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Subject:
From:
"Montgomery, Megan" <[log in to unmask]>
Reply To:
Milk/Casein/Lactose-Free List <[log in to unmask]>
Date:
Tue, 7 Nov 2000 09:17:29 -0000
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> Was it easy for you to discover the allergy or LI in your
> children ( for
> those who have children)  I guess it is just best to wait it
> out isn't it?


I was diagnosed as being either LI or allergic (probably LI) in 1975.  That
has never been confirmed by testing ever, including when I was being treated
by one of the UK experts in the field.

The conclusion generally has been "you're not anaphylactic, but milk makes
you sick.  Don't have milk".

Seems to make sense to me.

Getting "A Diagnosis" seems to be a bit of an obsession sometimes, for some
people.  Really it does very little.  It doesn't make it better and usually
by the time you have one,   You may never get a reliable diagnosis anyway
(the doctor is right, allergy testing isn't terribly reliable, though LI
testing is, it only usually confirms what you have figured out).  Suffice to
say your daughter has one or the other, but her symptoms, though unpleasant
certainly (BTDT) don't sound as if they are life-threatening.  Her body is
telling you clearly "I don't want this in me, and I will get rid of it as
quick as I can".  So, really, thats probably as reliable as anything.

Diagnosis will neither make her better or make it more real.  It won't even
help the treatment (either way, the answer is no milk in her diet).

My advice is don't fret.  I surprise doctors these days.  I'm never bothered
about diagnoses for anything.  I just say "as long as its better, I don't
really care what you call it".

Megan
dealing with several "undiagnosed" chronic illnesses

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