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Subject:
From:
Jim Lyles <[log in to unmask]>
Date:
Mon, 14 Dec 1998 23:50:11 EST
Content-Type:
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<<Disclaimer: Verify this information before applying it to your situation.>>

...........................................................
:                                                         :
: Excerpts from the Greater Philadelphia CS Support Group :
: ------------------------------------------------------- :
: newsletter: July 1998                Phyllis J. Brogden :
:                                        6318 Farmar Lane :
:                                    Flourtown, PA  19031 :
:.........................................................:

Kitchen Basics GF Chicken and Beef Stock:  This is a great new product
that will save you time.  These are real liquid stocks, made from
meat, vegetables, and herbs; old-fashioned stocks without the
old-fashioned work.  They contain no gluten, no soy, no yeast, no MSG,
no fat, and lowered sodium content.  These stocks are shelf stable and
will last unopened at room temperature for up to two years.  When
opened, they will keep for up to two weeks in the refrigerator.  You
can freeze the stock after opening to keep it longer.  Currently Leo
Dick & Sons has agreed to ship these stocks, by the case, anywhere in
the lower 48 states.  Call 800-779-3425 to place an order.  [These are
available at Meijers and Krogers in southeast Michigan.-ed.]

                            -=-=-   -=-=-

Pharmaceutical Updates
----------------------
  *  Evista (generic name:  raloxifene; made by Eli Lilly and Co.)  is
     a new drug used to prevent postmenopausal osteoporosis in women.
     It can be used by some women who cannot or do not wish to take
     estrogen to prevent osteoporosis.  Evista does not increase the
     risk of uterine or breast cancer.  It should not be used by women
     with a history of forming blood clots of the leg, lung, etc.  It
     cannot be used with estrogen.  Evista appears to be slightly less
     effective than estrogen replacement therapy in preventing
     postmenopausal osteoporosis.  Evista is Gluten-Free.

  *  Raxar (generic name:  grepafloxacin; made by Glaxo Wellcome,
     Inc.)  is a new drug used as a broad spectrum antibiotic to treat
     bacterial infections such as bronchitis, pneumonia, and some
     sexually-transmitted diseases.  Raxar is a "high power"
     antibiotic which should be reserved for serious, life-threatening
     infections.  Raxar is Gluten-Free.

  *  Zagam (generic name:  sparfloxacin; made by Rhone-Poulenc Rorer
     Pharmaceuticals, Inc.)  is a new drug used as a broad spectrum
     antibiotic to treat bacterial infections such as pneumonia and
     bronchitis.  Zagam is also a "high power" antibiotic which should
     be reserved for serious, life-threatening infections.  Zagam is
     Gluten-Free.

  *  Trovan (generic name:  trovafloxacin; made by Pfizer, Inc.)  is a
     new drug used as a broad spectrum antibiotic to treat bacterial
     infections such as pneumonia and bronchitis, acute sinusitis,
     serious abdominal and pelvic infections, diabetic foot
     infections, urinary infections, and prostatitis.  Trovan is also
     a "high power" antibiotic which should be reserved for serious,
     life-threatening infections.  Trovan is Gluten-Free.

  *  Centrum and Centrum Silver are NOT Gluten-Free according to
     Lederle Pharmaceuticals (800-762-4672).  Both have traces of
     gluten due to cross-contamination during processing.

  *  Zantac and Ranitidine are both Gluten-Free according to their
     respective companies.  Zantac is made by Glaxo (800-248-2100).
     Ranitidine is a generic equivalent for Zantac made by Novopharm
     (800-361-3313).  Note that there will be many other generic
     equivalents for Zantac; don't assume they are gluten-free just
     because Zantac is.  (This information is dated Oct. 20, 1997.)


........................................................
:                                                      :
: Excerpts from the Healthy Villi Celiac Support Group :
: ---------------------------------------------------- :
: newsletter: Fall 1998         Melinda Dennis, editor :
:                                   95 Orchard St., #2 :
:                                Somerville, MA  02144 :
:......................................................:

A New Oat-based Fat Substitute is on the market.  It will be available
within a year under the name Nu-Trim.  Researchers claim that it is a
healthy fat substitute purported to help lower cholesterol levels.
Celiacs should avoid this product because it contains oats, which
CSA/USA does not recommend for a gluten-free diet.  Other fat
substitutes on the market include Oatrim and Z-Trim; these contain
oats and/or barley and are also inappropriate for celiac
consumption.<5>

                            -=-=-   -=-=-

All Arizona Beverages are gluten-free, including their iced teas,
lemonades, punch drinks, sparkling sodas, and virgin cocktails.  This
comes from a letter dated Aug. 4, 1997; and was confirmed by phone
call on Aug. 20, 1998.  Call 800-TEA-3775 for more information.


