much
> > > > >as serving people in the community.
> > > > >
> > > > >My grandmother's health in the last two years of her life was so
>bad
> > > > >that we had to put her in a nursing home, and it cost $4500.00 per
> > > > >month.  The average cost to serve someone in community programs in
> > > > >Wyoming is around $2100.00 per month
> > > > >
> > > > >Kendall=20
> > > > >
> > > > >An unreasonable man (but my wife says that's redundant!)
> > > > >
> > > > >The reasonable man adapts himself to the world; the unreasonable
>one
> > > > >persists in trying to adapt the world to himself. Therefore, all
> > > > >progress depends on the unreasonable man.
> > > > >
> > > > >-George Bernard Shaw 1856-1950
> > > > >
> > > > >-----Original Message-----
> > > > >From: Magenta Raine [mailto:[log in to unmask]]=20
> > > > >Sent: Tuesday, August 02, 2005 12:24 PM
> > > > >To: [log in to unmask]
> > > > >Subject: Re: FW: [Fwd: Re: I'm Back]
> > > > >
> > > > >It is in their plans. It is their right and everybody's rights to
>live
> > > > >in
> > > > >the least restrictive environment.
> > > > >
> > > > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > > >[log in to unmask]
> > > > >How can we expect new results if we do what we've always done?
> > > > >War is outdated for the 21st century!
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >>[Original Message]
> > > > >>From: Kathy Jo Pink <[log in to unmask]>
> > > > >>To: <[log in to unmask]>
> > > > >>Date: 8/2/2005 6:47:36 AM
> > > > >>Subject: Re: FW: [Fwd: Re: I'm Back]
> > > > >>
> > > > >>Kendall Corbet,
> > > > >>
> > > > >>
> > > > >>
> > > > >>How could these people afford 24/7 Care?  Kathy Jo Pink
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>
> > > > >>Kendall David Corbett wrote:
> > > > >>
> > > > >>
> > > > >>
> > > > >>>Kathy Jo,=3D20
> > > > >>>
> > > > >>>Depending on the person you're working with to draw up a plan,
>they
> > > > >>>
> > > > >>>
> > > > >may
> > > > >
> > > > >
> > > > >>>use either term.  In my work environment, a PCP deals more with
>how
> > > > >>>things are now, and a PFP deals with how you'd like them to be.
> > > > >>>
> > > > >>>In the agency I worked for when I first got out of college, there
> > > > >>>
> > > > >>>
> > > > >were a
> > > > >
> > > > >
> > > > >>>couple of people who had 24/7 care.  In general they were the
>people
> > > > >>>with the most severe physical and/or cognitive disabilities;
>usually
> > > > >>>they had a lot of seizures and so needed someone there in case
>they
> > > > >>>
> > > > >>>
> > > > >had
> > > > >
> > > > >
> > > > >>>a seizure.
> > > > >>>
> > > > >>>Kendall Corbett
> > > > >>>
> > > > >>>An unreasonable man (but my wife says that's redundant!)
> > > > >>>
> > > > >>>The reasonable man adapts himself to the world; the unreasonable
>one
> > > > >>>persists in trying to adapt the world to himself. Therefore, all
> > > > >>>progress depends on the unreasonable man.
> > > > >>>
> > > > >>>-George Bernard Shaw 1856-1950
> > > > >>>
> > > > >>>
> > > > >>>-----Original Message-----
> > > > >>>From: Kathy Pink [mailto:[log in to unmask]]=3D20
> > > > >>>Sent: Monday, August 01, 2005 5:02 AM
> > > > >>>To: [log in to unmask]
> > > > >>>Subject: FW: [Fwd: Re: I'm Back]
> > > > >>>
> > > > >>>Is a PFP the same as Person-Centered Planning?Is there such a
>thing
> > > > >>>
> > > > >>>
> > > > >as
> > > > >
> > > > >
> > > > >>>one
> > > > >>>to one twenty-four hour round-the-clock care?  I know it would be
> > > > >>>expensive
> > > > >>>.
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>Kathy Pink
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>>From: Kathy Jo Pink <[log in to unmask]>
> > > > >>>>To: [log in to unmask]
> > > > >>>>Subject: [Fwd: Re: I'm Back]
> > > > >>>>Date: Sun, 31 Jul 2005 08:15:16 -0500
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>-------- Original Message --------
> > > > >>>>Subject:       Re: I'm Back
> > > > >>>>Date:  Tue, 19 Jul 2005 14:30:33 -0600
> > > > >>>>From:  Kendall David Corbett <[log in to unmask]>
> > > > >>>>Reply-To:      St. John's University Cerebral Palsy List
> > > > >>>><[log in to unmask]>
> > > > >>>>To:    [log in to unmask]
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>Kathy Jo said:
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>>I don't have a plan to make it happen?  Any ideas, anyone?
