I am intolerant to milk and get joint pain in my knees.  The pain shoots up
the bottom half of my leg.  I also get fatigue and bloat.  My doctor was
worthl;ess as it took me 4 years to get diagnosed with allergies to citrus,
caffeine and an intolerance to milk.  I feel that more information should be
available on the subject, as my doctor told me it was all in the mind and to
leave him alone.

I have a dairy website called www.dairyfree.org.uk please feel free to log
on at anytime.

Kind Regards

Lan
(Wales)


----- Original Message -----
From: "Bryan Tortolani" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, January 31, 2003 1:46 AM
Subject: lactose intolerance/ gluten inolerance/tests


> Hi List, Please help we, my doctor is worthless!!!
>
>
>
> As a cancer survivor my body has endured radiation & chemotherapy, a bone
> marrow transplant, and over twenty surgeries.  I am only 36-years-old yet
I
> have many health problems; among them are lactose and gluten intolerances.
>
>
>
> Five years ago I began getting extremely sick with cramping, fatigue, and
> diarrhea.  The doctor siad it was due to my past cancer treatments, and I
> continued to suffer until my wife discovered that I have an intolerance to
> lactose.   During all that time I suffered from anemia and ear troubles.
> With the slightest physical activity my ears began to feel as though they
> were clogged and under great pressure, similar to the effects one
> experiences when subject to a rapid change in altitude.
>
>
>
> Upon hearing my wife's diagnosis the doctor said that it is very common
for
> patients who have undergone bone marrow translates to become lactose
> intolerant. I said, "oh sure, great doc, now you tell me. Thanks to this
God
> forsaken condition I have suffered both physically and psychologically.
> Besides the discomfort I might as well have been sentenced to one year of
> Home Detention, and instead of an ankle bracelet I am guarded by an
> inability to venture more than a few hundred feet from my toilet!"
>
>
>
> Although my symptoms greatly improved after I cut out all dairy products I
> was still getting quite ill.  Again the doctor attributed my symptoms to
> past treatments and again my wife suggested a diet change.  We discovered
> that I am gluten and wheat intolerant and have all the symptoms of Celiac
> Spru.  Celiac causes gluten intolerance and when untreated other
> intolerances often arise, especially lactose.  My doctor tested me for
> celiac, which involves a biopsy of the small intestine, and the results
were
> negative.  My wife and I have had a hard time trusting my doctor, which
> prompted us to do a little research and we discovered that it is important
> that the patent does not alter his or her diet prior to the biopsy or the
> test will be inconclussive.  Does anyone know if this is true?  If so,
where
> might I find some written documentation that I might show my doctor?  (We
> were unable to print the initial report my wife discovered on the subject
> due to printer problems at the time and we cannot relocate the article.)
>
>
>
> My next question is does anyone else experience fatigue or ear problems
> similar to those I described above with lactose intolerance? What about
bone
> pain and joint pain, can that be related to food intolerances?
>
>
>
> Thanks,
>
> Bryan
>
> [log in to unmask]