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Subject:
From:
Marian Williams <[log in to unmask]>
Reply To:
Marian Williams <[log in to unmask]>
Date:
Thu, 5 Feb 2009 17:28:17 -0800
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<<Disclaimer: Verify this information before applying it to your situation.>>

Many thanks to those who took the time to respond to my question, offering advice and sharing stories.  Here is the original post:

"I just received the paperwork for my pre-colonoscopy appointment with a doctor that I haven't seen in 10 years.  I hadn't been very pleased with her since then as she refused to run an adequate blood test to rule out CD even though I had PN and IBS symptoms.   She told me that I didn't look like a person who had CD.  As a result, I'm in limbo regarding my actual diagnosis even thought I find I must follow a very strict gf diet in order to stay out of the bathroom.

Back to the form, with all the diseases listed for me to choose from, there isn't a single mention of celiac disease.  Has anyone else noticed this when you've filled out medical histories for GI docs?  I'm wondering if she really is very backward, or if this is standard operating procedure outside of celiac centers."

Summary:
I received 27 responses.  
11 people never saw CD on a medical history form at the GI office
7 recommended getting a new GI doc
1 mentioned that I don't need any follow-up care for CD - just follow the gf diet
7 referred me to my local GIG
5 people referred me to the following for support:   www.theglutensyndrome.net, www.gluten.net, www.celiac.com, and www.celiac.org
Several people offered personal stories.

Thanks again, and best of health to you all.

Marian






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