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Educational Lobbying            March 19th -- DDNC

Digestive Disease National Coalition (DDNC) 2001 Public Policy Forum
This annual event brings together digestive disease patients, physicians,
nurses and industry representatives for 2 days of educational programs and
legislative activities.

Goal:

1. To brief participants from around the country on federal health care
legislation and policy

2. To educate members of Congress on issues of concern to the digestive
disease community

Dates: Sunday,March 18 (optional) and Monday,March 19

Where: Washington Court Hotel
525 New Jersey AveNW
Washington DC20001
202-628-2100

To RSVP yourparticipation:

1. Make your own hotel reservations with the Washington Court Hotel if
needed. DDNC has reserved a block of rooms.

2. Complete the attached RSVP form and fax to the DDNC at 202-546-7105

3. There may be some financial support for patients to attend forum.

Schedule:

Sunday, March 18 --
Washington Court Hotel

4:00 -- 6:00       Issues Briefing
  -- Presentations and discussion on digestive disease research,
     patient access to care issues, hepatitis, colorectal cancer and
     other DDNC priorities
  -- Dr Allen Speigel, Director of the National Institute of Diabetes
     and Digestive and Kidney Diseases (NIDDK) -- invited speaker
6:00 -- 7:30       Reception (also a time for people representing
     CD/DH to get together)

Monday, March 19 -- Make Your Voice Heard on Capitol Hill (on Capitol
                    Hill -- TBA)
8:00 -- 9:30     Continental Breakfast (no GF pastries.  Juices, fruit
     and coffee available)

Preparationfor Congressional Visits
10:00 -- 12:00   Morning Congressional Visits
  -- Teams consist of patients, physicians, and nurses will meet with
     their senators, representatives and congressional staff
12:30 -- 2:00    Capitol Hill Luncheon with Guest speaker (usually
     will include things acceptable to a GF diet)
  -- The following people have been invited to speak
        o  Senator Hilary Clinton (D-NY)
        o  Senator Herb Kohl (D-WI)
        o  Congressman Charlie Rangel (D-NY)
        o  Congresswoman Anne Northup (R-KY)
2:30 -- 4:00     Afternoon Congressional Visits
4:15             DebriefingSession

There may be some financial support available from DDNC for patients to
attend the forum.

Digestive Disease National Coalition


Please RSVP For The 2001 Digestive Disease National Coalition Public Forum
Washington DC, March 18-19
Fax: 202-546-7105

Name:              _____________________________________________

Address:          _____________________________________________

                       _____________________________________________

                        _____________________________________________

Phone:             (______) _______ - __________

Fax:                (______) _______ - __________

Email:             _________________________________________

Are you a patient,parent of a patient, physician or nurse?

______________________

What DDNC MemberOrganizations are you affiliated with? Gluten Intolerance
Group and Celiac Disease Foundation


Please fax this form to the DDNC at
(202) 546-7105

Submitted by:

Gluten Intolerance Group (GIG)
15110 10th Ave SW, Suite A
Seattle, WA 98166-1820
Telephone:  206-246-6652
Fax:           206-246-6531
Website:    www.gluten.net
Email:        [log in to unmask]
Executive Director: Cynthia Kupper, C.R.D.

Nancy
Seattle, WA
USA