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One of my twin daughters, now 12, was diagnosed when she was 2.  We don't
know where it came from, but suspect my wife's side as others in her family
seem to have gastro problems.  At various times my wife has felt like she had
celiac symptoms and did feel better going GF.  Recently, however, she stoped
the GF diet and has felt ok for several months now.

Sorry to be of so little help, but ...  :}