> > > > >>>>>
> > > > >>>>>
> > > > >>>>>
> > > > >>>>>
> > > > >>>>Get in touch with Linda Rowley at the Waisman Center, and ask
>her
> > > > >>>>
> > > > >>>>
> > > > >for
> > > > >
> > > > >
> > > > >>>>info on personal futures planning, and someone close to
>Lancaster
> > > > >>>>
> > > > >>>>
> > > > >that
> > > > >
> > > > >
> > > > >>>>can help you put a PFP (personal future plan) together.  I could
> > > > >>>>
> > > > >>>>
> > > > >refer
> > > > >
> > > > >
> > > > >>>>you to several people in Wyoming, but since you're in Wisconsin,
> > > > >>>>
> > > > >>>>
> > > > >that
> > > > >
> > > > >
> > > > >>>>won't work.  Also, ask Linda about a program called "Partners in
> > > > >>>>Policymaking."  I think something like that would be immensely
> > > > >>>>
> > > > >>>>
> > > > >helpful
> > > > >
> > > > >
> > > > >>>>to you!
> > > > >>>>
> > > > >>>>Here are links to:
> > > > >>>>
> > > > >>>>1. The Waisman Center, and to Linda Rowley
> > > > >>>>
> > > > >>>>Waisman Center on Human Development=3D3D20
> > > > >>>>University of Wisconsin-Madison=3D3D20
> > > > >>>>1500 Highland Ave=3D3D20
> > > > >>>>Madison, WI 53705-2280=3D3D20
> > > > >>>>Main Phone:  608-263-1656=3D3D20
> > > > >>>>Main Fax:  608-263-0529=3D3D20
> > > > >>>>Website:  http://www.waisman.wisc.edu/
> > > > >>>>
> > > > >>>>
> > > > >>>>Family Village Internet Project
> > > > >>>>Linda Rowley, LPN, BS
> > > > >>>>608-263-5973
> > > > >>>>[log in to unmask]
> > > > >>>>http://www.familyvillage.wisc.edu/index.htmlx
> > > > >>>>
> > > > >>>>
> > > > >>>>Jean Boehnen probably would have answers to your general
>questions
> > > > >>>>
> > > > >>>>
> > > > >on
> > > > >
> > > > >
> > > > >>>>CP:
> > > > >>>>
> > > > >>>>Cerebral Palsy Clinic
> > > > >>>>Jean Boehnen, RN=3D3D09
> > > > >>>>608-263-7335=3D3D09
> > > > >>>>[log in to unmask]
> > > > >>>>
> > > > >>>>
> > > > >>>>2. Personal Futures Planning,=3D3D20
> > > > >>>>
> > > > >>>>http://www.iidc.indiana.edu/cedir/pfplanbib.html
> > > > >>>>
> > > > >>>>The above link is a bibliography on person centered planning,
>which
> > > > >>>>
> > > > >>>>
> > > > >is
> > > > >
> > > > >
> > > > >>>>another name for personal futures planning.=3D3D20
> > > > >>>>
> > > > >>>>3. Partners in Policymaking, which got started in Minnesota.
> > > > >>>>
> > > > >>>>http://www.partnersinpolicymaking.com/
> > > > >>>>
> > > > >>>>Kendall Corbett
> > > > >>>>
> > > > >>>>An unreasonable man (but my wife says that's redundant!)
> > > > >>>>
> > > > >>>>The reasonable man adapts himself to the world; the unreasonable
>one
> > > > >>>>persists in trying to adapt the world to himself. Therefore, all
> > > > >>>>progress depends on the unreasonable man.
> > > > >>>>
> > > > >>>>-George Bernard Shaw 1856-1950
> > > > >>>>
> > > > >>>>
> > > > >>>>-----Original Message-----
> > > > >>>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D3D20
> > > > >>>>Sent: Tuesday, July 19, 2005 11:20 AM
> > > > >>>>To: [log in to unmask]
> > > > >>>>Subject: Re: I'm Back
> > > > >>>>
> > > > >>>>
> > > > >>>>I like living with my parents.  I don't know what I want.  I
>guess
> > > > >>>>ideally , I want to live in my own place (apartment?).  If that
>does
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>not
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>>work I will go to an adult family home, a group home, or a
>nuring
> > > > >>>>
> > > > >>>>
> > > > >home
> > > > >
> > > > >
> > > > >>>>(a nursing home would probably be my last choice.)  I don't have
>a
> > > > >>>>
> > > > >>>>
> > > > >plan
> > > > >
> > > > >
> > > > >>>>to make it happen?  Any ideas, anyone?
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>>
> > > > >>>_________________________________________________________________
> > > > >>>Don't just search. Find. Check out the new MSN Search!
> > > > >>>http://search.msn.click-url.com/go/onm00200636ave/direct/01/
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >>>
> > > > >
> > > > >
> > > > >
> > > > >
> >
> > _________________________________________________________________
> > Express yourself instantly with MSN Messenger! Download today - it's
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> > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

_________________________________________________________________
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