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The time to act is now!  We only have this month and next month to help 
raise funds for the Center for Celiac Research (CFCR).  If we could make 
this a record year, not only will we be helping CFCR but we might also make 
another awareness milestone – get this walk NATIONAL attention!

I know you care and want to make a difference.  I know this because you 
have signed into this listserv.  People who do this care about making 
change and making their life better or the life of their loved one better.  
All I'm asking is to take this same drive and energy to higher level.  I am 
going to publish a list of fundraising activities you can think about 
conducting sometime over the next couple of months.  I'll post this list 
within the next few days.  However, if this is a bit much due to the time 
constrained lives we celiacs must live then promise me you will make a 
donation.  If every one of us gives something then we can make a difference.

You might also ask why CFCR versus your local community or another 
organization?  25% of your contribution will go to local communities so 
this is a win-win.  Here's why I believe in CFCR:

1. CFCR has worked long and hard to increase awareness throughout the 
country among health care professionals, the general public, 
news/television media outlets and other organizations. 

2. CFCR was instrumental in helping get guidelines for diagnosis and 
treatment of children published.  In addition, CFCR was instrumental in 
producing a physican's slide set, grand rounds program and a gluten-free 
diet guide. 

3. CFCR spearheaded the largest study to show celiac is prevalent - 1 out 
of 133  versus 1 out of 10,000.

4. CFCR developed the Ttg diagnostic test for CD which is now used 
nationwide to diagnose CD.

5. CFCR spearheaded the organization that was successful in getting the new 
food allergen labeling law.  

6. CFCR discovered Zonulin, a protein.  This protein appears to be involved 
in many disease states in which leakage occurs in the tight junctions.  
Clinical trials are underway to create a zonulin inhibitor.

The list goes on but these are the large milestones over the past 10 
years.  We are very fortunate to be diagnosed in this day and age.  Our 
lives are so much better because of the momentum of CFCR and the celiacs 
before us who cared to make a difference.  Let’s not rest on our laurels or 
think there's nothing left to do!  As you know 98% of unknown celiacs are 
still suffering and need the word "celiac" to be as common as cancer, 
diabetes, and peanut allergies.  We are not done, the work must continue 
and it takes every one of us!

Please sign-in to Dr. Fasano's donation page and make a donation today. 
Also, send this post to your family, friends and co-workers and ask them 
for their help.  You'll be amazed at their generosity. 70% of the funds I 
raised came from family, friends and co-workers (i.e., non-celiacs). Just 
send them to Dr. Fasano's web page. Finally, I've attached a donation form 
you can use for check donations.  

http://tinyurl.com?zt2gj

Thank you in advanced for your support!

Janet Kline,
Charlotte NC
 

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