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Subject:
From:
Meredith Green <[log in to unmask]>
Date:
Sun, 30 Jan 2000 07:46:20 EST
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<<Disclaimer: Verify this information before applying it to your situation.>>

"I got my results back last week, and they were negative.... what are the
chances of the tests being wrong? My doctor said that he thought it was
irritable bowel syndrome- but then how come I have strong reactions whenever
I eat wheat or milk products?

And he advised me to eat more fiber and try metamucil... but my problem is
definitely not constipation, so i don't think that advice would be a good
idea.

I'm thinking of going back to him to ask him all these questions but Im
curious as to what you more experienced people think I should do, and if
anyone has ever had a similar experience.

Thanks,
Meredith"

Most of you said that first of all there was a fairly good chance of blood
tests being inaccurate in general- anywhere from 20-50% inaccurate. Then, you
told me that if I had been on a gluten free diet or even mostly gluten free
that, that would make the test results not show up celiac.

Many of you asked whether I had been on a gluten free diet, and to let you
know, I have been on a mostly gluten free diet for 15 years, because when I
was eight I was diagnosed with gluten intolerance by a pediatric GI at
Georgetown University.

Many of you said that it is necessary to shop around to find a doctor who
really knows celiac, and I should consider that. Many others said that they
thought I should just continue not eating gluten because the important thing
is feeling good, and I ought not to worry about being diagnosed. So I have to
admit being a little confused as to what I should do now.

As for the metamucil, some of you have been on it for the same problems that
I have, and said that it works wonders- which is good to know.

It does help knowing that there are many of you out there with similar
experiences! thanks,
Meredith

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