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From:
Alexandra Stroud <[log in to unmask]>
Date:
Sat, 2 Aug 1997 12:35:50 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

"First, from some of the posts I am getting the idea that chlorine bleach
is not OK to use on clothes?  This may be a question that I should know the
answer to but, it's not?"  I DID NOT RECEIVE ANY RESPONSES TO THIS PORTION
OF MY QUESTION.

"Second, how do I get a copy of the Shopping guide that is being referred to?"
TRI-COUNTRY CELIAC SPRUE SUPPORT GROUP
34638 BEECHWOOD STREET
FARMINGTON HILLS, MI 48335

COST $10. THEIR LATEST GUIDE WAS PUBLISHED OCTOBER 1996.  ONE OF THE
LISTOWNERS, JIM LYLES, IS ASSOCIATED WITH THIS GROUP.
_____________
CELIAC SPRUE ASSOCIATION / UNITED STATES OF AMERICA, INC.
PO BOX 31700
OMAHA, NE 68131-0700
TEL.: (402) 558-0600
FAX: (402) 558-1347

COST: $8.  THEIR MOST RECENT GUIDE WAS PUBLISHED LAST MONTH.
_____________
"Third, After reading a lot of the posts I was wondering if I'm being
militant enough about my diet."

THE RESPONSES TO THIS VARIED FROM PEOPLE WHO FELT THE SAME WAY I DO TO
PEOPLE WHO EXPRESSED THEIR CONCERN THAT I WASN'T BEING CAREFUL ENOUGH.

TWO EXPRESSED CONCERN THAT AS A CELIAC I SHOULD NOT BE ADDRESSING SYMPTOMS
BUT RATHER RECOGNIZING THAT EVERY MINUTE BIT OF GLUTEN I INGEST IS DOING
HARM. ONE OF THESE STATED THAT I MIGHT NOT UNDERSTAND THAT CELIAC SPRUE IS
NEVER CURED AND THAT A CATCH IN THE THROAT AND TINGLING FEET ARE BOTH
SYMPTOMS OF CELIAC DISEASE. IN ADDITION IT WAS STATED THAT EATING OUT IN A
RESTAURANT IS ONE OF THE WORST THINGS A CELIAC CAN DO.

ONE SUGGESTED I TRY TO ELIMINATE VINEGAR (AS IN SALAD DRESSINGS) BECAUSE
THAT MAY BE WHERE I'M INGESTING GLUTEN.

ONE SUGGESTED THAT THE TICKLE IN MY THROAT COULD REPRESENT THE BEGINNING OF
HEART FAILURE OR ANOTHER ALLERGY AND STATED THAT HER PARTICULAR SITUATION
REQUIRES SHE CARRY AROUND A BEE STING KIT WITH EPINEPHRINE IN IT BECAUSE OF
HER ALLERGIES.

AND FINALLY, FOUR WHO STATED THAT LIKE ME THEY HAVE MINIMAL SYMPTOMS AND
ARE INTERESTED IN THE RESPONSES I GET AS WELL. ONE STATED THAT SOME OF THE
MACHINATIONS PEOPLE MUST HAVE TO GO THROUGH TO BE ABSOLUTELY SURE MUST BE
VERY MISERABLE SOCIALLY AND TO THEIR FAMILIES.
HIS CHOICE WAS TO EAT CAREFULLY TO AVOID GLUTEN BUT NOT OBSESSIVELY.

In summary, I think similar to one of my respondents my decision is to be
as careful as I have been and can be without obsessing. (by the way I do
know its not curable and I do appreciate knowing that the symptoms I
mentioned are symptoms of CD).  I plan to meet with my doctor again and
have a check up (not a biopsy).  Thank you for your responses.

Sandi Stroud
New Orleans
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