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- I jsut posted a recent poat recently abotu my 3 year old son.  Hei  
s havign problems similiar to pre-diagnosiss as well and a few more  
symptoms.
A  big problem is tummy aches and often in them iddle of then ight?  
i  am beginnign to wonder about another food allergy or intolerance.   
I am keepign a food journal but cant find any pattern yet.
He is also very pale
slightly anemic,
sweats easily,
a little bloated belly
hungry ALL the time
doesnt want to walk as m uch as he used to- joint pain??? not sure
we did an endoscopy last week and are still waitign the results.
But then urse did say the vili were a little blunted.  So i am  
guessign soem type of absoprtion issue.
my son was great for his first year after diagnosis and no tummy  
complaints.  His diet isnt much different so not sure what is goign on.
a few posts were:
a few peopel replied to me and said the gut flora may be off balance   
or too much acid?
soemone said try eatign low oxalate foods (there is a lsit on the  
internet)
food allergy?
gluten contamination?
vit D deficiency?
somone had similiar systoms and it was lymphona.  i will keep you  
posted as i get any more info.  I know its hard...hang in there- 
thanks, suzanne

- my kids and I have had a mix of these symptoms since being gf (5  
yrs.).  I have found vitamin D to be a HUGE help.  I had major  
trouble w/ low platelette, white blood cells and just border-line  
anemia.  Is he off dairy?  Most people who live around or above 45  
degrees latitude lack vitamin D, most people even lower don't get  
enough sun w/out sunscreen which prevents us to make vitamin D,  
cloudy or obscured skies prevent the sun's rays from getting to us to  
even produce it.  We take 2000mg liquid vitamin D (prescribed by  
doc). Its called LiquiD.  I don't give it to them every day and am  
confindent that it won't over-dose them as I've read a lot about  
vitamin D.
  Also, low sodium levels, crazy as it sounds, could be responsible  
as well as low stomach acid.  Yeast overgrowth, too is a major cause  
of poor absorption, food sensitivities and low stomach acid, sugar  
addiction, etc.  I give the kids pure oil of oregano to keep the  
yeast at bay...I know its there...as well as excellent quality  
probiotics.  If you want any info on brands, let me know.  We went to  
a Dr. Dennis Remington at the Freedom Medical Center in Provo Utah (6  
hrs. for us) and learned an aweful lot about the role of yeast,  
vitamins and minerals, probiotics and digestive enzymes and got a lot  
of relief.  all the best to you. Kate
  Keep in mind that there could be cross reactions with other foods  
that are similar in amino acid sequence to gluten.  Those items  
include milk, corn, soy, yeast, egg, coffee, chocolate, and sesame.   
I forget if there are others.  If you will listen to the talk by Dr.  
Vojdani presented to the Pan American Allergy Society last March  
(http://glutensensitivity.net/VojdaniDiagrams.htm) he mentions these  
crossreactive foods.  It gets a little technical inplaces but it's  
not too bad and worth hearing the whole talk to get what you can from  
it.  I listened to it several times until I understood his message  
better. Sincerely, Olive Kaiser
	1. it's pretty common for Celiacs also to have casein allergy and/or  
lactose intolerance. If your daughter has osteoporosis, that suggests  
unusually bad absorption of calcium in a very young person. Whether  
that is common or not in young celiacs, you probably know better than  
I. I personally have not heard of it, which may reflect nothing more  
than my own lack of knowledge. If, however, it is unusual, that might  
point to a calcium-related issue.
	2. For reasons no one quite understands, even a healed celiac gut  
can continue to have some absorption problems. For instance, many  
celiacs whose test results confirm that they have been compliant with  
the diet have a hard time with dairy because their small intestine  
still does not deal well with fats. Dairy, of course, is loaded with  
fat.
The following site appears to offer a good summary of casein allergy  
and lactose intolerance symptoms:
http://www.foodintol.com/dairy.asp
best of luck, Mary B. NYC

- FWIW, I was wondering the same thing about my own 11 year old  
daughter this summer.
She doesn't have stomach symptoms but was getting back to her old  
extremely difficult self.  I made her give up all Frito Lay products  
and she is now back to the child she should be.  She recently showed  
signs again and only admitted to cheating with some Fritos.  So you  
may have already given these up, but I thought I would mention it.   
It's a shame because they are so readily available and are what  
everyone else eats.
We've also given up anything that says "may contain traces . . ." and  
"manufactured in a facility with ...".  I'm gluten intolerant as well  
as my daughters and I know I react to things that say this.  Again,  
you may already have done this, but there's all levels of gluten  
free, so I thought I would mention it.
I've noticed for me that if I have some accidental gluten, I can  
still feel tired and irritable and have brain fog for about 2 weeks  
or more.  And even though I didn't think I had stomach issues before  
I went GF, after having some gluten, I notice my stomach hurts for a  
few days after I eat, even though there isn't any gluten in what I'm  
eating. Karen

- Get Andy Cutler book on mercury poisoning and look into it.

- Ask at your local pharmacy if something is "going around" in your  
area.

- Kim -  You didn't say anything about lactose so I'm assuming she's  
still consuming.  I know conventional wisdom has it that lactose  
intolerance strikes at the very beginning of the gluten-free  
experience, but it didn't affect me until I'd been g.f. for 14  
months.  After I cut out ALL milk and milk ingredients (except hard  
cheese) and substituted soy, the same symptoms came back and I  
discovered I was also reacting to soy.  Soy is very difficult to get  
out of the diet, but once I did that (and also cut out nuts), I'm  
finally in complete remision of symptoms again. I'm also very  
sensitive and react to many commercial "g.f."  products.  Possibly  
the two go hand-in-hand.  So I would say try cutting out lactose,  
then soy if necessary and also, if you're using commercially prepared  
"g.f." products, drop down on the food chain to basic foods for a  
while.  I know it hard with a child, but I'm sure you'll get to the  
bottom of it with patience.  Hope this helps.  Mary B.

-I've been hesitant to take Caltrate b/c the company has not been  
able to verify the source of the "modified food starch." Instead, I  
take Os-Cal plus for my calcium and Vit D supplements. The label on  
the front of the bottle clearly states "gluten free."Good luck!  
Viviana in CT

- hi.  i have 0 gluten tolerance.  i  have reacted with dh and gut  
and everthing to supplements that say they are gluten free.  there  
may be traces in them or some connection somewhere in the process of  
making them.  i would take her off of the caltrate and see what  
happens.  i have found that many times i react in a gluten way to  
some of the gluten free anything.  sometimes because of cross  
contamination and sometimes i dont know.   pioneer vitamins are  
supposed to be gluten free.  you can find them on line and read up on  
them.   and you are right sometimes the reactions are to other  
allergies we have and arent aware of.  good luck.  i hope the you  
find the source quickly.  harriet i eat only fresh foods because i am  
so sensitive.

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