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C-PALSY  January 2004

C-PALSY January 2004

Subject:

Re: New to List/chronic pain

From:

Elizabeth Thiers <[log in to unmask]>

Reply-To:

St. John's University Cerebral Palsy List

Date:

Tue, 13 Jan 2004 19:20:48 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (63 lines)

Hello, I'm Beth T. the list OT or occupational therapist.  I'm not an expert
on the surgeries you mentioned but, some of the things you may want to think
about is getting your seating system assessed also, have assessed how long
is she in the chair, is she ever allowed out of the chair during her school
day?  Is she stuck in one position due to her chair for most of the day?  Is
she involved in any exercise activity outside of therapy?  I agree with Ken,
find a physiatrist.  They are rehab docs who have a good idea about
spasticity management.  You might also want to contact St. Louis children's
hospital which specializes in spasticity management.

Beth T the OT

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of ken barber

Subject: Re: New to List/chronic pain

hi, my name is ken barber. i am 55 and just medically
force into retirment from the government. i have not
dealt with the specificate chronic pain that you
mentioned but, i was working with strain injury coused
by the cp and dystonia in the neck, back, shoulders
down to the fingers. this was tendonitis that i
continued to work 22 years with it and that i am told
permantly injured the arms etc. it is chronic pain.
injections sometimes helps sometimes don't.
to relieve spasms pulling already sore injured tendons
and ligaments i take muscle relaxants, and get botox
in the neck to slow the spinal sternosis that is in
the c3-c7 area of my neck.
  if the hip that is hurting has spasms in the area,
it could be that something right in the area to relax
the area would help, maybe botox since you are already
using the baclofen pump.
   i am not a doctor and this is speculation. you
might want a physireritist. i know this is not spelled
right, some one correct me on spelling. these
specialist can give good advice.

--- don myers <[log in to unmask]> wrote:
> Hi,
> I'm lucky to be Mom to a wonderful 17 year old young
> lady who has a mind =
> of her own! She is in the 10th grade in our local MS
> public high school. =
>  Claire has been using aug comm for 10 years...now a
> Pathfinder with a =
> head switch. She has spastic quad CP and has endured
> successfully many =
> surgeries...spinal fusion, Baclofen pump and two hip
> surgeries. The =
> latest is my subject of concern. Has anyone out
> there had a femeral =
> resection? It helped the hip pain at first, but is
> now chronically =
> painful in that hip area. Her Dr. injected it w/
> steroids about a month =
> ago. No change. Has anyone had this chronic pain and
> used pain =
> management of any sort or accupucture?=20
> Charlotte

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