........................................................
:                                                      :
:       Excerpts from _KC Gluten-Free Advocate_        :
:       ---------------------------------------        :
: July 1998               Joe & Janna Denison, editors :
:               Greater Kansas City Chapter of CSA/USA :
:                                     7911 Little Lane :
:                      Pleasant Valley, MO  64068-9187 :
:......................................................:

Applebees:  I contacted Tracy at Applebees Research and Development
department, at its corporate office building in Overland Park, Kansas.
Tracy looked up the many ingredients in various menu items that I
thought might be appropriate for celiacs.  The following entre is
acceptable:  Fish (whitefish or salmon), steamed vegetables, steamed
red potatoes or plain rice (for those concerned, the seasoned rice
pilaf has MSG in the spices).  You can also order the steamed
vegetable platter, or the chicken or shrimp stir-fry if you order it
without the soy sauce.  None of the salad dressings are okay.  Avoid
the seasoned potatoes, as they are cooked in the same oil used for
breaded items.


....................................................
:                                                  :
:  Excerpts from the San Antonio CS Support Group  :
:  ----------------------------------------------  :
: newsletter: Sep. 1998     Lynn Rainwater, editor :
:                                 1023 Cloverbrook :
:                      San Antonio, TX  78245-1604 :
:..................................................:

World Experience Teenage Student Exchange at 2440 S. Hacienda Blvd.,
Suite 116, Hacienda Heights, CA 91745, has 20 years experience
offering 15-18 year old high school students a school attendance and
living experience in a foreign country for a semester or an academic
year.  They now have a program for celiac exchange students, because
their president has a celiac niece.  The first celiac exchange
student, a high school junior named Eva Sipos from Hungary, will be
arriving this month and staying with a family in Kansas City.

Host families provide GF room and board, parental supervision and
guidance, explanation of our culture, and family responsibilities and
experiences.  If you are interested in learning more about the celiac
student exchange program, call World Experience at 800-633-6653, fax
them at 626-333-4914, or e-mail them at [log in to unmask]


......................................................................
:                                                                    :
:           Excerpts from the Westchester CS Support Group           :
:           ----------------------------------------------           :
: newsletter: July 1998     Leslie Elsner and Sue Goldstein, editors :
:                                                      9 Salem Place :
:                                            White Plains, NY  10605 :
:....................................................................:

The Importance of Family Testing, by Fran Monteith
--------------------------------------------------
When our daughter Lauren was diagnosed with celiac disease (CD) in
1996, we were told that CD is genetic, and that my husband Greg and I
should be tested.  Since neither of us had any symptoms at the time,
we put this information in the back of our minds as a "someday" thing
we must do, and went on with our lives.

Our next child, Danny, was born a robust and healthy baby; but soon
after we began introducing cereals and whole foods into his diet, we
discovered that he, too, had CD.  Still, Greg and I procrastinated
having ourselves tested.  We moved from New York to New Jersey, and
with reasons of new medical insurance, yearly deductibles, and every
other excuse under the sun, we delayed the testing further.

Our focus changed when the Westchester support group announced a
conference that would include serum testing of first-degree relatives
as part of the University of Maryland prevalence study.  Now we had no
excuse.  We attended the conference in September [1997], and as we
waited in line for our blood to be drawn, Greg and I chided each
other:  "It's going to be you."  "No, its going to be you!"  I was
five months pregnant with our fourth child, and was so sure it wasn't
me that I placed a wager on Greg's blood test results.

On the day I was discharged from the hospital after giving birth, I
received my blood test results.  I had elevated IgG and IgA levels,
and would need to be biopsied for CD.  My biopsy was inconclusive, and
I'm being followed to see what develops.  But this was only the
beginning.  Being one of nine children myself, I had to call all of my
siblings, and my parents, and ask them to please consider being
tested.  It took some coaxing, and [getting past] a lot of "It can't
be us, we're all so healthy."  But the next time the Westchester group
conducted a blood screening, seven family members came.

Lo and behold, three of my family members had positive blood test
results, and follow-up biopsies clinched the diagnosis of CD.  My dad
is 72 years old, 6 feet tall, weighs well over 200 lbs., and was
feeling well.  My older sister and my mother were also completely
asymptomatic.  Yet they all have CD.

Recently, my father-in-law was diagnosed unexpectedly with CD while
having another procedure done during endoscopy.  Needless to say, we
had been surprised to find CD on both sides of my family, but we were
now amazed to find it on my husband's side of the family as well.

The point I want to make is that once a family member has been
diagnosed, please encourage all first-degree relatives to be serum
tested.  Now my father's brother, who has been ill for years, is
starting to wonder if this is the answer to many of his health
problems.  He has agreed to be tested.  Several of my cousins are
piecing together their own health stories, and are getting tested.  My
brother, though his antibodies were negative, is highly symptomatic;
he is being biopsied this summer.  The ball is rolling.  And maybe
many lives will be saved.

                            -=-=-   -=-=-

Mr. Spice has a delicious selection of sauces that work well with all
your favorites.  They contain no salt, cholesterol, sugar,
preservatives, sodium, MSG, sulfites, dairy, or HVP.  They contain
diabetic-approved, kosher ingredients.  Try them all!  Their sauces
include garlic steak, ginger-stir fry, honey barbecue, honey mustard,
sweet and sour, Hot Wing!, Tangy Bang!, Thai peanut, and Indian curry.
Also available are new varieties of ready-to-eat flavored popcorn.

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