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OK, I guess I should have said something of the fact that beside celiac he is 
also looking for colitis, which is included in my first diagnosis. 

So here I am: 

original diagnosis by old doc

Non-spacific Colitis by biopsy : currently on Asacol. 

Blood testing, 3 months after Asacol didn't help completely, showed Celiac. He 
didn't do biopsy, that doc really knows nothing. He printed off a physicians 
guide and sent me to the internet. Been GF since Nov 17 07. GREATLY 
improved most symptoms, even symptoms i didn't know were symptoms. 

3 months later blood work "normal"

Have been having bm & nausia problems lately so I am trying also lactose free 
the next two weeks. 

New Doc did Bone densometry, still awaiting the results. 

New Doc wants to go in and see about a definitive colitis & look at my 
stomach & smalls since that was not done before. 

I'm still in the air about cancelling, just don't know. would you do it? 

Here's what y'all had to say:

***Prometheus is recognized as a really good lab.  If you have been GF for 
any length of time, no amount of scoping and blood testing can give you a 
positive diagnosis.  The only thing the blood tests can measure is how you are 
reacting to gluten; no gluten, no reaction.  If your intestine has healed, no 
endoscopy can find damaged tissue.
I've been diagnosed a little over five years.  The two blood tests I've had 
since then have come back negative.  No doctor, without consulting my 
record, could diagnose my CD now.  When I had my first blood test after being 
GF for an entire year, the doctor's office called back and 
said, "Congratulations.  You don't have celiacs (sic) anymore."  Of course, I 
knew better.  Never went back to that office, either.
If I were you, I would go to the second doc, get the diagnosis 'reversed'
thereby giving insurance companies one less reason to deny you coverage in 
the future.  You'd still have CD, but you can manage that on your own.

***If you have a diagnosis of CD, why do you need to repeat the tests? 
 
First, if your new doc wants to do a colonoscopy to determine if you have CD, 
he is looking at the wrong end. CD affects the small intestine - there are no 
villi in the colon. If you are GF, the tests should be negative. I have met a few 
people who were diagnosed with CD  and the new doctor repeated the tests. 
The new tests showed healed villi and negative blood test so the new doctor 
declares that the person should eat gluten as they don't have CD even though 
these people tell their doctors the slightest amount of gluten makes them ill. 
 
I don't know why Prometheus requires precertification from your insurance.  
prometheus is considered to be one of the more reliable labs by the celiac 
doctors. 

***can't answer your first question but....
why do you need another diagnosis? you are lucky you found a doctor who 
actually knows anything about celiac in the first place.
none of us *wants* to have this disease, and i've had plenty of doctors tell 
me i don't have it. But guess what? My entire family has it and we are lucky to 
know, as much as the diet is difficult.
Go through Enterolab and you'll get the whole deal for 369 online.


***If your initial diagnosis was correct, then eliminating the gluten from your 
diet cured your problem.  After 4-6 months on a strict g.f. diet, antibody 
levels should return to normal and damage in the small intestine should at the 
very least improve and can actually resolve completely.

Once that happens, tests for celiac becomes tests for dietary compliance 
rather than diagnosis.

Doctor to wants to rediagnosis your celiac with blood tests after your have 
been on a gluten-free diet doesn't understand celiac.  And if the doctor is 
doing a colonoscopy to look for celiac damage, he's entering the body from 
the wrong end.  Celiac damage happem at the top of the system in the small 
intestine where gluten leaves the stomach.  

The preferred labs, usually the largest ones, provide more accurate test 
results because they do moe tests on the rare conditions. With more 
experience technicianss, tests results should be more consistently accurate.

Having access to a great lab, however, won't help if the doctor doesn't know 
what tests to order & how to intrepret them.... 

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