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Dear Listmates:
You guys are incredible. I had 17 responses re: gluten ataxia and neurological 
problems. Your responses were heartfelt and extremely helpful. My deep 
thanks to all of you who took the time to write to me. Here’s the summary of 
your responses:

3 of you said: “Try the diet anyway. What can it hurt?”

Several of you recommended articles by neurologist Dr. Marios Hadjivassiliou 
and his research, especially 
http://jnnp.bmj.com/cgi/content/full/72/5/560 “Gluten Sensitivity as a 
Neurological Illness.” He contends that gluten can directly attack the nervous 
system without causing damage to the small intestine. In other words, one 
can have neurological problems related to gluten without having celiac 
disease. 

2 of you recommended an article by Dr. Peter Green, A. Alaedini, H. Sandler, 
et al: “Mechanisms underlying celiac disease and its neurological 
manifestations,” published in 2004 and another article also by Dr. Peter 
Green, “The many faces of celiac disease: Clinical presentation of celiac 
disease in the adult population.” Green’s book “Celiac Disease: A Hidden 
Epidemic,” was also cited.

7 of you shared poignant personal stories of experiences with gluten ataxia 
and neurological problems, including dizziness, extremity tremor, imbalance, 
foggy thinking, unusual head sensations, visual difficulties, neuropathy-like 
symptoms including tingling and numbness, Parkinson-s-like symptoms, MS-like 
symptoms, stroke-like symptoms, and more. I am so grateful for these first-
hand accounts. ALL of you said you had significant relief on a GF diet, but 
none has been “cured” completely. 

1 person cited two NIH gluten-ataxia studies for which patients are being 
recruited. “Gluten-Free Diet in Patients with Gluten Sensitivity and Cerebellar 
Ataxia. http://clinicaltrials.gov/show/NCT00006492
http://clinicalstudies.info.nih.gov/detail/A_2001-N-0003.html

1 person cited fungi and mycotoxins as the sources for many neurological and 
other diseases, included cancers and suggested www.knowthecause.com 
website.

1 person also recommended Vitamin B12, Vitamin D, and fish oil.

These websites were also recommended for info re: the relationship between 
gluten and neurological problems: 
www.glutenreactivity.net, http://glutenfreeandbeyond.org/forum/index.php, 
www.medicalnewspodcast.com/stat.html and scroll down to #51.  
http://jccglutenfree.googlepages.com/

Again, thanks to everyone!
Best,
Virginia

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