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I am going to post this question to both lists (if it's possible).
I just recently subscribed to the casein/lactose-free list
[log in to unmask] and there may be some FAQs that I
should investigate first but I might get some answers from members
as well so please be tolerant.

I just read Connie Pearce's post about having some mild intestinal
problems in her pre-teen years and then having DH show up 40 years
later.  My question is this......if you have CD (either knowingly
or unknowingly) and you continue to eat gluten (either intentionally
or unintentionally) is it a given that you will also develop DH?  I
hope not.  I try to be very careful with my diet (the intestinal
problems caused about all of the suffering that I wanted to deal
with).

Someone else on the celiac list indicated that continued intestinal
problems even while being gluten free might be related to being
casein intolerant as well.  Does anyone know what the actual medical
tests (i.e., blood tests, maybe biopsy of the small intestine, etc.)
might be needed to diagnose casein intolerance?  What symptoms and
what permanent damage or consequences might happen if you continue
to ingest casein?  Would you also be at risk of lymphoma cancer from
casein ingestion?  I asked these questions about casein intolerance
at my last GI doctor's appt. and I did not get an answer.  He des-
cribed the lactose problem and so-called treatments for it in great
detail.  He said he did not know anything about casein intolerance
and that he would have to look it up but that was usually something
that showed up only in infancy.  He said he thought my continued
intestinal problems were more likely to be "just something that I
ate".  Duhhhhh!  I thought health problems that cause DH, CD, casein
intolerance, lactose intolerance, (insert your own intolerance) were
all cases of being "just something that you eat" but without diagnosis
you continue to eat things that make you sick.

I will be going through another endoscopy with biopsy of the duodenum
on June 25th.  I am wondering if casein intolerance might manifest
itself by showing flattened villi the same way it does for gluten
intolerance?

One more question...on two separate occastions someone posted to
the celiac list that Progresso Soups had a Cream of Mushroom soup
that was gluten free.  I look in every grocery store I go into for
Cream of Mushroom soup in the Progresso brand and I can't find it.
Is it possible that the two people were referring to a Progresso
Soup with mushrooms being just one of the ingredients or are the
stores that I am patonizing just not carrying the CREAM of mushroom
variety?

TIA.

Darla Straka
Albuquerque, NM, USA