Hello,
I know you where not writing to me but the address for Fan is
http://www.foodallergy.org They have new letter and I recommend signing up
for the product alert, you will see it on their page. If a product is
recalled or it contains something it should not or not on the label,
Example, a manufacture accidentally forgot to add peanuts to a label, Fan
will alert you and tell you about it.
and the address for FAST is http://www.angelfire.com/mi/FAST
They have a mailing list, message board, and news letter for multi
allergies. Melissa is the owner and she is very nice.
If you need help with wheat, I have two sites also:
The Gluten Free Kitchen
http:home1.gte.net/lbshri
and Club Celiac ( Children's site) it is being overhauled and will contain
more links and information, and recipes for allergies other than
wheat/gluten
http://www.geocities.com/EnchantedForest/Glade/2715
I hope this helps.
Good Luck,
Lucy
----------
> From: SDidinsky <[log in to unmask]>
> To: [log in to unmask]
> Subject: Lori Ross
> Date: Thursday, May 21, 1998 6:02 AM
>
> Lori:
>
> I tried sending this to your individual e-mail address but it was not
> deliverable.
>
> In a message dated 98-05-18 14:08:32 EDT, you write:
>
> <<
> >I have a 18 month old little boy with severe food allergies to milk,
> >egg, wheat, soy, and citrus. If there are any other parents out there
in
> >my situation I would like to hear from you. Any information you have on
> >food allergies would be greatly appreciated. We are members of FAN. Are
> >there any other groups I can hook up with? My email address is
> >[log in to unmask] .
> > >>
> Lori:
> I think we have communicated before. My son Clayton is almost 14 months
old
> with severe food allergies, reflux and eosinophil gastroenteritis. He is
> allergic to milk, egg, wheat, soy, and all dairy. We are trying to
intorduce
> corn, potato and rice. He has previously had a problem with rice. He is
still
> on formula - now Neocate One +. The formula provides alomst 98% of his
total
> nutrition. He eats maybe 1/2-1 4oz baby food jar a day. He eats oatmeal
and
> apples, applesauce, pears, prunes, sweet potatos an squash. He will also
eat
> cheerios. That is it. We are trying to get him to eat more but he has
some
> Sensory Inteegration problems and will not eat any textured foods.
>
> I am not a member of FAN although the nutritionist from the allergist
office
> told me I should join,. Can you give me some info on this. There is also
a
> list called F.A.S.T. but I am not been able to find it. I will ask my
friend
> about it.
>
> Keep in touch.
>
>
> Love,
> Sharon, mommy to Clayton (3/30/97) (Severe Reflux, eosinophil
gastroentritis,
> severe allergies, developmental delays, and suspected mito... - 34.5 wkr)
-
> "will I ever gain weight"),Cole - nda (except minor developmental delays
due
> to prematurinty and a bout of spinal menigits - 34.5 wkr - and growing
great)
> (3/30/97), and Jake -(4/16/93) - nda (now a big 5 year old who is doing
great
> - "we are almost 40 pounds mom"), and my angel baby - stillborn at 26
weeks -
> 7/13/94
|
