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C-PALSY  March 2000

C-PALSY March 2000

Subject:

Re: Childhood and frienships

From:

DAVID GREGG <[log in to unmask]>

Reply-To:

St. John's University Cerebral Palsy List

Date:

Wed, 1 Mar 2000 20:23:17 -0800

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (52 lines)

Shawn,
My heart goes out to you and your daughter.  I know that I will be facing
the same issue with my son in the future.  All I can say is that I will pray
for your situation and that God will help her through this and hopefully
some hearts will be touched in some way.  Best of luck and God bless you.
Samantha
----- Original Message -----
From: Shawn Carolan-Abell <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, March 01, 2000 5:00 PM
Subject: Childhood and frienships


> This is not a political post but very personal.  I will accept email
> privately if you wish to do so.
> My daughter is ten in the fourth grade and the social issues are getting
> really hard.  Kids will play on the playground and socialize at school but
> not outside of it.  I have in the past made sure she had girlfriends over,
> playdays on the weekends.  She is getting older and it's almost not my
> place anymore to be making these arrangements.  I've noticed that kids
> don't take the time to listen to her finish speaking and it's hard for
them
> understand what she says.  I see them run away and go play and that she
can
> not catch up and is left behind.  She drives an electric scooter at school
> and uses a handheld or a walker.  I've seen how sophisticated they are all
> getting around her.  Some are not returning phone calls either.  I think
we
> are headed into unknown territory.  What else is new.  My thoughts now are
> should I keep her active in her own interests or really try to push the
> friends with the NDA kids even more.  We live in a beautiful small town,
> great school and out in the country where arrangements have to be made.
> They all seem to be in soccer ect on the weekends.  In the summer I try to
> have her see her other friend who has cp who lives far away and be around
> more kids with disablities.
> My daughter is creative and poetic and one of the bravest, strongest
people
> I have ever met. She loves art and animals and so far, I think has a good
> sense of self esteem. Teenagers always appreciate her great sense of humor
> and she is so savy and can size people up within an eye blink.  She also
is
> so imaginative and spends time in fantasy.  Soo any words of wisdom?  I
> can't believe the other mothers of NDA kids who are so oblivious but it's
> not their fault and thats another subject.  So I turn to all of you who
> know more than I do about friendships when you have a disablity.  It
breaks
> my heart to think she may be lonely and I dont' know what to do about it.
> Or if there is anything I can do.   I don't ask for help that often but I
> am now.
> thanks ahead,
> Shawn

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